Updated guidance on COVID-19 for the CF community






Cystic Fibrosis Foundation

4550 Montgomery Avenue, Suite 1100N
Bethesda, MD | 20814 US

www.cff.org ([link removed])

Dear Friend,

With the rapid, global spread of the novel coronavirus and COVID-19 infection, it is clear that these are unprecedented times.

The CF Foundation cares deeply for the health and well-being of the CF community. While local authorities are enacting different measures in communities across the country, we are providing the following strengthened guidance to CF care teams and the CF community:

We strongly recommend that students with CF stay home from school. Distance learning or other remote options should be considered in all cases.

Adults with CF should work remotely whenever possible.

Routine well-visits should be conducted by telehealth approaches or postponed whenever possible. Care teams have been asked to think creatively, such as phone check-ins, to avoid unnecessary risk of exposure and pressure on their staff and healthcare institutions.

If you are participating in clinical research, please communicate with the research team about changes in your clinic visits.

The CF Foundation has provided care teams with template letters to support distance learning or remote work. These letters are also available through COMPASS ([link removed]) (844-COMPASS). We encourage you to reach out to your care team for their assistance with these requests and any other specific health needs you have.

Based on the latest CDC guidance ([link removed]), the CF Foundation has extended its suspension on all in-person events from March 16 through May 10. Additionally, after careful consideration of the latest information, we have made the decision to transition all of our chapter offices, as well as the Bethesda office and warehouse, to remote work, effective Monday, March 16. CF Foundation staff are available should you have any questions.

Our thoughts are with you, and our commitment to our mission is unwavering. We will continue to provide the latest guidance through our FAQ on cff.org ([link removed]).

Until it’s done,

Michael Boyle, MD
President and CEO




4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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