The latest information for January 7, 2021


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Thursday, January 7, 2021

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

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Register for the COVID-19 Vaccines Community Town Hall

While the U.S. FDA emergency use authorization of the COVID-19 vaccines marks an important milestone of the pandemic, it also raises many questions for people with cystic fibrosis and their loved ones. Register to join us Thursday, January 14 at 7 p.m. ET ([link removed]) to have your top questions about the vaccines answered in a community town hall led by a panel of experts.

Save your seat » ([link removed])

CF Foundation Strongly Supports COVID-19 Vaccine Recommendations for People Living with Cystic Fibrosis

Today, the CF Foundation issued a statement ([link removed]) supporting public health authorities’ recommendations for COVID-19 vaccines and strongly encouraging people with cystic fibrosis to talk with their CF care team about getting vaccinated. We also continue to advocate for priority access to COVID-19 vaccines for all people living with CF and are closely monitoring the scientific developments for the FDA approved vaccines to understand how they may affect the CF community.

Read the full statement » ([link removed])

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Register for our National Annual Meeting

Join us Thursday, January 28 at 8 p.m. ET for the CF Foundation’s first National Annual Meeting ([link removed]) during which we will celebrate our volunteers, highlight progress in research and care, and discuss our vision for the year ahead. Marc Ginsky, chief operating officer; Bruce Marshall, MD, EVP and chief medical officer; Bill Skach, MD, EVP and chief scientific officer; and Michael Boyle, MD, president and CEO, will share updates and answer questions from the community. 

Reserve your spot now » ([link removed])

FDA Approves Expansion of Modulators for People with Certain Rare Mutations

The U.S. FDA expanded its approval of three CFTR modulators ([link removed]) to include additional people with cystic fibrosis who have certain rare mutations. The approval enables more than 600 individuals, who were not previously eligible for modulators to access drugs that treat the underlying cause of their disease for the first time. It also provides some people with CF additional therapeutic options.

Read more about the FDA approval » ([link removed])

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Dancing the Frenetic Routine of a Mom to a Child with CF

When you have a child living with cystic fibrosis, your mornings become a tightly choreographed routine of treatments and getting ready for work and school. Add sickness to it, and the routine becomes more complex and the pace more frenetic. Rebekah Brooks, whose daughter has CF, writes about how she manages the stress and uncertainty ([link removed]) that come with caring for a child with CF.

Read Rebekah ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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