The latest information for August 19, 2021


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Thursday, August 19, 2021

Update on Cystic Fibrosis Foundation Events

Based on current COVID-19 trends, including a dramatic increase in cases throughout the U.S., the CF Foundation will require all events through the end of the year to take place fully outdoors or in a virtual setting, and will transition the North American Cystic Fibrosis Conference to a fully virtual conference. Hear more about this update from our President and CEO, Michael Boyle, MD.

Watch the video » ([link removed])

Cystic Fibrosis Foundation Supports Universal Masking in Schools

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This week, the CF Foundation affirmed its support for universal masking in schools ([link removed]), consistent with recommendations from both the Centers for Disease Control and Prevention and the American Academy of Pediatrics. All teachers, staff, students, and visitors should wear masks in schools, even if they are vaccinated, to help bring children back to a safe, in-person learning environment and to reduce infection and spread of the COVID-19 virus. If masking is not mandated, other accommodations – such as remote learning – must be made available. Read our statement » ([link removed])

CDC Recommends Third Dose of COVID-19 Vaccines for Immune Compromised Individuals

The CDC recommended that people with comprised immune systems, including individuals with CF who are post-transplant, get a third dose of the Pfizer-BioNTech or Moderna vaccines. Studies have shown people with compromised immune systems have a lower immune response to the standard vaccine dose than people who do not. Visit our COVID-19 Q&A » ([link removed])

Research to Prevent Transplant Complications

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Last week, we launched a first of-its-kind biorepository and patient registry ([link removed]) specifically to study lung transplantation. The CF Lung Transplant Consortium biorepository and patient registry will act as a library – storing biological samples and clinical data that can be accessed by researchers with the goal of preventing complications like chronic lung allograft dysfunction (CLAD) for people with CF who receive a lung transplantation.

Read the news story » ([link removed])

11 Haikus to Help you Laugh About CF

Need a laugh? Tara Goodwin, an adult living with cystic fibrosis, always says that when life hands you lemons, turn around and write some Japenese-style poetry. In the newest blog post for the CF Community Blog ([link removed]), read Tara's 11 haikus to help you laugh about life with CF.

Read Tara ([link removed])

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])



4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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