Cystic Fibrosis Foundation · [email protected]

December 28, 2021 at 4:22 PM

Your support means more birthdays

Give today Dear Friend,  This month, Baylor Griffith turned 1. First birthdays represent a milestone in any family, but especially when you have cystic fibrosis. "The first thing I said after Baylor's diagnosis was, 'I don't know how I am going to …

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December 22, 2021 at 5:58 PM

CF Foundation year in review

A message from Michael Boyle, MD Dear Friend,  This has been a year of exciting progress for the CF community, along with challenges that we faced together head-on. As we reach the end of 2021, I wanted to share some reflections on this year’s highlights and, abo…

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December 20, 2021 at 8:50 PM

Path to a Cure research update

Explore our progress to find a cure for CF It's been a little over two years since we launched our $500 million Path to a Cure initiative, an ambitious research agenda to deliver treatments for the underlying cause of cystic fibrosis and, one day, a cure for every person…

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  Cystic Fibrosis Foundation · [email protected]

December 16, 2021 at 5:19 PM

You're invited ✉️

Join us for the National Annual Meeting Start the new year off right and join us virtually on Thursday, January 27 at 8 p.m. ET for our second National Annual Meeting to celebrate the progress made in 2021 as we look forward to the months ahead. He…

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  Cystic Fibrosis Foundation · [email protected]

December 14, 2021 at 9:18 PM

Your support helps fuel our mission

Together, we can make CF stand for Cure Found Dear Friend,  Ashley Wilson was diagnosed with cystic fibrosis via newborn screening in 1997. Growing up, her parents raised her to be open about her life with CF. And through her podcast and YouTube ch…

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December 9, 2021 at 9:19 PM

Together: a Community Update

The latest information for December 9, 2021 Thursday, December 9, 2021 CF Foundation Invests in Potential Antifungal Treatment for Lung Transplant Recipients This week, we announced an investment of $3…

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  Cystic Fibrosis Foundation · [email protected]

December 8, 2021 at 6:40 PM

Annual infection research update

Explore our progress to fight infections As part of our comprehensive effort to address infections in people with cystic fibrosis, the Infection Research Steering Committee met today to discuss what infection-related research the Foundation should prioritize as part of t…

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  Cystic Fibrosis Foundation · [email protected]

December 1, 2021 at 5:32 PM

The match has been met!

We are so grateful for our community The strength and support of the CF community continues to amaze us. We reached our Giving Tuesday goal and thanks to the generosity of the Stremick family, we raised significant funds to continue critical resear…

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  Cystic Fibrosis Foundation · [email protected]

November 30, 2021 at 5:21 PM

Match my gift today

One gift. Two times the impact Friend,  The only thing missing from this equation is your gift. We're halfway through Giving Tuesday – can we count on you to help us reach our goal?  Your gift will be matched, dollar-for-dollar, up to $250,000, th…

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  Cystic Fibrosis Foundation · [email protected]

November 30, 2021 at 2:00 PM

2X your gift on Giving Tuesday

Donate today Dear Friend,  The equation is simple. When you make a gift today, it will go twice as far in helping make CF stand for Cure Found. Thanks to the Stremick family, your Giving Tuesday gift will be matched dollar-for-dollar, up to $250,0…

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  Cystic Fibrosis Foundation · [email protected]

November 29, 2021 at 5:07 PM

Double your gift for Giving Tuesday

The time to give is now Dear Friend, Make a gift to the CF Foundation this Giving Tuesday and it will be doubled! Thanks to the generosity of the Stremick family, whose 16-year-old granddaughter, Ella, has cystic fibrosis, your gift will be matched…

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  David Elin – Cystic Fibrosis Foundation  · [email protected]

November 22, 2021 at 6:04 PM

CF Advocacy End of Year Update

Mark your calendar Join the Cystic Fibrosis Foundation Wednesday, December 1 at 1:00 p.m ET for a CF advocacy community update! Hear the latest on advocacy efforts in the cystic fibrosis community, including our current policy priorities in Congre…

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  Cystic Fibrosis Foundation · [email protected]

November 11, 2021 at 9:14 PM

Together: a Community Update

The latest information for November 11, 2021 Thursday, November 11, 2021 CF Foundation Strikes First-Of-Its-Kind Deal With Pioneering Medicines As part of our Path to a Cure research agenda,…

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  Cystic Fibrosis Foundation · [email protected]

November 8, 2021 at 5:17 PM

Your NACFC 2021 recap

Read top takeaways from members of the CF community Thank you for joining us for this year’s North American Cystic Fibrosis Conference! Together, we were more than 5,000 researchers, clinicians, and community members strong hearing the latest on cy…

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  Cystic Fibrosis Foundation · [email protected]

November 2, 2021 at 2:14 PM

NACFC is here

Join us online starting at 10 a.m. ET Dear Friend,Our virtual event doors for NACFC are open! We’re excited to have you join us. Join us live, and log in to the virtual NACFC platform to watch three plenary sessions, three workshops, 12 symposia, a…

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  Cystic Fibrosis Foundation · [email protected]

October 28, 2021 at 8:19 PM

Together: a Community Update

The latest information for October 28, 2021 Thursday, October 28, 2021 NACFC Starts Next Week Catch up on the latest advancements in cystic fibrosis research, care, and drug development at t…

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  David Elin – Cystic Fibrosis Foundation · [email protected]

October 26, 2021 at 5:03 PM

Tell Congress: We need new antibiotics

Act now Dear friend, Life with cystic fibrosis means living with a heightened risk of serious infections. The buildup of thick, sticky mucus in the lungs makes people with CF more susceptible to bacterial infections which can last for a couple of…

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  Cystic Fibrosis Foundation · [email protected]

October 18, 2021 at 3:17 PM

3 days until ...

Our second annual Breath of Life Celebration Join us this Thursday, October 21 at 8 p.m. ET for the Cystic Fibrosis Foundation's second annual National Breath of Life Celebration. This special evening will feature familiar faces and beloved enter…

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  Cystic Fibrosis Foundation · [email protected]

October 14, 2021 at 8:16 PM

Together: a Community Update

The latest information for October 14, 2021 Thursday, October 14, 2021 Register for our National Breath of Life Celebration Don't miss out on an evening to remember – please join us virtually for our s…

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  Cystic Fibrosis Foundation · [email protected]

October 12, 2021 at 7:47 PM

You're Invited to NACFC 2021

Hear all the latest in research, care, and more Dear Friend,It's been a busy year for the cystic fibrosis community. Hear all the latest advancements in CF research, care, and drug development from researchers and health professionals – all from th…

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  Cystic Fibrosis Foundation · [email protected]

October 5, 2021 at 9:03 PM

Join us for the National Breath of Life Celebration

Register today! Please join us for the CF Foundation's second annual National Breath of Life Celebration on October 21 at 8 p.m. ET. This special evening will be a time for us to unite as a community and advance our shared dream – a cure for cyst…

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  Cystic Fibrosis Foundation · [email protected]

September 18, 2021 at 3:10 PM

Thank you for supporting ROSE UP!

Together, we can accomplish incredible things. Whether you walked, baked cupcakes, painted a picture, or shared your story, thank you for participating in ROSE UP! Together, we raised nearly $300,000, and had ROSE UP participants in all 50 states. Were you unable to atten…

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  Cystic Fibrosis Foundation · [email protected]

September 17, 2021 at 2:16 PM

Happy ROSE UP Day!

Join us for a special day of fundraising and story sharing Over the last several weeks, hundreds of members of the cystic fibrosis community have registered, donated, and shared their stories on social media to lead up to the big moment: ROSE UP Da…

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  Cystic Fibrosis Foundation · [email protected]

September 16, 2021 at 8:17 PM

Together: a Community Update

The latest information for September 16, 2021 Thursday, September 16, 2021 Join Us for the National Breath of Life Celebration You're invited to join us October 21 at 8 p.m. ET for our second annual na…

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  David Elin – Cystic Fibrosis Foundation · [email protected]

September 7, 2021 at 3:33 PM

Join us for a special CF advocacy update

Mark your calendar Join us Thursday, September 9 at 1 p.m. ET for a special CF advocacy community update. Santiago Gonzalez, senior policy advisor to Senator Michael Bennet (D-CO), will join us to discuss the PASTEUR Act and its potential impact o…

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  Cystic Fibrosis Foundation · [email protected]

September 2, 2021 at 8:18 PM

Together: a Community Update

The latest information for September 2, 2021 Thursday, September 2, 2021 Dr. Boyle Discusses Antimicrobial Resistance at World Orphan Drug Congress Last week, Michael Boyle, MD, president and CEO of th…

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  Cystic Fibrosis Foundation · [email protected]

August 19, 2021 at 8:15 PM

Together: a Community Update

The latest information for August 19, 2021 Thursday, August 19, 2021 Update on Cystic Fibrosis Foundation Events Based on current COVID-19 trends, including a dramatic increase in cases throughout the …

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  Cystic Fibrosis Foundation · [email protected]

August 18, 2021 at 1:17 PM

Let's ROSE UP!

Register to join the movement We are kicking off today! Join Noor and hundreds of others for our second annual ROSE UP fundraising event. This is an incredible opportunity to participate virtually with members of the cystic fibrosis community fighting for the same mission…

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  Cystic Fibrosis Foundation · [email protected]

August 5, 2021 at 8:18 PM

Together: a Community Update

The latest information for August 5, 2021 Thursday, August 5, 2021 Vertex Moves Ahead with Phase 3 Trials ofOnce-Daily Triple Combination Therapy After positive Phase 2 trial results, Vertex announced …

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  Cystic Fibrosis Foundation · [email protected]

July 22, 2021 at 8:27 PM

Together: a Community Update

The latest information for July 22, 2021 Thursday, July 22, 2021 We Want to Hear From You We are seeking community input on the CF Foundation's educational content – including videos, webinars and even…

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  Cystic Fibrosis Foundation · [email protected]

July 20, 2021 at 8:09 PM

Your Legacy: A Match for the Future

It's never too early to think about planning for the future. We are driven by the dream that one day every person with cystic fibrosis will have the chance to live a long, healthy life. Working alongside the community, the Cystic Fibrosis Foundation has made unparalleled …

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  David Elin – Cystic Fibrosis Foundation · [email protected]

July 15, 2021 at 4:08 PM

Add some advocacy to your summer ☀️

Join us for an advocacy update Advocate, It’s hard to believe July is almost over. But with the introduction of bipartisan legislation to promote the development of new antibiotics, there are lots of opportunities to continue our advocacy work thi…

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  Cystic Fibrosis Foundation · [email protected]

July 8, 2021 at 8:16 PM

Together: a Community Update

The latest information for July 8, 2021 Thursday, July 8, 2021 Meet the Newest Members of Our Board of Trustees Today, the Foundation announced changes on its Board of Trustees, including the election …

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  Cystic Fibrosis Foundation · [email protected]

June 24, 2021 at 8:21 PM

Together: a Community Update

The latest information for June 24, 2021 Thursday, June 24, 2021 CF Foundation 2020 Annual ReportWhile 2020 presented many challenges, we have a lot to celebrate. Working alongside the cystic fibrosis community, we were able to …

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  Cystic Fibrosis Foundation · [email protected]

June 10, 2021 at 8:25 PM

Together: a Community Update

The latest information for June 10, 2021 Thursday, June 10, 2021 Register for a Community WebinarWe are thrilled to announce that yesterday the FDA approved Trikafta® for children ages 6 – 11 with one F508del mutation and other …

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  Cystic Fibrosis Foundation · [email protected]

June 9, 2021 at 1:54 PM

Trikafta approved for children ages 6 to 11 with certain mutations

Plus, a webinar this Thursday for your top questions We are thrilled to share that the U.S. Food and Drug Administration has approved the use of Trikafta® (elexacaftor/tezacaftor/ivacaftor) for children with cystic fibrosis ages 6 to 11 who have at least one copy of the …

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  Cystic Fibrosis Foundation · [email protected]

June 5, 2021 at 1:49 PM

On 65 Roses Day we honor our community

Help us reach our goal Friend, Today is 65 Roses Day! Over six decades ago, a mother named Mary began volunteering for the Cystic Fibrosis Foundation when she learned that all three of her beloved sons, Richard, Arthur, and Anthony, had bee…

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June 3, 2021 at 8:22 PM

We can end CF

Make your monthly gift Dear Friend, It's said that experience comes with age. However, it might be easy to argue that at age 8, Evan has already had a lifetime of experiences. Despite being diagnosed with cystic fibrosis at birth, Evan doesn't let his…

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  Cystic Fibrosis Foundation · [email protected]

June 1, 2021 at 5:23 PM

Driven by a dream

A life free of cystic fibrosis Dear Friend, Although the Cystic Fibrosis Foundation has made extraordinary medical and scientific progress over the past several decades, many individuals with CF do not benefit from existing therapies. Our dream is tha…

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  Cystic Fibrosis Foundation · [email protected]

May 27, 2021 at 8:43 PM

Together: a Community Update

The latest information for May 27, 2021 Thursday, May 27, 2021 The Latest in CF ResearchToday, we announced three new research awards as part of our Path to a Cure initiative to accelerate the development of treatments for the underlying…

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  Cystic Fibrosis Foundation · [email protected]

May 13, 2021 at 8:30 PM

Together: a Community Update

The latest information for May 13, 2021 Thursday, May 13, 2021 FDA Authorizes Pfizer's COVID-19 Vaccine for Children 12 to 15On May 10 the FDA announced that the Pfizer-BioNTech COVID-19 vaccine is now authorized for use in ch…

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  Cystic Fibrosis Foundation · [email protected]

April 29, 2021 at 8:25 PM

Together: a Community Update

The latest information for April 29, 2021 Thursday, April 29, 2021 Celebrate CF Awareness MonthEach May, the cystic fibrosis community comes together for CF Awareness Month. Check out these resources for sharing your story and…

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  David Elin – Cystic Fibrosis Foundation · [email protected]

April 22, 2021 at 4:09 PM

Mark your calendar

Join us for a CF advocacy community update Dear Advocate, Join us Wednesday, April 28th at 1:00 PM ET for a CF advocacy community update! Register to hear the latest CF advocacy information including our current and ongoing policy priorities, an o…

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  Cystic Fibrosis Foundation · [email protected]

April 19, 2021 at 4:31 PM

You’re the spark ✨

Celebrate National Volunteer Week It’s National Volunteer Week! From advocating, researching, connecting, fundraising, and lending a helping hand — you inspire and motivate us. Your contributions are the spark that ignites change …

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  Cystic Fibrosis Foundation · [email protected]

April 15, 2021 at 8:23 PM

Together: a Community Update

The latest information for April 15, 2021 Thursday, April 15, 2021 Our Work on Diversity and InclusionRecently, as part of our effort to address health disparities in cystic fibrosis and build a more inclusive community, the CF Foundatio…

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April 6, 2021 at 4:14 PM

It’s not too late to register

ResearchCon is April 15 and 17 What is the latest research being done to understand genetic-based therapies? How is our understanding of mental and emotional health of people with CF from childhood to adolescence and adulthood changing? …

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  Cystic Fibrosis Foundation · [email protected]

April 1, 2021 at 8:26 PM

Together: a Community Update

The latest information for April 1, 2021 Thursday, April 1, 2021 William Skach, Chief Scientific Officer, to Retire From the CF FoundationWilliam Skach, MD, will retire from the CF Foundation this summer. Under his leadership…

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March 18, 2021 at 8:18 PM

Together: a Community Update

The latest information for March 18, 2021 Thursday, March 18, 2021 CF Foundation Extends Collaboration with BeamAs part of our ongoing commitment to supporting the health and well-being of adults living with cystic fibrosis, we have exte…

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  Cystic Fibrosis Foundation · [email protected]

March 16, 2021 at 4:22 PM

We saved you a seat

Register for ResearchCon today Mark your calendar for April 15 and 17 for ResearchCon! Join us for this free, online educational event for anyone 16 and older with a personal or professional connection to cystic fibrosis. You will have t…

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  Michael Boyle, MD – Cystic Fibrosis Foundation · [email protected]

March 12, 2021 at 4:22 PM

One Year COVID-19 Update

A message from Michael Boyle, MD Dear Friend, One year ago, we issued some of our first communications around the COVID-19 pandemic. Today, I wanted to share an update on we have learned since then, and why I am optimistic about the road ahead. I …

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