David Elin – Cystic Fibrosis Foundation · [email protected]

July 15, 2021 at 4:08 PM

Add some advocacy to your summer ☀️

Join us for an advocacy update Advocate, It’s hard to believe July is almost over. But with the introduction of bipartisan legislation to promote the development of new antibiotics, there are lots of opportunities to continue our advocacy work thi…

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  Cystic Fibrosis Foundation · [email protected]

July 8, 2021 at 8:16 PM

Together: a Community Update

The latest information for July 8, 2021 Thursday, July 8, 2021 Meet the Newest Members of Our Board of Trustees Today, the Foundation announced changes on its Board of Trustees, including the election …

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  Cystic Fibrosis Foundation · [email protected]

June 24, 2021 at 8:21 PM

Together: a Community Update

The latest information for June 24, 2021 Thursday, June 24, 2021 CF Foundation 2020 Annual ReportWhile 2020 presented many challenges, we have a lot to celebrate. Working alongside the cystic fibrosis community, we were able to …

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  Cystic Fibrosis Foundation · [email protected]

June 10, 2021 at 8:25 PM

Together: a Community Update

The latest information for June 10, 2021 Thursday, June 10, 2021 Register for a Community WebinarWe are thrilled to announce that yesterday the FDA approved Trikafta® for children ages 6 – 11 with one F508del mutation and other …

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  Cystic Fibrosis Foundation · [email protected]

June 9, 2021 at 1:54 PM

Trikafta approved for children ages 6 to 11 with certain mutations

Plus, a webinar this Thursday for your top questions We are thrilled to share that the U.S. Food and Drug Administration has approved the use of Trikafta® (elexacaftor/tezacaftor/ivacaftor) for children with cystic fibrosis ages 6 to 11 who have at least one copy of the …

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  Cystic Fibrosis Foundation · [email protected]

June 5, 2021 at 1:49 PM

On 65 Roses Day we honor our community

Help us reach our goal Friend, Today is 65 Roses Day! Over six decades ago, a mother named Mary began volunteering for the Cystic Fibrosis Foundation when she learned that all three of her beloved sons, Richard, Arthur, and Anthony, had bee…

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  Cystic Fibrosis Foundation · [email protected]

June 3, 2021 at 8:22 PM

We can end CF

Make your monthly gift Dear Friend, It's said that experience comes with age. However, it might be easy to argue that at age 8, Evan has already had a lifetime of experiences. Despite being diagnosed with cystic fibrosis at birth, Evan doesn't let his…

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  Cystic Fibrosis Foundation · [email protected]

June 1, 2021 at 5:23 PM

Driven by a dream

A life free of cystic fibrosis Dear Friend, Although the Cystic Fibrosis Foundation has made extraordinary medical and scientific progress over the past several decades, many individuals with CF do not benefit from existing therapies. Our dream is tha…

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  Cystic Fibrosis Foundation · [email protected]

May 27, 2021 at 8:43 PM

Together: a Community Update

The latest information for May 27, 2021 Thursday, May 27, 2021 The Latest in CF ResearchToday, we announced three new research awards as part of our Path to a Cure initiative to accelerate the development of treatments for the underlying…

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  Cystic Fibrosis Foundation · [email protected]

May 13, 2021 at 8:30 PM

Together: a Community Update

The latest information for May 13, 2021 Thursday, May 13, 2021 FDA Authorizes Pfizer's COVID-19 Vaccine for Children 12 to 15On May 10 the FDA announced that the Pfizer-BioNTech COVID-19 vaccine is now authorized for use in ch…

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  Cystic Fibrosis Foundation · [email protected]

April 29, 2021 at 8:25 PM

Together: a Community Update

The latest information for April 29, 2021 Thursday, April 29, 2021 Celebrate CF Awareness MonthEach May, the cystic fibrosis community comes together for CF Awareness Month. Check out these resources for sharing your story and…

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  David Elin – Cystic Fibrosis Foundation · [email protected]

April 22, 2021 at 4:09 PM

Mark your calendar

Join us for a CF advocacy community update Dear Advocate, Join us Wednesday, April 28th at 1:00 PM ET for a CF advocacy community update! Register to hear the latest CF advocacy information including our current and ongoing policy priorities, an o…

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  Cystic Fibrosis Foundation · [email protected]

April 19, 2021 at 4:31 PM

You’re the spark ✨

Celebrate National Volunteer Week It’s National Volunteer Week! From advocating, researching, connecting, fundraising, and lending a helping hand — you inspire and motivate us. Your contributions are the spark that ignites change …

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  Cystic Fibrosis Foundation · [email protected]

April 15, 2021 at 8:23 PM

Together: a Community Update

The latest information for April 15, 2021 Thursday, April 15, 2021 Our Work on Diversity and InclusionRecently, as part of our effort to address health disparities in cystic fibrosis and build a more inclusive community, the CF Foundatio…

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  Cystic Fibrosis Foundation · [email protected]

April 6, 2021 at 4:14 PM

It’s not too late to register

ResearchCon is April 15 and 17 What is the latest research being done to understand genetic-based therapies? How is our understanding of mental and emotional health of people with CF from childhood to adolescence and adulthood changing? …

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  Cystic Fibrosis Foundation · [email protected]

April 1, 2021 at 8:26 PM

Together: a Community Update

The latest information for April 1, 2021 Thursday, April 1, 2021 William Skach, Chief Scientific Officer, to Retire From the CF FoundationWilliam Skach, MD, will retire from the CF Foundation this summer. Under his leadership…

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  Cystic Fibrosis Foundation · [email protected]

March 18, 2021 at 8:18 PM

Together: a Community Update

The latest information for March 18, 2021 Thursday, March 18, 2021 CF Foundation Extends Collaboration with BeamAs part of our ongoing commitment to supporting the health and well-being of adults living with cystic fibrosis, we have exte…

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  Cystic Fibrosis Foundation · [email protected]

March 16, 2021 at 4:22 PM

We saved you a seat

Register for ResearchCon today Mark your calendar for April 15 and 17 for ResearchCon! Join us for this free, online educational event for anyone 16 and older with a personal or professional connection to cystic fibrosis. You will have t…

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  Michael Boyle, MD – Cystic Fibrosis Foundation · [email protected]

March 12, 2021 at 4:22 PM

One Year COVID-19 Update

A message from Michael Boyle, MD Dear Friend, One year ago, we issued some of our first communications around the COVID-19 pandemic. Today, I wanted to share an update on we have learned since then, and why I am optimistic about the road ahead. I …

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  Cystic Fibrosis Foundation · [email protected]

February 18, 2021 at 9:29 PM

Together: a Community Update

The latest information for February 18, 2021 Thursday, February 18, 2021 The Latest in CF ResearchWe awarded up to $2.17 million to Beyond Air® to support the development of a portable inhaled nitric oxide treatment for nontuberculous m…

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  Cystic Fibrosis Foundation · [email protected]

February 11, 2021 at 5:13 PM

Sending YOU a virtual hug

By joining the 65 Roses® Club today This upcoming Valentine's Day, we are sending you a virtual hug to thank you for all you do to help people living with cystic fibrosis. Thank you for your monthly support of the CF Foundation.  …

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  David Elin – Cystic Fibrosis Foundation · [email protected]

February 10, 2021 at 5:08 PM

It’s time for bold action

Congress must pass COVID-19 relief Dear Advocate, The COVID-19 pandemic has disrupted all aspects of everyday life, from work to school, to visiting the doctor or seeing friends and family. For those living with cystic fibrosis, these challenges m…

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  Cystic Fibrosis Foundation · [email protected]

February 4, 2021 at 9:36 PM

Together: a Community Update

The latest information for February 4, 2021 Thursday, February 4, 2021 The Latest in CF ResearchVertex announced that the FDA accepted its application to expand Trikafta® to include children with cystic fibrosis ages 6 – 11 years old wh…

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  Cystic Fibrosis Foundation · [email protected]

January 27, 2021 at 11:27 PM

Upcoming virtual events

Don't miss your chance to register National Annual MeetingJoin us Thursday, January 28 at 8 p.m. ET for our first National Annual Meeting during which we will celebrate our volunteers, discuss progress in research and care, and share our vision for…

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  Cystic Fibrosis Foundation · [email protected]

January 21, 2021 at 10:31 PM

Together: a Community Update

The latest information for January 21, 2021 Thursday, January 21, 2021 The Latest on COVID-19 VaccinesIn a letter sent today to President Biden, the CF Foundation called on the new administration to address challenges with the current CO…

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  Cystic Fibrosis Foundation · [email protected]

January 19, 2021 at 11:27 PM

Join us!

National Annual Meeting on January 28 The journey to end cystic fibrosis isn't a straight line. It is an evolving map with many paths and despite the challenges of the last year, we continued to accelerate progress in research and care. Join us on…

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  Mary Dwight – Cystic Fibrosis Foundation · [email protected]

January 15, 2021 at 5:08 PM

New year, new opportunities for advocacy

Reflecting on the impact of the CF community Dear Advocate, In a year unmatched by any other, the cystic fibrosis community continued to demonstrate resilience and determination. Despite significant challenges, your voices played a unique and crit…

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  Cystic Fibrosis Foundation · [email protected]

January 12, 2021 at 9:27 PM

Save your seat: COVID-19 vaccines town hall

Join us January 14 Dear Friend, In December, the U.S. FDA approved emergency use authorization for the first vaccines for COVID-19 – marking an important milestone in the pandemic. This development also raises many questions for people with cy…

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  Cystic Fibrosis Foundation · [email protected]

January 7, 2021 at 9:36 PM

Together: a Community Update

The latest information for January 7, 2021 Thursday, January 7, 2021 Register for the COVID-19 Vaccines Community Town Hall While the U.S. FDA emergency use authorization of the COVID-19 vaccines marks an important milestone…

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  Cystic Fibrosis Foundation · [email protected]

December 31, 2020 at 9:32 PM

You still have time

Make your gift before midnight! Dear Friend, With your support, we are entering a new era in cystic fibrosis. Working alongside the CF community, we have effectively transformed a genetic disease in a single generation, and people with cystic fibrosis are livi…

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  Cystic Fibrosis Foundation · [email protected]

December 31, 2020 at 1:50 PM

There’s still time left

Make a difference today Dear Friend, Despite the challenges of this year, we have continued to accelerate progress toward our shared goal – a cure for everyone with cystic fibrosis. Since last year’s approval of Trikafta® and the launch of Path t…

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  Patrick Feeley, Chief Development Officer · [email protected]

December 30, 2020 at 5:31 PM

Your 2020 update

We're thankful for you Dear Friend, This holiday season, I want to take a moment to thank you, and celebrate the progress we have made this year toward a cure for cystic fibrosis. In 2020, the Foundation has 43 funded industry agreements and approved more tha…

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  Cystic Fibrosis Foundation · [email protected]

December 28, 2020 at 9:33 PM

Your support moves research forward

Give today Dear Friend, October 3, 2018 was the worst day of Noor Elshaar’s life. As a 28-year-old with cystic fibrosis, Noor’s lung function had dropped and she found herself in the hospital. For years, Noor’s health had been declining. While in the hospital, she remain…

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  Michael Boyle, MD, President & CEO · [email protected]

December 17, 2020 at 10:00 PM

A year in review

Thank you for all you did in 2020 Dear Friend, As we approach the end of what has been a truly remarkable year, full of highlights and unexpected challenges, I wanted to take a moment to share with you some of my reflections and say thank you. We began 2020 c…

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  Cystic Fibrosis Foundation · [email protected]

December 15, 2020 at 9:47 PM

We have to keep fighting

You help make milestones possible for people like Bradley Dear Friend, Temperatures climbed into the 90s and a thick layer of humidity made it feel closer to triple digits, but that would not stop Bradley Poole. At 5 a.m., he laced up his sneakers…

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  Cystic Fibrosis Foundation · [email protected]

December 10, 2020 at 9:36 PM

Together: a Community Update

The latest information for December 10, 2020 Thursday, December 10, 2020 First Global Study of COVID-19 in Children With Cystic Fibrosis Reports Reassuring Outcomes The Cystic Fibrosis Registry Global Harmonization Group, including the …

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  Cystic Fibrosis Foundation · [email protected]

December 9, 2020 at 9:45 PM

A CF research update

Explore our progress to fight infections, including new awards for COVID-19 As part of our comprehensive focus on fighting infections, the Cystic Fibrosis Foundation today announced more than $2.7 million to support 11 laboratory studies that will explore the underlying…

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  Cystic Fibrosis Foundation · [email protected]

December 1, 2020 at 7:04 PM

We're almost there

Time is running out Dear Friend,  It’s not too late to double your impact this Giving Tuesday to help cure CF. We’re so close to unlocking the $250,000 matching gift from the Stremick family. Friend, you can help us reach our goal. Your gift will go twice as f…

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  Cystic Fibrosis Foundation · [email protected]

December 1, 2020 at 2:17 PM

Your donation counts 2x as much

It’s Giving Tuesday Dear Friend,  This Giving Tuesday, the Stremick family is making your gift go further to help cure CF. In honor of their granddaughter, Ella, and everyone living with cystic fibrosis, they will match each gift, dollar-for-dolla…

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  Cystic Fibrosis Foundation · [email protected]

November 30, 2020 at 4:57 PM

Double your impact on Giving Tuesday

Make an early gift Dear Friend,  Your gift will go twice as far on Giving Tuesday to help cure CF. Thanks to the generosity of the Stremick family, whose 15-year-old granddaughter, Ella, has cystic fibrosis, your gift will be matched, dollar-for-d…

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  Cystic Fibrosis Foundation · [email protected]

November 23, 2020 at 4:27 PM

Watch now: NACFC 2020 livestream archives

Explore workshops, symposium, and more The 2020 North American Cystic Fibrosis Conference livestream archives are now available. Explore our YouTube page to watch plenaries, discipline groups, workshops, and symposium sessions on topics ranging fro…

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  Cystic Fibrosis Foundation · [email protected]

November 19, 2020 at 9:30 PM

Together: a Community Update

The latest information for November 19, 2020 Thursday, November 19, 2020 Global Study on COVID-19 in People with CF Publishes Updated Outcomes Updated outcomes from 181 people with cystic fibrosis from 19 countries diagnosed w…

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  Cystic Fibrosis Foundation · [email protected]

November 17, 2020 at 8:58 PM

It’s almost time for a magical night!

The National Breath of Life Celebration is Thursday It’s not too late to register for our national Breath of Life Celebration, Together: Curing CF, November 19 at 8 p.m. EST. This special evening will be a moment to unite and raise funds that wil…

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  Cystic Fibrosis Foundation · [email protected]

November 5, 2020 at 9:32 PM

Together: a Community Update

The latest information for November 5, 2020 Thursday, November 5, 2020 CF Foundation Awards Up to $2.4M for a New Approach to Reduce Infections The Foundation granted Calithera Biosciences Inc. up to $2.4 million to advance a potential t…

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  Cystic Fibrosis Foundation · [email protected]

November 2, 2020 at 1:45 PM

A message from our CEO

Dear Friend, More than 20 years ago, the Cystic Fibrosis Foundation took the pioneering step of providing research funding to Aurora Biosciences (now Vertex Pharmaceuticals, Inc.) to identify and develop the first treatments for the underlying cause of CF. Driven by the…

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  Matt Rogers on behalf of the CF Foundation · [email protected]

October 29, 2020 at 9:04 PM

I can't wait to celebrate with you!

Breath of Life Celebration, Together: Curing CF Hi friend, My name is Matt Rogers and I am thrilled that I will be the emcee for the Cystic Fibrosis Foundation’s first national Breath of Life Celebration, Together: Curing CF on Thursday, November 19 at 8 p.m. EST. …

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  Cystic Fibrosis Foundation · [email protected]

October 27, 2020 at 10:32 PM

Top takeaways from NACFC

Catch up on the highlights now That’s a wrap on this year’s North American Cystic Fibrosis Conference! More than 5,000 researchers, clinicians, and community members joined us online for important discussions on the latest in cystic fibrosis resear…

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  Cystic Fibrosis Foundation · [email protected]

October 22, 2020 at 8:31 PM

Together: a Community Update

The latest information for October 22, 2020 Thursday, October 22, 2020 CF Foundation Commits up to $14M to Expand Agreement with Synspira Therapeutics This week, the Foundation announced it’s expanding its research collaboration with Syn…

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  Cystic Fibrosis Foundation · [email protected]

October 20, 2020 at 8:26 PM

We're getting ready to go live

NACFC starts tomorrow Dear Friend, The live NACFC virtual experience begins tomorrow! Join us online starting at 10 a.m. ET to hear about the latest advances in cystic fibrosis research, care, and drug development. Over the next three days, you can…

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  David Elin – Cystic Fibrosis Foundation · [email protected]

October 15, 2020 at 4:16 PM

Election Day is just weeks away

Are you ready? Dear Advocate,  We are less than three weeks away from Election Day on November 3 but early voting and vote by mail has already begun in many states. As you prepare to make your voice heard, please remember to make a p…

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