The latest information for July 9, 2020


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Thursday, July 9, 2020

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

COVID-19 Q&A Updated to Address Reopening

Our COVID-19 community Q&A has been updated ([link removed]). The update focuses on reopening and includes new and revised questions regarding attending work and in-person clinic visits, travel, and participating in summer activities
View our COVID-19 Q&A » ([link removed])

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Save the Date for NACFC

We're excited to share that NACFC will be held virtually from October 21 to 23 ([link removed]). The online program will be made available when registration opens in early August. There will be a registration fee of $125 per person, which includes access to live and on demand sessions, including Q&A, as well as hundreds of posters, chat conversations, the supporter showcase, and networking opportunities.
Learn more » ([link removed])

CF Foundation Leadership Provides Patient Perspective During Global Antibiotics Initiative Launch

Today, the Foundation’s president and CEO, Dr. Michael Boyle, participated in the launch of the AMR Action Fund, a collective venture that expects to invest more than $1 billion into the development of novel antibiotics ([link removed]) to address the growing threat of antimicrobial resistance. Speaking on a panel discussion to more than 600 online attendees, Dr. Boyle shared the challenges people with cystic fibrosis face with chronic infection and stressed the need for novel antibiotics as superbugs and antibiotic resistance continue to be a global health concern.
Learn more » ([link removed])

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Nearly 200 Teens Gather Virtually for Teen Advocacy Day

On June 24 and 25, nearly 200 teen advocates from across the country – half whom are living with cystic fibrosis – participated virtually in the Foundation’s 12th Annual Teen Advocacy Day ([link removed]). This year, due to the COVID-19 pandemic, the teen advocates gathered virtually, marking the first time that people with CF were able to attend the advocacy event along with their loved ones. Read how teens participated » ([link removed])

Hurricane Season is Here

Having a disaster and emergency preparedness plan during a natural disaster or emergency is especially critical when living with a chronic illness like cystic fibrosis. Review the Foundation’s guide ([link removed]) to learn what you or your loved one with CF can do to prepare for a disaster or emergency, and how Compass ([link removed]) can support people with CF and their families.
View our guide » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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