The latest information for June 24, 2021


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Thursday, June 24, 2021

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CF Foundation 2020 Annual Report

While 2020 presented many challenges, we have a lot to celebrate. Working alongside the cystic fibrosis community, we were able to sustain vital progress on our mission—including funding more lifesaving research and care than at any other point in our history—while supporting people with CF and their families through the pandemic. Learn more about all that we achieved together ([link removed]) in 2020 with the Foundation's annual report. Read the 2020 Annual Report » ([link removed])

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

Latest Policy Updates: the PASTEUR Act and the Affordable Care Act

Last week, Congress introduced the Pioneering Antimicrobial Subscriptions to End Upsurging Resistance (PASTEUR) Act, ([link removed]) a bipartisan bill that, if passed, will support the development of new antibiotics and promote appropriate use of existing ones. Additionally, on June 17, the U.S. Supreme Court dismissed the case against the Affordable Care Act, ultimately preserving protections for the millions of people affected by pre-existing conditions, including cystic fibrosis. Read the news story » ([link removed])

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Apply for the Tomorrow's Leaders College Program

Are you a college student or recent graduate interested in improving your professional skills? Apply for the Tomorrow ([link removed]) a four-week virtual program from July 8 to July 29, to build leadership, advocacy, and fundraising skills, on campus and beyond. Applications are due by July 6 at 8 a.m. ET. Submit your application » ([link removed])

Now on YouTube: Trikafta 6 through 11 Expansion Community Town Hall

Have questions about what expanded access of Trikafta® (elexacaftor/tezacaftor/ivacaftor) means for your child or loved one with cystic fibrosis between ages 6 through 11? In case you missed it, watch our community town hall ([link removed])to hear JP Clancy, MD, Albert Faro, MD, and Cori Daines, MD, answer your top questions about the label expansion. Watch the recording » ([link removed])

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Navigating CF: From First Date to a Future Together

After Olivia met Ali, she felt conflicted about bringing her into a life with CF – full of treatments, hospital stays, and the unexpected. In the CF Community Blog, ([link removed]) Olivia opens up about how the support she received from her now fiancée helped her get through some of life's most difficult moments. Read Olivia ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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