Cystic Fibrosis Foundation · [email protected]

February 18, 2021 at 9:29 PM

Together: a Community Update

The latest information for February 18, 2021 Thursday, February 18, 2021 The Latest in CF ResearchWe awarded up to $2.17 million to Beyond Air® to support the development of a portable inhaled nitric oxide treatment for nontuberculous m…

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  Cystic Fibrosis Foundation · [email protected]

February 11, 2021 at 5:13 PM

Sending YOU a virtual hug

By joining the 65 Roses® Club today This upcoming Valentine's Day, we are sending you a virtual hug to thank you for all you do to help people living with cystic fibrosis. Thank you for your monthly support of the CF Foundation.  …

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  David Elin – Cystic Fibrosis Foundation · [email protected]

February 10, 2021 at 5:08 PM

It’s time for bold action

Congress must pass COVID-19 relief Dear Advocate, The COVID-19 pandemic has disrupted all aspects of everyday life, from work to school, to visiting the doctor or seeing friends and family. For those living with cystic fibrosis, these challenges m…

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  Cystic Fibrosis Foundation · [email protected]

February 4, 2021 at 9:36 PM

Together: a Community Update

The latest information for February 4, 2021 Thursday, February 4, 2021 The Latest in CF ResearchVertex announced that the FDA accepted its application to expand Trikafta® to include children with cystic fibrosis ages 6 – 11 years old wh…

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  Cystic Fibrosis Foundation · [email protected]

January 27, 2021 at 11:27 PM

Upcoming virtual events

Don't miss your chance to register National Annual MeetingJoin us Thursday, January 28 at 8 p.m. ET for our first National Annual Meeting during which we will celebrate our volunteers, discuss progress in research and care, and share our vision for…

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  Cystic Fibrosis Foundation · [email protected]

January 21, 2021 at 10:31 PM

Together: a Community Update

The latest information for January 21, 2021 Thursday, January 21, 2021 The Latest on COVID-19 VaccinesIn a letter sent today to President Biden, the CF Foundation called on the new administration to address challenges with the current CO…

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  Cystic Fibrosis Foundation · [email protected]

January 19, 2021 at 11:27 PM

Join us!

National Annual Meeting on January 28 The journey to end cystic fibrosis isn't a straight line. It is an evolving map with many paths and despite the challenges of the last year, we continued to accelerate progress in research and care. Join us on…

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  Mary Dwight – Cystic Fibrosis Foundation · [email protected]

January 15, 2021 at 5:08 PM

New year, new opportunities for advocacy

Reflecting on the impact of the CF community Dear Advocate, In a year unmatched by any other, the cystic fibrosis community continued to demonstrate resilience and determination. Despite significant challenges, your voices played a unique and crit…

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  Cystic Fibrosis Foundation · [email protected]

January 12, 2021 at 9:27 PM

Save your seat: COVID-19 vaccines town hall

Join us January 14 Dear Friend, In December, the U.S. FDA approved emergency use authorization for the first vaccines for COVID-19 – marking an important milestone in the pandemic. This development also raises many questions for people with cy…

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  Cystic Fibrosis Foundation · [email protected]

January 7, 2021 at 9:36 PM

Together: a Community Update

The latest information for January 7, 2021 Thursday, January 7, 2021 Register for the COVID-19 Vaccines Community Town Hall While the U.S. FDA emergency use authorization of the COVID-19 vaccines marks an important milestone…

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  Cystic Fibrosis Foundation · [email protected]

December 31, 2020 at 9:32 PM

You still have time

Make your gift before midnight! Dear Friend, With your support, we are entering a new era in cystic fibrosis. Working alongside the CF community, we have effectively transformed a genetic disease in a single generation, and people with cystic fibrosis are livi…

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  Cystic Fibrosis Foundation · [email protected]

December 31, 2020 at 1:50 PM

There’s still time left

Make a difference today Dear Friend, Despite the challenges of this year, we have continued to accelerate progress toward our shared goal – a cure for everyone with cystic fibrosis. Since last year’s approval of Trikafta® and the launch of Path t…

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  Patrick Feeley, Chief Development Officer · [email protected]

December 30, 2020 at 5:31 PM

Your 2020 update

We're thankful for you Dear Friend, This holiday season, I want to take a moment to thank you, and celebrate the progress we have made this year toward a cure for cystic fibrosis. In 2020, the Foundation has 43 funded industry agreements and approved more tha…

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  Cystic Fibrosis Foundation · [email protected]

December 28, 2020 at 9:33 PM

Your support moves research forward

Give today Dear Friend, October 3, 2018 was the worst day of Noor Elshaar’s life. As a 28-year-old with cystic fibrosis, Noor’s lung function had dropped and she found herself in the hospital. For years, Noor’s health had been declining. While in the hospital, she remain…

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  Michael Boyle, MD, President & CEO · [email protected]

December 17, 2020 at 10:00 PM

A year in review

Thank you for all you did in 2020 Dear Friend, As we approach the end of what has been a truly remarkable year, full of highlights and unexpected challenges, I wanted to take a moment to share with you some of my reflections and say thank you. We began 2020 c…

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  Cystic Fibrosis Foundation · [email protected]

December 15, 2020 at 9:47 PM

We have to keep fighting

You help make milestones possible for people like Bradley Dear Friend, Temperatures climbed into the 90s and a thick layer of humidity made it feel closer to triple digits, but that would not stop Bradley Poole. At 5 a.m., he laced up his sneakers…

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  Cystic Fibrosis Foundation · [email protected]

December 10, 2020 at 9:36 PM

Together: a Community Update

The latest information for December 10, 2020 Thursday, December 10, 2020 First Global Study of COVID-19 in Children With Cystic Fibrosis Reports Reassuring Outcomes The Cystic Fibrosis Registry Global Harmonization Group, including the …

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  Cystic Fibrosis Foundation · [email protected]

December 9, 2020 at 9:45 PM

A CF research update

Explore our progress to fight infections, including new awards for COVID-19 As part of our comprehensive focus on fighting infections, the Cystic Fibrosis Foundation today announced more than $2.7 million to support 11 laboratory studies that will explore the underlying…

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  Cystic Fibrosis Foundation · [email protected]

December 1, 2020 at 7:04 PM

We're almost there

Time is running out Dear Friend,  It’s not too late to double your impact this Giving Tuesday to help cure CF. We’re so close to unlocking the $250,000 matching gift from the Stremick family. Friend, you can help us reach our goal. Your gift will go twice as f…

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  Cystic Fibrosis Foundation · [email protected]

December 1, 2020 at 2:17 PM

Your donation counts 2x as much

It’s Giving Tuesday Dear Friend,  This Giving Tuesday, the Stremick family is making your gift go further to help cure CF. In honor of their granddaughter, Ella, and everyone living with cystic fibrosis, they will match each gift, dollar-for-dolla…

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  Cystic Fibrosis Foundation · [email protected]

November 30, 2020 at 4:57 PM

Double your impact on Giving Tuesday

Make an early gift Dear Friend,  Your gift will go twice as far on Giving Tuesday to help cure CF. Thanks to the generosity of the Stremick family, whose 15-year-old granddaughter, Ella, has cystic fibrosis, your gift will be matched, dollar-for-d…

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  Cystic Fibrosis Foundation · [email protected]

November 23, 2020 at 4:27 PM

Watch now: NACFC 2020 livestream archives

Explore workshops, symposium, and more The 2020 North American Cystic Fibrosis Conference livestream archives are now available. Explore our YouTube page to watch plenaries, discipline groups, workshops, and symposium sessions on topics ranging fro…

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  Cystic Fibrosis Foundation · [email protected]

November 19, 2020 at 9:30 PM

Together: a Community Update

The latest information for November 19, 2020 Thursday, November 19, 2020 Global Study on COVID-19 in People with CF Publishes Updated Outcomes Updated outcomes from 181 people with cystic fibrosis from 19 countries diagnosed w…

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  Cystic Fibrosis Foundation · [email protected]

November 17, 2020 at 8:58 PM

It’s almost time for a magical night!

The National Breath of Life Celebration is Thursday It’s not too late to register for our national Breath of Life Celebration, Together: Curing CF, November 19 at 8 p.m. EST. This special evening will be a moment to unite and raise funds that wil…

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  Cystic Fibrosis Foundation · [email protected]

November 5, 2020 at 9:32 PM

Together: a Community Update

The latest information for November 5, 2020 Thursday, November 5, 2020 CF Foundation Awards Up to $2.4M for a New Approach to Reduce Infections The Foundation granted Calithera Biosciences Inc. up to $2.4 million to advance a potential t…

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  Cystic Fibrosis Foundation · [email protected]

November 2, 2020 at 1:45 PM

A message from our CEO

Dear Friend, More than 20 years ago, the Cystic Fibrosis Foundation took the pioneering step of providing research funding to Aurora Biosciences (now Vertex Pharmaceuticals, Inc.) to identify and develop the first treatments for the underlying cause of CF. Driven by the…

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  Matt Rogers on behalf of the CF Foundation · [email protected]

October 29, 2020 at 9:04 PM

I can't wait to celebrate with you!

Breath of Life Celebration, Together: Curing CF Hi friend, My name is Matt Rogers and I am thrilled that I will be the emcee for the Cystic Fibrosis Foundation’s first national Breath of Life Celebration, Together: Curing CF on Thursday, November 19 at 8 p.m. EST. …

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  Cystic Fibrosis Foundation · [email protected]

October 27, 2020 at 10:32 PM

Top takeaways from NACFC

Catch up on the highlights now That’s a wrap on this year’s North American Cystic Fibrosis Conference! More than 5,000 researchers, clinicians, and community members joined us online for important discussions on the latest in cystic fibrosis resear…

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  Cystic Fibrosis Foundation · [email protected]

October 22, 2020 at 8:31 PM

Together: a Community Update

The latest information for October 22, 2020 Thursday, October 22, 2020 CF Foundation Commits up to $14M to Expand Agreement with Synspira Therapeutics This week, the Foundation announced it’s expanding its research collaboration with Syn…

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  Cystic Fibrosis Foundation · [email protected]

October 20, 2020 at 8:26 PM

We're getting ready to go live

NACFC starts tomorrow Dear Friend, The live NACFC virtual experience begins tomorrow! Join us online starting at 10 a.m. ET to hear about the latest advances in cystic fibrosis research, care, and drug development. Over the next three days, you can…

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  David Elin – Cystic Fibrosis Foundation · [email protected]

October 15, 2020 at 4:16 PM

Election Day is just weeks away

Are you ready? Dear Advocate,  We are less than three weeks away from Election Day on November 3 but early voting and vote by mail has already begun in many states. As you prepare to make your voice heard, please remember to make a p…

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  Cystic Fibrosis Foundation · [email protected]

October 12, 2020 at 9:20 PM

You are invited

✉️ Join us November 19 for our Breath of Life Celebration We dream of the day when there is a cure for all people living with cystic fibrosis. When the CF community unites, anything is possible.  You are invited to our Breath of Life Celebration…

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  Cystic Fibrosis Foundation · [email protected]

October 8, 2020 at 8:35 PM

Together: a Community Update

The latest information for October 8, 2020 Thursday, October 8, 2020 Take our CF Care Survey How has your experience receiving cystic fibrosis care changed during the COVID-19 pandemic? If you’re an adult living with CF or a caregiver…

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  Cystic Fibrosis Foundation · [email protected]

October 7, 2020 at 3:53 PM

The NACFC virtual experience starts now

Hear the latest in CF research, care, and therapy development Dear Friend, The North American Cystic Fibrosis Conference virtual experience starts now! There’s still time to register for the full event for $125 to access all live and on-demand sess…

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  Cystic Fibrosis Foundation · [email protected]

October 2, 2020 at 12:28 PM

Today we ROSE UP together!

How will you ROSE UP? Today, CF community members from all 50 states are coming together to ROSE UP! Join us for a special day of fundraising and story sharing on social media. It's not too late to ROSE UP! REGISTER to join the movementNo…

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  Cystic Fibrosis Foundation · [email protected]

September 29, 2020 at 10:26 PM

We want to celebrate you

Join Together: Now on October 6 at 7 p.m. ET It’s not too late to register for Together: Now, a virtual event on October 6 at 7 p.m. ET, highlighting people with cystic fibrosis and their loved ones from across the country who have tackled the 65…

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  Cystic Fibrosis Foundation · [email protected]

September 24, 2020 at 8:28 PM

Together: a Community Update

The latest information for September 24, 2020 Thursday, September 24, 2020 Register for Together: Now  Join us October 6 for Together: Now, a virtual event celebrating the many contributions of the cystic fibrosis community to the 65 Ros…

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  Mary Dwight – Cystic Fibrosis Foundation · [email protected]

September 22, 2020 at 4:31 PM

Vote Safely in 2020

Resources to help you cast your ballot Dear Advocate, Exercising your right to vote is an important way to advocate for people with cystic fibrosis. While participating in the 2020 General Election may look different this year due to…

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  Cystic Fibrosis Foundation · [email protected]

September 21, 2020 at 8:30 PM

Join us on October 6

Together: Now brings together the CF community We’re proud to have some of the Foundation’s all-star teamMATEs join us October 6 for Together: Now. Members of the cystic fibrosis community and longtime supporters will share their inspiring stories an…

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  Cystic Fibrosis Foundation · [email protected]

September 17, 2020 at 4:27 PM

How will you ROSE UP? 🌹

Join us ROSE UP is a new virtual fundraising event created and led by adults with cystic fibrosis to bring the CF community together to ROSE UP for a cure. What’s unique about this event is that you can get creative to ROSE UP. Our goal …

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  Cystic Fibrosis Foundation · [email protected]

September 10, 2020 at 8:25 PM

Together: a Community Update

The latest information for September 10, 2020 Thursday, September 10, 2020 Vertex Announces Positive Study Results for Trikafta in Children Ages 6 to 11 Vertex announced positive Phase 3 clinical trial data for Trikafta in children ages 6 …

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  Cystic Fibrosis Foundation · [email protected]

September 9, 2020 at 8:25 PM

Registration Now Open

Join Us for Together: Now Together, we rise to the challenge.Together, we celebrate every win.We are Together: Now. There is no community quite like the CF community. Together, we have helped achieve incredible victories in the fight…

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  Cystic Fibrosis Foundation · [email protected]

August 27, 2020 at 8:31 PM

Together: a Community Update

The latest information for August 27, 2020 Thursday, August 27, 2020 Registration is Open for NACFCRegister for NACFC to hear the latest advances in cystic fibrosis research, care, and drug development. Choose from the complimentary track,…

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  Cystic Fibrosis Foundation · [email protected]

August 13, 2020 at 8:35 PM

Together: a Community Update

The latest information for August 13, 2020 Thursday, August 13, 2020 Register for our Infection Research WebinarJoin us for a CF research webinar on Tuesday, August 25 at 6 p.m. ET to learn about current and upcoming research to address ke…

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  Cystic Fibrosis Foundation · [email protected]

August 11, 2020 at 2:37 PM

Watch: The latest in CF research

Introducing four new clinical research videos New Developments in Clinical Research The journey to end cystic fibrosis isn’t a straight line. It’s an evolving map with many paths and unique challenges. It requires an ambitious research agenda to a…

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  Cystic Fibrosis Foundation · [email protected]

August 4, 2020 at 8:32 PM

Come together for the 65 Roses Challenge

And help make CF stand for Cure Found. You are invited to be part of the 65 Roses Challenge, a fundraising effort that will help the Cystic Fibrosis Foundation get one step closer to finding a cure for cystic fibrosis, while staying the course dur…

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  Cystic Fibrosis Foundation · [email protected]

July 23, 2020 at 8:35 PM

Together: a Community Update

The latest information for July 23, 2020 Thursday, July 23, 2020 Virtual Event on School ReopeningAs schools start to reopen across the country, how can parents, students, and households living with cystic fibrosis make the best decisions …

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  David Elin - Cystic Fibrosis Foundation · [email protected]

July 20, 2020 at 4:09 PM

We are stronger than ever with you as an advocate!

Join us for a policy update Dear Advocate, We are midway through 2020, and despite challenges faced by our nation, the cystic fibrosis community is stronger than ever. Join us Wednesday, July 22 at 1:00 PM ET for an update webinar. We will provide…

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  Cystic Fibrosis Foundation · [email protected]

July 9, 2020 at 8:48 PM

Together: a Community Update

The latest information for July 9, 2020 Thursday, July 9, 2020 COVID-19 Q&A Updated to Address ReopeningOur COVID-19 community Q&A has been updated. The update focuses on reopening and includes new and revised questions regarding a…

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  Cystic Fibrosis Foundation · [email protected]

June 25, 2020 at 8:38 PM

Together: a Community Update

The latest information for June 25, 2020 Thursday, June 25, 2020 Up to $14M Awarded in Effort to Solve Key Challenges to Gene Delivery in Cystic FibrosisThe Foundation remains committed to drawing the best scientific minds and technology i…

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