From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date May 13, 2021 8:30 PM
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The latest information for May 13, 2021


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Thursday, May 13, 2021

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

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FDA Authorizes Pfizer's COVID-19 Vaccine for Children 12 to 15

On May 10 the FDA announced that the Pfizer-BioNTech COVID-19 vaccine is now authorized for use in children ages 12 to 15. The FDA found the vaccine to have an efficacy and safety profile similar to that seen in adults. The Foundation encourages all those with CF, ages 12 and up, to get the COVID-19 vaccine when you are able. Explore our COVID-19 Q+As » ([link removed])

CF Foundation Invests Up to $8.4M in SpliSense for the Development of Potential Rare Mutation Therapy

As part of our Path to a Cure initiative, today we announced that we will invest up to $8.4 million in SpliSense ([link removed]) to develop an antisense oligonucleotide therapy for people with cystic fibrosis who have splicing mutations and potentially other rare mutations. This potential therapy would enable the creation of a full-length CFTR protein, helping restore the proper balance of salt and fluids in the lungs to improve lung fuction. Read the announcement » ([link removed])

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Molecular Analysis Identifies Key Differences in Lungs of People with Cystic Fibrosis

A team of researchers from the CF Foundation, UCLA, and Cedars-Sinai published a first-of-its-kind study ([link removed]) comparing the cellular makeup of the lungs of people with and without CF. The research, featured on the cover of Nature Magazine, illustrates how CF changes the cells in the airways, identifies newly discovered subtypes of cells, and could reveal targets for future genetic therapies. Learn more about the study » ([link removed])

Get Involved at an Event this Weekend

From car parades to virtual events, the cystic fibrosis community is coming together across the country at more than 200 events ([link removed]) to fundraise and help find a cure for CF. Join us this weekend to build community, celebrate progress, and make a difference. Find an event near you » ([link removed])

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May is CF Awareness Month

Each person's experience with cystic fibrosis is unique, and this month we ([link removed]) Use #FacesOfCF on social media to help raise awareness about the realities of life with a chronic illness, and follow along on Facebook, Twitter, and Instagram as we share your stories all month long. Tell your CF story ([link removed]) ([link removed])» ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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