Cystic Fibrosis Foundation · [email protected]

October 12, 2020 at 9:20 PM

You are invited

✉️ Join us November 19 for our Breath of Life Celebration We dream of the day when there is a cure for all people living with cystic fibrosis. When the CF community unites, anything is possible.  You are invited to our Breath of Life Celebration…

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  Cystic Fibrosis Foundation · [email protected]

October 8, 2020 at 8:35 PM

Together: a Community Update

The latest information for October 8, 2020 Thursday, October 8, 2020 Take our CF Care Survey How has your experience receiving cystic fibrosis care changed during the COVID-19 pandemic? If you’re an adult living with CF or a caregiver…

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  Cystic Fibrosis Foundation · [email protected]

October 7, 2020 at 3:53 PM

The NACFC virtual experience starts now

Hear the latest in CF research, care, and therapy development Dear Friend, The North American Cystic Fibrosis Conference virtual experience starts now! There’s still time to register for the full event for $125 to access all live and on-demand sess…

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  Cystic Fibrosis Foundation · [email protected]

October 2, 2020 at 12:28 PM

Today we ROSE UP together!

How will you ROSE UP? Today, CF community members from all 50 states are coming together to ROSE UP! Join us for a special day of fundraising and story sharing on social media. It's not too late to ROSE UP! REGISTER to join the movementNo…

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  Cystic Fibrosis Foundation · [email protected]

September 29, 2020 at 10:26 PM

We want to celebrate you

Join Together: Now on October 6 at 7 p.m. ET It’s not too late to register for Together: Now, a virtual event on October 6 at 7 p.m. ET, highlighting people with cystic fibrosis and their loved ones from across the country who have tackled the 65…

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  Cystic Fibrosis Foundation · [email protected]

September 24, 2020 at 8:28 PM

Together: a Community Update

The latest information for September 24, 2020 Thursday, September 24, 2020 Register for Together: Now  Join us October 6 for Together: Now, a virtual event celebrating the many contributions of the cystic fibrosis community to the 65 Ros…

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  Mary Dwight – Cystic Fibrosis Foundation · [email protected]

September 22, 2020 at 4:31 PM

Vote Safely in 2020

Resources to help you cast your ballot Dear Advocate, Exercising your right to vote is an important way to advocate for people with cystic fibrosis. While participating in the 2020 General Election may look different this year due to…

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  Cystic Fibrosis Foundation · [email protected]

September 21, 2020 at 8:30 PM

Join us on October 6

Together: Now brings together the CF community We’re proud to have some of the Foundation’s all-star teamMATEs join us October 6 for Together: Now. Members of the cystic fibrosis community and longtime supporters will share their inspiring stories an…

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  Cystic Fibrosis Foundation · [email protected]

September 17, 2020 at 4:27 PM

How will you ROSE UP? 🌹

Join us ROSE UP is a new virtual fundraising event created and led by adults with cystic fibrosis to bring the CF community together to ROSE UP for a cure. What’s unique about this event is that you can get creative to ROSE UP. Our goal …

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  Cystic Fibrosis Foundation · [email protected]

September 10, 2020 at 8:25 PM

Together: a Community Update

The latest information for September 10, 2020 Thursday, September 10, 2020 Vertex Announces Positive Study Results for Trikafta in Children Ages 6 to 11 Vertex announced positive Phase 3 clinical trial data for Trikafta in children ages 6 …

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  Cystic Fibrosis Foundation · [email protected]

September 9, 2020 at 8:25 PM

Registration Now Open

Join Us for Together: Now Together, we rise to the challenge.Together, we celebrate every win.We are Together: Now. There is no community quite like the CF community. Together, we have helped achieve incredible victories in the fight…

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  Cystic Fibrosis Foundation · [email protected]

August 27, 2020 at 8:31 PM

Together: a Community Update

The latest information for August 27, 2020 Thursday, August 27, 2020 Registration is Open for NACFCRegister for NACFC to hear the latest advances in cystic fibrosis research, care, and drug development. Choose from the complimentary track,…

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  Cystic Fibrosis Foundation · [email protected]

August 13, 2020 at 8:35 PM

Together: a Community Update

The latest information for August 13, 2020 Thursday, August 13, 2020 Register for our Infection Research WebinarJoin us for a CF research webinar on Tuesday, August 25 at 6 p.m. ET to learn about current and upcoming research to address ke…

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  Cystic Fibrosis Foundation · [email protected]

August 11, 2020 at 2:37 PM

Watch: The latest in CF research

Introducing four new clinical research videos New Developments in Clinical Research The journey to end cystic fibrosis isn’t a straight line. It’s an evolving map with many paths and unique challenges. It requires an ambitious research agenda to a…

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  Cystic Fibrosis Foundation · [email protected]

August 4, 2020 at 8:32 PM

Come together for the 65 Roses Challenge

And help make CF stand for Cure Found. You are invited to be part of the 65 Roses Challenge, a fundraising effort that will help the Cystic Fibrosis Foundation get one step closer to finding a cure for cystic fibrosis, while staying the course dur…

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  Cystic Fibrosis Foundation · [email protected]

July 23, 2020 at 8:35 PM

Together: a Community Update

The latest information for July 23, 2020 Thursday, July 23, 2020 Virtual Event on School ReopeningAs schools start to reopen across the country, how can parents, students, and households living with cystic fibrosis make the best decisions …

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  David Elin - Cystic Fibrosis Foundation · [email protected]

July 20, 2020 at 4:09 PM

We are stronger than ever with you as an advocate!

Join us for a policy update Dear Advocate, We are midway through 2020, and despite challenges faced by our nation, the cystic fibrosis community is stronger than ever. Join us Wednesday, July 22 at 1:00 PM ET for an update webinar. We will provide…

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  Cystic Fibrosis Foundation · [email protected]

July 9, 2020 at 8:48 PM

Together: a Community Update

The latest information for July 9, 2020 Thursday, July 9, 2020 COVID-19 Q&A Updated to Address ReopeningOur COVID-19 community Q&A has been updated. The update focuses on reopening and includes new and revised questions regarding a…

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  Cystic Fibrosis Foundation · [email protected]

June 25, 2020 at 8:38 PM

Together: a Community Update

The latest information for June 25, 2020 Thursday, June 25, 2020 Up to $14M Awarded in Effort to Solve Key Challenges to Gene Delivery in Cystic FibrosisThe Foundation remains committed to drawing the best scientific minds and technology i…

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  Cystic Fibrosis Foundation · [email protected]

June 11, 2020 at 8:42 PM

Together: a Community Update

The latest information for June 11, 2020 Thursday, June 11, 2020 Up to $5.6M Awarded to Develop Novel AntibioticAs part of our Infection Research Initiative, the Foundation awarded up to $5.6 million to Microbion Corp. to develop an inhale…

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  Cystic Fibrosis Foundation · [email protected]

June 8, 2020 at 3:40 PM

There’s still time

Make your gift count during this $250,000 challenge There’s still time to make your first monthly gift to participate in the $250,000 challenge. We're nearly there! The Jurrens Family Foundation is offering this special opportunity becaus…

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  Cystic Fibrosis Foundation · [email protected]

June 6, 2020 at 4:41 PM

When faced with questions

Sarah knew where to turn for answers Dear friend, Before she became a mom, Sarah Jurrens experienced the same jitters that all soon-to-be parents face. But prenatal genetic testing added yet another layer of questions. Sarah’s baby girl, …

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  Cystic Fibrosis Foundation · [email protected]

June 5, 2020 at 10:47 PM

An exciting challenge for the CF communtiy

Dear friend, We hope you were able to join us for Together: Celebrating 65 Years, our virtual celebration of the CF community and all we have accomplished thanks to individuals like you. So much has changed since the Foundation was established in 1955…

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  Cystic Fibrosis Foundation · [email protected]

June 4, 2020 at 9:02 PM

Will you join us tomorrow?

Register for the virtual event today Dear friend, Are you joining us tomorrow? At 5 p.m. ET, we’ll be gathering for Together: Celebrating 65 Years. Celebrate 65 years of progress and the commitment we share to ensure that CF will stand for Cure Foun…

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  Cystic Fibrosis Foundation · [email protected]

May 26, 2020 at 9:32 PM

We’re better together this 65 Roses Day

Join us for a celebration of the CF community, You’re invited to Together: Celebrating 65 Years on Friday, June 5 at 5 p.m. ET. REGISTER NOW This online event will feature voices from the CF community in an hour-l…

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  Cystic Fibrosis Foundation · [email protected]

May 21, 2020 at 8:49 PM

Together: a Weekly Community Update

The latest information for May 21, 2020 Thursday, May 21, 2020 Tell the Senate CF Families Need Paid Leave and Medicaid Funding On May 15, the U.S. House of Representatives passed the HEROES Act, the fourth major federal relief…

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  Piper Beatty Welsh - Cystic Fibrosis Foundation · [email protected]

May 18, 2020 at 3:37 PM

I can’t wait to connect with you!

Join me for Together: Celebrating 65 Years on June 5 Hi there,I’m Piper Beatty Welsh and I’ll be one of your emcees for Together: Celebrating 65 Years on June 5. If you haven’t heard about it already, this virtual event will be a moment for all of us i…

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  Cystic Fibrosis Foundation · [email protected]

May 7, 2020 at 8:49 PM

Together: a Weekly Community Update

The latest information for May 7, 2020 Thursday, May 7, 2020 "In a Minute" with Paula Lomas, M.A.S., RN, CCRPHow can you prepare for your next telehealth appointment? Paula Lomas, M.A.S., RN, CCRP, senior direc…

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  Cystic Fibrosis Foundation · [email protected]

May 5, 2020 at 3:34 PM

A special invitation

Join us on June 5 for Together: Celebrating 65 Years Dear Friend, We have achieved so much together in the last 65 years. Today, there are treatments that lead to longer, fuller lives for people with cystic fibrosis, and a strong community that shares …

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  David Elin - Cystic Fibrosis Foundation · [email protected]

May 4, 2020 at 4:00 PM

Let's come together

Join us for an update on the Foundation’s policy and advocacy work Dear Advocate, During this unprecedented time, nothing is more important to the Foundation than the health and safety of the cystic fibrosis community. Our work has been driven by …

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  Cystic Fibrosis Foundation · [email protected]

May 1, 2020 at 3:28 PM

We’re celebrating you

Share your story with us! This May we celebrate Cystic Fibrosis Awareness Month. While our celebrations this year look a little bit different, the CF community is no stranger to overcoming challenges and remaining stronger together—even from afar. All…

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  Cystic Fibrosis Foundation · [email protected]

April 30, 2020 at 9:00 PM

Together: a Weekly Community Update

The latest information for April 30, 2020 Thursday, April 30, 2020 Study on COVID-19 in People With CF PublishedA study published in the Journal of Cystic Fibrosis reports on 40 people with CF across eight countries and r…

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  Cystic Fibrosis Foundation · [email protected]

April 23, 2020 at 8:43 PM

Together: a Weekly Community Update

The latest information for April 23, 2020 Thursday, April 23, 2020 Your COVID-19 Questions AnsweredAt ResearchCon 2020, co-chair James Lawlor asked President and CEO Dr. Mike Boyle some of the communi…

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  Cystic Fibrosis Foundation · [email protected]

April 20, 2020 at 4:46 PM

Celebrate National Volunteer Week

Share the thanks! Happy National Volunteer Week! From advocating, researching, fundraising, connecting, and lending a helping hand—you inspire and motivate us every day. Without your support, we would not be able to accelerate our research, provi…

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  Cystic Fibrosis Foundation · [email protected]

April 16, 2020 at 8:36 PM

Together: a Weekly Community Update

The latest information for April 16, 2020 Thursday, April 16, 2020 Tell Lawmakers: Don’t Disqualify People with CFMany states and health systems are creating guidelines for frontline healthcare workers as they …

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  Mary Dwight - Cystic Fibrosis Foundation · [email protected]

April 10, 2020 at 2:10 PM

Tell Congress: We Need Paid Leave

No one should have to choose between their health and their livelihood. Dear Advocate, For lots of people with cystic fibrosis and their circles of support, the COVID-19 pandemic is magnifying existing financial and logistical burdens associated w…

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  Cystic Fibrosis Foundation · [email protected]

April 9, 2020 at 8:42 PM

Together: a Weekly Community Update

The latest information for April 9, 2020 Thursday, April 9, 2020 In a Minute with Dr. Mike Boyle"In a Minute" is a video series in which cystic fibrosis experts answer—in one minute—COVID-19 related questions important to…

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  Cystic Fibrosis Foundation · [email protected]

April 2, 2020 at 9:28 PM

Together: a Weekly Community Update

The latest information for April 2, 2020 Thursday, April 2, 2020 Social Distancing – Not a New Reality for Our CommunityWhile millions of Americans try to make sense of social distancing as a new reality, the C…

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  Cystic Fibrosis Foundation · [email protected]

March 27, 2020 at 3:04 PM

Together: a Weekly Community Update

The latest information for March 27, 2020 Friday, March 27, 2020 You're Invited to Happiness Hour Tonight!Join us in finding joy in the here and now. Everyone in the CF Community is invited to a virtual Communi…

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  Cystic Fibrosis Foundation · [email protected]

March 26, 2020 at 7:26 PM

COVID-19 Updates from Michael Boyle, MD, President and CEO

The latest on the CF community and COVID-19 Dear Friend, Please click here for an important video update from Michael Boyle, MD, President and CEO of the CF Foundation, regarding CF Foundation events and resources to support the CF community during the COVID-19 outbreak.…

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  Cystic Fibrosis Foundation · [email protected]

March 20, 2020 at 3:19 PM

Register for ResearchCon

Plus a COVID-19 FAQ, VLC archives, and more Community Questions about COVID-19 Do you have questions about COVID-19 and cystic fibrosis? We are regularly updating an on-site FAQ to share the latest recommendations by the Foundation and the CDC. See…

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  Michael Boyle, MD - Cystic Fibrosis Foundation · [email protected]

March 16, 2020 at 11:18 PM

Important COVID-19 update

Updated guidance on COVID-19 for the CF community Dear Friend, With the rapid, global spread of the novel coronavirus and COVID-19 infection, it is clear that these are unprecedented times. The CF Foundation cares deeply for the health and well-being of the CF community.…

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  Cystic Fibrosis Foundation · [email protected]

March 13, 2020 at 1:03 PM

Virtual VLC starts today!

Join us via livestream Dear Friend, The 2020 Volunteer Leadership Conference livestream starts today at 1 p.m. ET. Join us for this fully virtual experience to hear from others in the CF community, get the latest medical and scientific updates, and mor…

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  Michael Boyle. M.D. - Cystic Fibrosis Foundation · [email protected]

March 11, 2020 at 11:56 PM

COVID-19 Preparedness and the CF Community

Dear Friend, We take our responsibility to the CF community seriously. For the past few weeks, the CF Foundation has been closely monitoring the spread of COVID-19 throughout the United States, following guidance from the CDC and local health authorities, and consulting …

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  Cystic Fibrosis Foundation · [email protected]

March 10, 2020 at 3:43 PM

Join us this Friday

Register now for the VLC 2020 livestream! Dear Friend, We wouldn’t be where we are today without you, and together, we are entering a new era in cystic fibrosis. Join us for the virtual 2020 Volunteer Leadership Conference (VLC) on Friday, March 13 f…

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  Cystic Fibrosis Foundation · [email protected]

February 28, 2020 at 5:54 PM

Register for the VLC 2020 livestream

Hear success stories and tips from our volunteers The 2020 Volunteer Leadership Conference will take place March 13 - 14. Join us virtually to hear success stories from our volunteers, the latest medical and scientific updates, and more. You can also a…

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  David Elin - Cystic Fibrosis Foundation · [email protected]

February 27, 2020 at 6:35 PM

Tell Congress: We need new antibiotics today!

Join our Online Day of Action Dear Advocate, Each year, 2.8 million Americans acquire serious infections caused by antibiotic-resistant bacteria and 35,000 of them die as a result. People living with cystic fibrosis face the heighted risk of lif…

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  Cystic Fibrosis Foundation · [email protected]

February 20, 2020 at 4:13 PM

Great Strides registration is open!

Plus research opportunities for CFRD, the latest podcast and more Great Strides Registration is Now OpenHave you registered for Great Strides 2020? If not, now is the perfect time to get started! You can also take the next step in your Great Stride…

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  Cystic Fibrosis Foundation · [email protected]

February 14, 2020 at 4:23 PM

Make this Valentine’s Day extra sweet

There’s so much we can accomplish together! Valentine's Day is the perfect time to say thank you for all you do for people living with cystic fibrosis! You can show your love all year long by joining the 65 Roses® Club and becoming a monthly dono…

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  Cystic Fibrosis Foundation · [email protected]

January 17, 2020 at 5:06 PM

Advocate: You spoke and lawmakers listened

See the progress we made in 2019 and kick start 2020 Dear Advocate, 2019 was a momentous year for the cystic fibrosis community. Thanks to your tireless work, we remained steadfast in our commitment to educate decision-makers on key issues that impa…

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