The latest information for April 23, 2020


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Thursday, April 23, 2020

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

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Your COVID-19 Questions Answered

At ResearchCon 2020, co-chair James Lawlor asked President and CEO Dr. Mike Boyle some of the community’s top questions on COVID-19 ([link removed]). Watch the whole session, or use the timestamp guide to hear answers to the questions most important to you.
View the Q&A » ([link removed])

Washington Post Highlights Progress in CF

We were thrilled that the The Washington Post ([link removed]) spotlighted the CF community’s work in its feature this week on the remarkable recent history of CF, from the gene discovery through the approval of TrikaftaTM, and the scientific challenges to come. Your support and commitment has made achieving these milestones possible, thank you!
See the story » ([link removed])

"In a Minute" With JP Clancy, MD

What does the return to normal look like for the cystic fibrosis community? As some states look to relax restrictions, JP Clancy, MD, vice president of clinical research at the CF Foundation, provides an update in our latest "In a Minute" video ([link removed]).
Watch on YouTube » ([link removed])

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5 Virtual Programs for the CF Community

We’ve spotlighted five programs for the CF community to join ([link removed]) from the comfort of their own homes. From singing lessons to exercise programs, these programs allow you to stay physically and mentally active and connect with others while physically distancing.
Check them out » ([link removed])

Upcoming Virtual Event

Wed., May 6, 7 p.m. ET – Addressing Community Questions During COVID-19
CF community member Marissa Benchea will moderate a discussion with CF Foundation President and CEO Dr. Mike Boyle and Karen Carey, senior case manager with Compass ([link removed]), as they answer the community’s top questions related to COVID-19, from the latest medical information to insurance, work, and financial challenges for people with CF and their families.
Register now » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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