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Dear Friend, 

This month, Baylor Griffith turned 1. First birthdays represent a milestone in any family, but especially when you have cystic fibrosis.

"The first thing I said after Baylor's diagnosis was, 'I don't know how I am going to do this,'" her mother, Devina, said. "But when it is your child, what else are you going to do? So, I said I'm going to figure it out, and do the best I can.'"

HELP MAKE CF STAND FOR CURE FOUND ([link removed])

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

Over the past year, Devina, and her husband, Austin, have done just that.

They navigated through Baylor's meconium ileus blockage in the days following her birth, getting a feeding tube placed after she struggled to gain weight, and starting inhaled antibiotics after she cultured pseudomonas.

It's not how any parent expects the first year of their child's life to go.

"We managed each hurdle because of the support from the CF community," said Devina. "We managed because we have a team of doctors and clinical staff working their hardest to do what they can for her. We managed because we have a village behind us."

In the future, Devina hopes Baylor will participate in clinical trials to help move us closer to a cure for cystic fibrosis. But for now, her dreams for her daughter are simple: to create special memories with her big sister and live her life to the fullest.

We are dedicated to ensuring that everyone with cystic fibrosis, like Baylor, has the chance to live a long, healthy life, free from the burden of this disease. We will not leave anyone behind.

This holiday season, help us advance research so people with CF have the chance to chase their dreams. Make your gift today ([link removed]).

GIVE TODAY ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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