The latest information for April 1, 2021


To view this email online, paste this link into your browser:
[link removed]





([link removed])

Thursday, April 1, 2021

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

([link removed])

William Skach, Chief Scientific Officer, to Retire From the CF Foundation

William Skach, MD, will retire from the CF Foundation this summer. ([link removed]) Under his leadership, the Foundation significantly strengthened and deepened its scientific programs – adding best-in-class expertise in regulatory affairs, genetic research, and infection. Read the announcement » ([link removed])

The Latest in CF Research

The Foundation awarded up to $400,000 to Life Edit Therapeutics ([link removed]) to explore the application of their unique gene editing technology in cystic fibrosis. The funding will enable the company to screen their library of editing tools for options that may correct the six most common nonsense mutations in people with CF. Read more about the award » ([link removed])

([link removed])

Register Today for Supporting Your Adolescent's Mental Health During the Pandemic: A Conversation for Parents 

Talking to your child about their emotional well-being can be tough – but you're not alone. Join us for a discussion on teenage emotional well-being ([link removed]) and to have your top questions about mental health answered by a panel of experts. This event is intended for parents and caregivers of older children and teens. Please note, this event will include mentions of mental health conditions such as depression, anxiety, and suicidal thoughts. Viewer discretion is advised.RSVP ([link removed]) ([link removed])» ([link removed])

Register for ResearchCon

You're invited to join us April 15 and 17 for ResearchCon ([link removed]), a free, online educational event. Researchers, clinicians, and CF community members will share the latest CF research on topics including the impact of COVID-19 and telehealth, GI and the endocrine system, disparities in CF care and experiences among people of color and LGBTQ+, and more.

Register today » ([link removed])

([link removed])

How I Got My Son to See the Importance of Taking His CF Medications

At first, Lathronia Jefferson, a mom to a 9-year-old living with cystic fibrosis, didn't have any issues getting her son to do his treatments. But as he got older, he began to hide his pills instead of taking them. On the CF Community Blog ([link removed]), Lathronia shares how she helped him understand the importance of taking his medications. Read the blog » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

This email was sent to [email protected].
To ensure that you continue receiving our emails,
please add us to your address book or safe list.

manage your preferences ([link removed])
opt out ([link removed]) using TrueRemove(r).

Got this as a forward? Sign up ([link removed]) to receive our future emails.
email powered by Emma(R)
[link removed]