From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date July 22, 2021 8:27 PM
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The latest information for July 22, 2021


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Thursday, July 22, 2021

We Want to Hear From You

We are seeking community input on the CF Foundation's educational content – including videos, webinars and events about the latest updates in CF research and care. Your feedback will help ensure we continue to provide information that is useful, in the ways that you want to receive it. The survey takes 4 – 6 minutes to complete and your information and opinions are confidential.

Take the survey » ([link removed])

How Will You ROSE UP?

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The countdown is on for ROSE UP, a virtual fundraising event created and led by adults with cystic fibrosis to bring the CF community together and ROSE UP for a cure. ROSE UP participants are encouraged to come together to raise funds and awareness for our mission through an act that is meaningful to them. If you're looking for some creative fundraising inspiration, check out some of the unique ideas ([link removed]) from last year from members of the CF community. Get involved » ([link removed])

Make an Impact With Community Voice

Your unique insights and experiences can help shape future cystic fibrosis research and care. If you or a loved one has cystic fibrosis, join Community Voice ([link removed]) today to receive customized opportunities. From filling out a 2-minute survey to participating in a focus group or committee, you can make a difference. Sign up for Community Voice » ([link removed])

Latest Blog Post: My Journey as an Athlete With CF

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Over the 50 years that Sara has lived with cystic fibrosis, competition has been a central part of her life. Although her active lifestyle is now different than before, Sara has embraced brand-new competitive pursuits that have helped her develop the mental fortitude to overcome medical adversity. Read the blog » ([link removed])

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])



4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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