The latest information for October 22, 2020


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Thursday, October 22, 2020

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

CF Foundation Commits up to $14M to Expand Agreement with Synspira Therapeutics

This week, the Foundation announced it’s expanding its research collaboration with Synspira Therapeutics ([link removed]), committing up to $14 million in additional funding to develop a pancreatic enzyme replacement therapy and a new treatment to help fight drug-resistant infections. If successful, the enzyme therapy could offer a more effective alternative to people with cystic fibrosis who struggle with digestion. In addition to fighting infections, the novel treatment could also reduce inflammation in the lungs and thin mucus.

Read the announcement » ([link removed])

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Celebrate Holidays Safely

Celebrating the holidays with friends and family is something that people with cystic fibrosis need to approach with caution under the best of circumstances. The COVID-19 pandemic makes staying safe this holiday season more complicated. We've updated our COVID-19 community Q&A ([link removed]) to include information about the factors that affect your risk as you consider how — and with whom — to celebrate the holidays. 

View our COVID-19 Q&A » ([link removed])

Together: Now Available on YouTube

The recording from Together: Now ([link removed]), our virtual event celebrating the cystic fibrosis community, is now available. Watch as special guests including NFL quarterback Joe Flacco, former Bachelorette Becca Kufrin, and adults living with CF share their stories as we celebrate the many ways the CF community tackled the 65 Roses Challenge together.

Watch the recording ([link removed])» ([link removed])

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Hitting the Reset Button on My Life Because of Trikafta

As a 28-year-old living with cystic fibrosis, Bridget McGarey, has had more than 40 two-week hospitalizations since her teens. But after starting Trikafta last year, ([link removed]) she shares how the CFTR modulator has helped her feel like she can reset the clock and start living her life.

Read Bridget ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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