The latest information for April 2, 2020


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Thursday, April 2, 2020

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

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Social Distancing – Not a New Reality for Our Community

While millions of Americans try to make sense of social distancing as a new reality, the CF community has already proven that if the right measures are taken, you can successfully protect your health. People living with CF have taught us valuable lessons in how to build and sustain community despite physical distance. For those who are struggling with current distancing recommendations, our president and CEO, Mike Boyle shared three things people can learn from the CF community’s experience in an op-ed piece, published in Medium. ([link removed])
Read the op-ed » ([link removed])

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Our Advocacy Work During COVID-19

For many, COVID-19 is magnifying the existing financial and logistic burdens associated with CF care. The Foundation and CF community advocates are engaging with state and federal policymakers and insurers ([link removed]) to ensure that the needs of people with CF are considered as steps are taken to manage and mitigate the effects of the pandemic.

Some of our top priorities include strong public health measures to slow the spread of COVID-19, expanding telehealth services to help sustain regular CF care, and educating insurers on the specific needs of our community during this time.
Learn about our work » ([link removed])

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Managing the Increased Stress of Caregiving

Caring for someone with a chronic illness can be stressful in the best of times. If you’re struggling with anxiety or depression as a caregiver to someone living with cystic fibrosis, you are not alone and there are resources to help. Discover tips from others in the community ([link removed]) on how to cope, establish new routines, set aside time for self-care, and more.
Get more resources» ([link removed])

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Get Answers to Your COVID-19 Questions

We are continuously updating the Community Questions FAQ page ([link removed]) on cff.org to reflect the latest recommendations from the Foundation and the CDC. Please visit and check back regularly for up-to-date information.
See the latest » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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