The latest information for November 19, 2020


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Thursday, November 19, 2020

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

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Global Study on COVID-19 in People with CF Publishes Updated Outcomes

Updated outcomes from 181 people with cystic fibrosis from 19 countries diagnosed with COVID-19 have been published in the ([link removed]) Journal of CF ([link removed]) as part of an ongoing, international collaboration to understand the impact of COVID-19 on people with CF. Consistent with previously reported data, individuals represented in the study exhibited a range of outcomes. Overall, we continue to be encouraged that people with CF are faring better than initially expected and that many patients have been able to manage their treatment at home. However, the study confirmed that COVID-19 can cause serious illness in people with CF. 

Read more about the study » ([link removed])

Sexual and Reproductive Health Webinar Recording Now Available

The recording from our sexual and reproductive health webinar ([link removed]) is now available. Hear about current and upcoming research to address the unique needs of people with cystic fibrosis including studies on pregnancy, parenthood, and care delivery. In addition, hear from members of the Therapeutics Development Network Women’s Health Research Working Group, who are moving important research forward.

Watch the webinar » ([link removed])

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Planning for a Future I Never Thought I’d Have With CF

Diagnosed as an infant with cystic fibrosis, Sarah Boylan's doctors estimated her life expectancy to be in the teens. But after starting Kalydeco® in her early 20s, her mindset changed ([link removed]) to incorporate and invest in an expanding future.

Read the blog » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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