The latest information for April 9, 2020


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Thursday, April 9, 2020

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

In a Minute with Dr. Mike Boyle

"In a Minute" is a video series in which cystic fibrosis experts answer—in one minute—COVID-19 related questions important to the CF community. This week, CF Foundation President and CEO Mike Boyle, MD, provides an update about how people with CF and COVID-19 have been doing
Watch on Youtube » ([link removed])

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Tell Congress: Improve Family and Medical Leave

Millions of Americans are facing hard decisions about going to work or putting their loved ones’ health at risk. Current family and medical leave policies do not go far enough to protect those most vulnerable during the pandemic. This is why the Foundation sent a letter to Congressional leaders ([link removed]), signed by more than 150 patient and consumer groups, asking for expanded paid family and medical leave for people with chronic conditions, like CF.

Send a message to your members of Congress ([link removed]) today urging them to expand eligibility for paid family and medical leave to include people with CF and working members of their households.
Act now » ([link removed])

Join Us for Two Upcoming Virtual Events

Thurs., April 9, 7:00 pm ET – Emotional Wellness & COVID-19 • Mental health professionals will discuss active approaches to maintaining your well-being and resources for anyone coping with stress and anxiety.
Register now » ([link removed])

Thurs., April 16, 6:30 pm ET – ResearchCon
• Connect with CF experts and community members to discuss the latest research in CFTR science and genetic-based therapies and hear an update on COVID-19 and the CF community from Foundation President and CEO, Dr. Mike Boyle.
Register now » ([link removed])

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See How Compass Can Help

CF Foundation Compass ([link removed]) is here to help you navigate the uncertainty that COVID-19 has created. Your personal case manager can look into medication quantity limit overrides to decrease pharmacy trips, research new insurance options after a job loss, or help you identify local and national programs that provide assistance during this difficult time. Call 844-COMPASS to get started.
Connect with Compass » ([link removed])

CDC Recommends Cloth Face Coverings

The Centers for Disease Control and Prevention (CDC) recommends that the general public wear cloth face coverings ([link removed]) in public areas in which physical distancing is difficult, such as at the grocery store or the pharmacy. This is especially important in areas that have been highly affected by COVID-19. Some people may spread the coronavirus when they have no symptoms or before they develop significant symptoms, putting others around them at risk. It is important to remember that wearing a mask is mainly to prevent the wearer from infecting others.
Learn more » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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