The latest information for February 4, 2021


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Thursday, February 4, 2021

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

The Latest in CF Research

Vertex announced that the FDA accepted its application to expand Trikafta® ([link removed]) to include children with cystic fibrosis ages 6 – 11 years old who have at least one F508del mutation or a mutation in the CFTR gene that is responsive based on in vitro data. The FDA is expected to make a decision by June 8, 2021.

Read the announcement » ([link removed]) 

We awarded up to $3 million to Kinnear Pharmaceuticals ([link removed]) to conduct preclinical testing of a broad-spectrum anti-infective that has the potential to treat multi-drug resistant Pseudomonas and other infections in people with CF.  Read more about the award » ([link removed])

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Join us for a Community Event

Celebrate the strength of the cystic fibrosis community by registering for an event in 2021 ([link removed]). Whether you walk, climb, cycle, hike, or participate as a member of Team CF, every event features several virtual components and experiences to help make a difference for people living with CF. Register today to stay up-to-date on how your chapter plans to safely bring the community together. Register today » ([link removed])

When's Our Turn? Waiting to Get the COVID-19 Vaccine

The roll-out of COVID-19 vaccines has been confusing, complicated, and frustrating for many people in the CF community. Piper Beatty Welsh, an adult with CF, shares why the hope that came with the authorization of the vaccines has been coupled with anxiety and frustration, and the importance of reminding herself this is a difficult situation. 

Read the blog » ([link removed])

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Watch our National Annual Meeting

Our first National Annual Meeting is now available to watch on YouTube ([link removed]) with English and Spanish closed captions. Leaders from the CF Foundation, including Marc Ginsky, Bruce Marshall, MD, Bill Skach, MD, and Michael Boyle, MD, discuss the progress we made last year, set our vision for 2021, and answer questions from the community. Watch the recording » ([link removed])

Share Your Health Care Story with Us

The Affordable Care Act (ACA) changed the way people with CF access coverage for treatment and care, providing protections that were not previously available to them. Help us preserve the progress that’s been made ([link removed]) and educate decision-makers by telling us how the ACA has impacted your life. Share your story » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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