The latest information for September 2, 2021


To view this email online, paste this link into your browser:
[link removed]





([link removed])

Thursday, September 2, 2021

Dr. Boyle Discusses Antimicrobial Resistance at World Orphan Drug Congress

Last week, Michael Boyle, MD, president and CEO of the Cystic Fibrosis Foundation, discussed at a virtual fireside chat at the World Orphan Drug Congress ([link removed]) ([link removed]) the impact antimicrobial resistance has on rare disease communities such as CF. "This is a foreseeable crisis," he said. "Our best defense is to be prepared."

Watch the video » ([link removed])

Celebrate National Grandparents' Day

([link removed])

Grandparents play an important role in the lives of people with cystic fibrosis, and we can't wait to celebrate National Grandparents' Day September 12! No matter where you live, join us at a virtual event celebration ([link removed]) this month to connect and share stories with other grandparents and grandpersons. Find an event » ([link removed])

New on YouTube: Research Overview –  Cystic Fibrosis Sinus Disease

Management of complications secondary to CF, such as sinus disease, is important for maintaining an individual's health and quality of life. In our latest research webinar ([link removed]), CF researchers Daniel Beswick, MD, and Anna Zemke, MD, PhD, alongside Eliza Callard, an adult with cystic fibrosis, discuss new research on this important topic including studies looking at the impact of highly effective modulators on sinus disease and sinus surgery outcomes. Watch the recording » ([link removed])

My Journey to a Second Lung Transplant

([link removed])

In October 2020, Kadeem Morgan began to say his final goodbyes, as his doctors did not think he was strong enough for a second lung transplant. But with constant physical therapy, two months later he was placed on the list, and soon received a call for new lungs. On the CF Community Blog ([link removed]), Kadeem shares his journey to his second transplant, and the lesson he learned along the way.

Read the blog » ([link removed])

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])



4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

This email was sent to [email protected].
To ensure that you continue receiving our emails,
please add us to your address book or safe list.

manage your preferences ([link removed])
opt out ([link removed]) using TrueRemove(r).

Got this as a forward? Sign up ([link removed]) to receive our future emails.
email powered by Emma(R)
[link removed]