From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date June 11, 2020 8:42 PM
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The latest information for June 11, 2020


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Thursday, June 11, 2020

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

Up to $5.6M Awarded to Develop Novel Antibiotic

As part of our Infection Research Initiative, the Foundation awarded up to $5.6 million to Microbion Corp. ([link removed]) to develop an inhaled antibiotic that could help break down biofilms and kill drug-resistant bacteria in people with cystic fibrosis. A biofilm is a community of bacteria that encloses itself in a protective layer, often enabling it to both evade the immune system and to become more resistant to antibiotics.
Read more » ([link removed])

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NACFC Will Be Virtual in 2020

NACFC is a critical opportunity for cystic fibrosis clinicians and scientists to come together, collaborate, and share important findings that will drive continued progress in the fight against CF. With the safety of our community as a top priority, we have made the decision to offer NACFC as a virtual meeting this year. ([link removed])

We will be working with the NACFC Program Planning Committee to design the event and reimagine the experience over the coming months and will provide additional information in August when registration opens.
Learn more » ([link removed])

Upcoming Virtual Event

Mark your calendars for CF FamilyCon ([link removed]) on June 18 and 20! Adults with cystic fibrosis and their loved ones ages 16 and older are invited to this free, two-day, online event. Learn from others, connect virtually, and share stories unique to life with CF during keynotes, panels, group chats, fun activities, story hour, and small-group video breakouts. 
Register today » ([link removed])

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CF Foundation Hosts Policy Briefing on Paid Leave 

Last month, the Foundation hosted a virtual briefing about the importance of expanded paid family and medical leave. ([link removed]) Panelists included Katie Fielding, an adult living with CF, who shared her personal story as well as others from the CF community about having to choose between health and a paycheck.
"Being in the best health of my life and having to be concerned about how my disability effects my employment isn’t something I should have to be concerned with during a global pandemic," Katie said. Watch the recording » ([link removed])

Together: Celebrating 65 Years

The recording from last week’s virtual event, Together: Celebrating 65 Years ([link removed]), is now available. Hear from members of the cystic fibrosis community as we celebrate all we have achieved together over the last 65 years, and unite in our focus to achieve our mission.
Watch the recording » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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