The latest information for April 16, 2020


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Thursday, April 16, 2020

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

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Tell Lawmakers: Don’t Disqualify People with CF

Many states and health systems are creating guidelines for frontline healthcare workers as they prioritize lifesaving services and equipment during the COVID-19 pandemic. Alarmingly, several states have created regional triage plans ([link removed]) that reflect an outdated understanding of cystic fibrosis and run the risk of denying care. We are taking steps to educate policymakers and clinicians. Join us in telling lawmakers: any policy that unfairly disadvantages people with cystic fibrosis is unacceptable.
Take action » ([link removed])

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Facing the Monster: My COVID-19 Experience

For Robyn Petras, an adult with cystic fibrosis, finding out she had COVID-19 was frightening. Robin was able to get through the illness with the resilience she learned from her brother and from a lifetime of managing CF. Learn about her journey ([link removed]) surviving COVID-19 while living with cystic fibrosis.
Read the blog » ([link removed])

Upcoming Virtual Events

Thurs., April 16, 6:30 pm ET – ResearchCon
• Connect with CF experts and community members to discuss the latest research in CFTR science and genetic-based therapies and hear an update on COVID-19 and the CF community from Foundation President and CEO, Dr. Mike Boyle.
Register now » ([link removed])

Weds., April 22, 7:00 pm ET – Gratitude Hour • Join the CF community as we come together to share the thanks during National Volunteer Week. Hear from adults with cystic fibrosis, family members and care team members on what they're thankful for, and share your gratitude with all that are helping make CF stand for cure found.
Register now » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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