Cystic Fibrosis Foundation · [email protected]

January 15, 2020 at 8:37 PM

2020 Impact Grants are now open

Plus information on procedural anxiety, Tomorrow's Leaders Day and more 2020 Impact Grants Now OpenDo you have an idea for a project that empowers and engages the cystic fibrosis community? Impact Grants provide up to $10,000 per year to individual…

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  Cystic Fibrosis Foundation · [email protected]

January 9, 2020 at 8:43 PM

A message from our President and CEO

Hear Mike Boyle share our strategic vision for the future Dear Friend, We are entering a new era in cystic fibrosis. Working alongside the CF community for 65 years, the Cystic Fibrosis Foundation has achieved unprecedented advances in the treatment and care of CF. Our…

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  Cystic Fibrosis Foundation · [email protected]

January 1, 2020 at 2:16 AM

There’s still time

Celebrate with us before midnight tonight! Dear Friend, As 2019 comes to a close, a new era is just beginning. 2020 promises to bring advances in care, ambitious research, and new hope for all people living with cystic fibrosis. Friend, j…

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  Cystic Fibrosis Foundation · [email protected]

December 31, 2019 at 3:33 PM

In the New Year...

Let’s keep the momentum going Dear Friend, In 2019 we saw remarkable progress in the fight to end cystic fibrosis, including the approval of a triple-combination therapy and the promise of new, ambitious research through the Path to a Cure. All this w…

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  Cystic Fibrosis Foundation · [email protected]

December 30, 2019 at 6:51 PM

Your 2019 update

This holiday season, we’re thankful for you! Dear Friend, This holiday season, I want to take a moment to celebrate all that we have accomplished together in the fight to end cystic fibrosis. Because of people like you, there have been tremendous steps forward in our wo…

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  Cystic Fibrosis Foundation · [email protected]

December 27, 2019 at 4:40 PM

Tears of joy and heartache

The day is coming for people like Shelby Dear Friend, "Do whatever you can to protect your lungs. The day is going to come when there will be something to change your life.” Shelby Luebbert clearly remembers the words of hope…

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  David Elin - Cystic Fibrosis Foundation · [email protected]

December 16, 2019 at 6:33 PM

Deadline: Congress must pass federal spending bills

Fight for Funding for NIH and FDA Dear Advocate, Congress must pass federal spending bills before December 20. Ensuring there is appropriated funding for the U.S. Food and Drug Administration (FDA) and the National Institutes of Health (NIH) is a…

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  Cystic Fibrosis Foundation · [email protected]

December 12, 2019 at 5:00 PM

It’s always shining stars

You make a great life possible for kids like Carmine Dear Friend, Carmine is always dancing. Just about any tune, even the sound of the doorbell, can inspire the one-and-a-half year old. He’s also a fan of Mickey Mouse, st…

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  David Elin, Cystic Fibrosis Foundation · [email protected]

December 9, 2019 at 7:35 PM

CF Advocacy in 2019

See where we’ve been and where we’re going Dear Advocate, What a year 2019 has been! With the 30th anniversary of the CF gene discovery, the approval of Trikafta™, and the Path to a Cure announcement, we have much to celebrate – and much to look …

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  Cystic Fibrosis Foundation · [email protected]

December 4, 2019 at 5:04 PM

The results are in!

Thank you for your support this Giving Tuesday Dear Friend, We did it! Together, we surpassed our goal of $250,000 raised for the CF Foundation on Giving Tuesday. With the generous matching gift provided by the Stremick family, we raised well over half a mill…

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  Cystic Fibrosis Foundation · [email protected]

December 3, 2019 at 7:59 PM

We’re so close

Will you help us get there? Dear Friend There's still time to unlock our Giving Tuesday match! We’re so close to meeting the $250,00 matching gift. Every donation you make today will be matched, dollar for dollar, until we reach our goal. Friend, we’…

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  Cystic Fibrosis Foundation · [email protected]

December 3, 2019 at 2:28 PM

Your impact, doubled

Have your gift matched for Giving Tuesday! Dear Friend Ella is a vibrant and active 14-year-old who enjoys dance, soccer, swimming, taking pictures of her cousins and friends, and cooking with her grandmother, Nancy. In between her busy schedule and ke…

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  Cystic Fibrosis Foundation · [email protected]

December 2, 2019 at 4:51 PM

Something extra special

Help us go twice as far this Giving Tuesday Dear Friend Join us in celebrating all the progress made this year and planting hope for the years to come. This Giving Tuesday, gifts will be matched, dollar-for-dollar, up to $250,000. The Foundation funds…

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  Cystic Fibrosis Foundation · [email protected]

November 22, 2019 at 6:03 PM

Learn more about research progress

Plus Great Strides registration and Path to a Cure Learn How the CF Community is Shaping ResearchJoin us for a free Research Progress webinar on Tuesday, December 10. Hear an overview of the full spectrum of research the CF Foundation is supporting…

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  Cystic Fibrosis Foundation · [email protected]

November 21, 2019 at 5:03 PM

Infection Research Initiative: One year later

Learn more about our progress in infection research Dear Friend, November marks the one-year anniversary of the launch of the Infection Research Initiative. Through this initiative, the Foundation has committed at least $100 million to address the chronic and intractabl…

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  Cystic Fibrosis Foundation · [email protected]

October 31, 2019 at 7:35 PM

We’re about to go live

NACFC starts today Your opportunity to hear about the latest advancements in cystic fibrosis research and care is here! Join us today at 4:30 p.m. CT / 5:30 p.m. ET for Plenary 1 from the North American Cystic Fibrosis Conference (NACFC). …

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  Cystic Fibrosis Foundation · [email protected]

October 30, 2019 at 10:25 AM

Announcing the Path to a Cure

CF Foundation announces $500 million Path to a Cure Dear Friend, The future of CF has never looked brighter. The CF Foundation’s relentless pursuit of better todays and more tomorrows for people with CF, combined with the efforts of our extraordinary …

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  Cystic Fibrosis Foundation · [email protected]

October 23, 2019 at 3:11 PM

Webinar on triples

Join us Friday to learn more about the announcement Dear Friend, On Monday, we shared the exciting news that the FDA has approved TRIKAFTA™ for people with cystic fibrosis age 12 and older who have at least one copy of the F508del mutation. With the introduction of this…

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  Cystic Fibrosis Foundation · [email protected]

October 21, 2019 at 9:18 PM

BREAKING NEWS: FDA Approves Triple Combination!

FDA approves new highly effective treatment for the underlying cause of CF Dear Friends, Today marks a tremendous breakthrough and exciting news for people with cystic fibrosis. The FDA announced its approval of TRIKAFTA, a new, highly effective CFTR modulator therapy …

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  David Elin, Cystic Fibrosis Foundation · [email protected]

October 21, 2019 at 3:19 PM

What are you doing Wednesday?

Learn more about our advocacy work to help CF stand for Cure Found Dear Advocate, Ever wonder how your advocacy helps move the needle on research and development? Join us Wednesday, October 23 at 1:00 PM ET for a webinar to learn more about the F…

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  Cystic Fibrosis Foundation · [email protected]

October 17, 2019 at 5:00 PM

Hear the latest in CF research and care from NACFC

Check out the schedule and register today Dear Friend. The North American Cystic Fibrosis Conference (NACFC) brings together researchers and health care professionals from across disciplines to discuss the latest developments in cystic fibrosis res…

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  Cystic Fibrosis Foundation · [email protected]

October 16, 2019 at 6:13 PM

Tips for open enrollment

Plus the latest research news, getting social without oversharing, and more Navigate Open Enrollment with CompassChoosing the right health insurance plan can be complex, but CF Foundation Compass can help! You can contact a case manager for one-on-…

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  Cystic Fibrosis Foundation · [email protected]

September 13, 2019 at 4:17 PM

Get your IPC Passport

Plus BreatheCon, the O'Donnell's family story, and more on lung transplant Register for BreatheCon!Come together with other people living with CF to discuss topics unique to you! BreatheCon is a free, online event just for adults with cystic fibros…

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  David Elin - Cystic Fibrosis Foundation · [email protected]

September 9, 2019 at 3:21 PM

Updates and tools to help you advocate

Learn tips and tricks to help you make a difference in the community Dear Advocate, School is back in session and our lawmakers are back to work. Join the Cystic Fibrosis Foundation on Wednesday, September 11 at 1:00 PM ET for a webinar to hear m…

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  Cystic Fibrosis Foundation · [email protected]

August 15, 2019 at 8:30 PM

Celebrating 30 years of progress

Plus 2019 Impact Grants, RNA research, and new fundraising tools Thirty Years, a Lifetime of ProgressThirty years ago this month, scientists discovered the gene for cystic fibrosis. The discovery was heralded as one of the most significant genetic …

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  Elizabeth Holden - Cystic Fibrosis Foundation · [email protected]

August 1, 2019 at 8:35 PM

Ready for the next step?

Download your Congressional Recess Toolkit today! Dear Advocate, We’re sorry to have missed you at our latest advocacy webinar – but that doesn’t mean you can’t take part in August recess advocacy! Right now, your lawmakers are back in your…

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  Elizabeth Holden - Cystic Fibrosis Foundation · [email protected]

July 29, 2019 at 3:14 PM

What are you up to this summer?

Learn how to help advance policies during Congressional recess Dear Advocate, The cystic fibrosis community has been hard at work advocating both on Capitol Hill and at home for the needs of people with CF. Want to learn how to join this strong, …

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