The latest information for July 23, 2020


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Thursday, July 23, 2020

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

Virtual Event on School Reopening

As schools start to reopen across the country, how can parents, students, and households living with cystic fibrosis make the best decisions for them around distance and in-person learning? Join us virtually on Thursday, July 30, at 7 p.m. ET ([link removed]) for a discussion with clinical experts in the field and have a chance to have your questions answered.
Register now » ([link removed])

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COVID-19 Q&A Updated to Address School Reopening

Our COVID-19 community Q&A has been updated ([link removed]) to address questions about school reopening. While remote learning remains the safest option, we recognize the decision to return to in-person learning is based on personal circumstances and what is happening in one’s community.
View our COVID-19 Q&A » ([link removed])

Positive Phase 3 Results of Trikafta Provide Further Evidence of Efficacy

Vertex released positive Phase 3 ([link removed]) results for Trikafta® for people with cystic fibrosis ages 12 and older who have one copy of the F508del mutation and one gating or residual function mutation. While people with these mutations are already approved for Trikafta in the U.S., the results provide further evidence of the efficacy of the triple-combination therapy for this group and could help inform decisions about whether to switch modulators.
Read the announcement » ([link removed])

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Five Financial Tips for the COVID-19 Era

COVID-19 has created emotional and financial uncertainty for many people living with cystic fibrosis and their families. Susanne’ Muenzel, LCSW, a pediatric CF social worker, shares her tips to help with some of those challenges, including how to stretch your stimulus and food budget to the max and how to make a financial plan.Read the blog » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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