The latest information for September 16, 2021


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Thursday, September 16, 2021

Join Us for the National Breath of Life Celebration

You're invited to join us October 21 at 8 p.m. ET ([link removed]) for our second annual national Breath of Life Celebration. This virtual event will be a special evening to unite as a community and advance the Foundation's mission so we can get one step closer to our shared dream – a cure for cystic fibrosis. Together, we will enjoy guest appearances from familiar faces and beloved entertainers. We will also honor Rich Mattingly, former executive vice president and chief operating officer of the CF Foundation, whose dedication led to extraordinary progress for those with cystic fibrosis. Please join us!

RSVP » ([link removed])

Share Your Real-Life Experience with Trikafta

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On Trikafta®? Share your experience to advance CF research. Enroll in the app-based, at-home observational HERO-2 Study ([link removed]). Download the Folia app and enter code HERO2 to join. No additional clinic visits are required. Enroll in HERO-2 » ([link removed])

Register for BreatheCon 2021

Join us September 24 and 25 for BreatheCon: ([link removed]) a free, virtual event open to all adults with cystic fibrosis ages 18 and older. This year's event will feature an artist showcase, panel discussions, group chats, fun activities, and small-group video breakouts on issues that are unique to people living with CF. Save your seat » ([link removed])

Bonding Over Breathing

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In the newest post on the CF Community Blog, ([link removed]) Micah Baker, an adult with cystic fibrosis, shares how a hike led him and his wife to become unexpected friends with another couple who understood living with a chronic illness that affects the lungs – such as CF and asthma – and the need for breaks along the way.

Read Micah ([link removed])

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])



4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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