From Cystic Fibrosis Foundation <[email protected]>
Subject Top takeaways from NACFC
Date October 27, 2020 10:32 PM
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Catch up on the highlights now






Cystic Fibrosis Foundation

4550 Montgomery Avenue, Suite 1100N
Bethesda, MD | 20814 US

www.cff.org ([link removed])

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That’s a wrap on this year’s North American Cystic Fibrosis Conference! More than 5,000 researchers, clinicians, and community members joined us online for important discussions on the latest in cystic fibrosis research, care, and drug development.

Three adults living with CF share their top learnings from this year’s plenary sessions.

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Plenary 1: Laying the Foundation for the Path to a Cure: The Fundamentals of Genetic-Based Therapies

For Preston Hinkle, genetic-based therapies for CF seemed like a theoretical idea. Following plenary one of NACFC ([link removed]), he shares his four takeaways to help tackle a genetic-based therapy for CF and move forward on our path to a cure.

Read Preston ([link removed])

Watch Plenary 1 on Facebook Live » ([link removed])

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Plenary 2: Defining the New CF in the Era of Highly Effective Modulators

A year ago, the CF community celebrated the approval of Trikafta, a highly effective CFTR modulator for individuals with at least one copy of the F508del mutation. Mara Cray shares her thoughts on a “new cystic fibrosis” after plenary two of NACFC ([link removed]) and her personal experience on CFTR modulators.

Read Mara ([link removed])

Watch Plenary 2 on Facebook Live » ([link removed])

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Plenary 3: Advancing the GI Frontier for People with CF

Gastrointestinal issues are common in people with CF but have not always been prioritized in research and care. Cade Hovater, who has dealt with GI issues all his life, shares his top takeaways from plenary three of NACFC ([link removed]), including what’s being done to train more GI specialists in CF care.

Read Cade ([link removed])

Watch Plenary 3 on Facebook Live » ([link removed])




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