The latest information for April 30, 2020


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Thursday, April 30, 2020

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

Study on COVID-19 in People With CF Published

A study published in the Journal of Cystic Fibrosis ([link removed]) reports on 40 people with CF across eight countries and represents how COVID-19 impacts this high-risk population. It suggests that people with CF may have a lower rate of of COVID-19 than the general public. This may be because of the CF community's experience with physical distancing and other infection control measures.
Read more about the study » ([link removed])

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"In a Minute" with Joe Pilewski, MD

What’s happening with lung transplant and COVID-19? Joe Pilewski, MD, co-director of the adult CF center at the University of Pittsburgh Medical Center and chair of the Foundation’s Lung Transplant Consortium, provides an update on how transplant programs are affected during the pandemic.
Watch the video » ([link removed])

Virtual Event to Answer Your COVID-19 Questions

Hear the CF community’s top COVID-19 questions answered at our next virtual event on Wed., May 6 at 7 p.m. ET ([link removed]). Marissa Benchea, an adult with CF, will facilitate a discussion with our President and CEO, Mike Boyle, MD, and senior Compass case manager, Karen Carey about medical information, insurance, work, and financial challenges for people with CF and their families. Register and submit your question for a chance to have it answered during the event!
Register today » ([link removed])

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Learn About Our Policy Work During COVID-19

The Foundation continues to engage in policy efforts to protect patient safety and access to care for people with CF during the COVID-19 pandemic. Join us on Thurs., May 7 at 1:00 p.m. ET for a webinar ([link removed]) where you can learn more about our policy work and how you can make your voice heard for the CF community.
Sign up for the webinar » ([link removed])

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Tips for Surviving Home Isolation From a Person With CF

Spending time at home isn’t new for Marieliz Landa, an adult living with cystic fibrosis. From catching up on reading to having movie nights with her husband, learn how she keeps busy and stays positive while physically distancing at home.
Read the blog » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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