The latest information for April 29, 2021


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Thursday, April 29, 2021

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

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Celebrate CF Awareness Month

Each May, the cystic fibrosis community comes together for CF Awareness Month. Check out these resources for sharing your story ([link removed]) and celebrate along with us on social media, no matter what your connection to CF is. Tell your CF story ([link removed]) » ([link removed])

Share Your Feedback With Us

We want to hear from you! The Cystic Fibrosis Foundation is exploring the branding of our peer-to-peer fundraising campaigns including Great Strides, CF Cycle for Life, Xtreme Hike, CF Climb, Rose Up, and Team CF. You can share your feedback by participating in a short survey ([link removed]) by Sunday, May 2 at 11:59 p.m. ET. You do not need to have prior experience with our events to participate in this project. Take the survey » ([link removed])

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Making In-Person Care Center Visits a Priority Despite the Pandemic

For Maura Corcoran Wozniak, a mom, wife, and two-time double-lung transplant recipient, new safety procedures implemented during the pandemic at her hospital made each visit more stressful. But, she knew she needed to continue diligently managing her health. In our latest blog ([link removed]), Maura shares how she kept up with getting the care she needed during the pandemic. Read Maura ([link removed])

Watch Community Event Recordings

ResearchCon sessions are now available on YouTube ([link removed]). Hear from researchers, clinicians, and members of the CF community about the latest CF research on topics like genetic-based therapies, CFRD, infections, COVID-19 and telemedicine, and more. Select sessions will be available with Spanish captions in May. Watch today » ([link removed])

Gratitude Hour is now available on YouTube ([link removed]). Hear from adults living with CF including Kyle Cole, Travis Flores, and Ashley Wilson, along with Brenda Jay, a mother of an adult with CF, share how to reignite your purpose, and find motivation.Watch on YouTube » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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