The latest information for May 7, 2020


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Thursday, May 7, 2020

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

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"In a Minute" with Paula Lomas, M.A.S., RN, CCRP

How can you prepare for your next telehealth appointment? Paula Lomas, M.A.S., RN, CCRP, senior director of clinical communications at the Foundation, shares her advice for making sure your virtual appointment runs smoothly.
Watch the video » ([link removed])

Workplace Accommodations for the CF Community

Due to the COVID-19 outbreak, millions of Americans, including those living with cystic fibrosis and their families, are facing tough decisions around employment. The issue of paid leave and its eligibility are emerging as a top concern for people with CF and working members of their family. Learn more about the different workplace accommodations ([link removed]) that may be available during this time.
Get more information » ([link removed])

Addressing Questions During COVID-19

CF Foundation President and CEO Dr. Michael Boyle and Senior Compass Case Manager Karen Carey recently spoke with CF Community member Marissa Benchea about some of your top questions related to the COVID-19 pandemic ([link removed]). Watch their discussion to learn more about the latest medical information, the insurance landscape, work and financial challenges for people with CF, and more.
See the Q&A » ([link removed])

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Share the Moments that Make You Proud

During Cystic Fibrosis Awareness Month, we’re celebrating you! Help us show what you’re proud of by sharing your videos with us ([link removed]) — whether that’s earning a degree, growing your family, or running a mile. We’ll compile your videos into a highlight that recognizes the accomplishments and milestones of the CF community. To submit your video ([link removed]): 
• Download Cinebody ([link removed]) or enter the code cf65 if you already have the app.
• Login using Facebook or create an account with your email address.
• Record your videos straight from your phone, or upload from your camera roll.
Share your video » ([link removed])

Upcoming Virtual Events

Weds., May 20, 7 p.m. ET – Navigating Uncertainty
Mental health professionals will discuss tools for navigating uncertainty, managing dilemmas, and "living in the gray" as we move forward together.
Register now » ([link removed])

Fri., June 5, 5 p.m. ET – Together: Celebrating 65 Years Join us for a celebration of all we have accomplished together in the past 65 years! This online event will feature voices from the CF community and opportunities to connect with other attendees as we move forward on the path to cure cystic fibrosis.
Register now » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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