The latest information for June 25, 2020
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Thursday, June 25, 2020
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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814
www.cff.org ([link removed])
Up to $14M Awarded in Effort to Solve Key Challenges to Gene Delivery in Cystic Fibrosis
The Foundation remains committed to drawing the best scientific minds and technology into CF to deliver the next generation of transformative therapies for people with cystic fibrosis. As part of the Foundation’s $500 million Path to a Cure initiative, we announced funding of up to $14 million to 4D Molecular Therapeutics Inc. ([link removed]) to develop a vehicle to deliver a healthy cystic fibrosis transmembrane conductance regulator (CFTR) gene into the lung cells of people with CF.
Read more » ([link removed])
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Vote for BreatheCon Artwork
You can help choose the winning artwork that will be featured on the swag ([link removed]) for BreatheCon 2020, a virtual event for adults living with cystic fibrosis. Check out the designs, and vote by July 7.
Cast your vote » ([link removed])
CFRD Research Webinar Recording Now Available
The recording from our cystic fibrosis-related diabetes (CFRD) research webinar is now available ([link removed]). Hear from CF research experts and members of the community about current and upcoming studies that aim to improve CFRD diagnosis and treatment, and how researchers are seeking community input on topics related to CFRD.
Watch the recording » ([link removed])
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My Experience with Telehealth
Many care centers have shifted to providing routine cystic fibrosis care via telehealth during the pandemic. Lydia Sand, an adult with CF, shares her experience working with her care team ([link removed]) and advocating for herself during telehealth appointments.Read the blog » ([link removed])
4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US
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