Plus a COVID-19 FAQ, VLC archives, and more


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Community Questions about COVID-19

Do you have questions about COVID-19 and cystic fibrosis? We are regularly updating an on-site FAQ ([link removed]) to share the latest recommendations by the Foundation and the CDC.

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Register for ResearchCon

Join us on Thursday, April 16 for ResearchCon ([link removed]), a free, online event open to anyone 16 and older with a personal or professional connection to CF. We will provide an update on COVID-19 and the CF community. Additional topics will include the latest research in CFTR science, genetic-based therapies, how to reduce treatment burden, and more. There will also be a chance to ask your CF research related questions directly to the experts.

Register today » ([link removed])

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Watch the Virtual VLC Archives

Catch up on the livestreamed sessions from this year’s virtual Volunteer Leadership Conference ([link removed])! Archives include a research and medical update, the story of your “CF Squad,” and a recognition of the 2020 Leadership Council. To watch, simply register or log into the VLC livestream site.

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Cystic Fibrosis Foundation

4550 Montgomery Ave, Suite 1100N

Bethesda, Maryland 20814

www.cff.org ([link removed])

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Stepping Back as My Daughter Steps Forward

As her daughter Gracie begins to navigate the world as a teenager, Lora Bonham has had to let go of some of her fears and focus on celebrating all the ways Gracie is growing into an independent adult.

Read their story » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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