The latest information for May 27, 2021


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Thursday, May 27, 2021

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Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

The Latest in CF Research

Today, we announced three new research awards as part of our ([link removed]) ([link removed])Path to a Cure ([link removed])initiative ([link removed]) to accelerate the development of treatments for the underlying cause of cystic fibrosis for every person with the disease. This includes up to $2.6 million to Eloxx Pharmaceuticals to identify compounds that could potentially treat individuals who have nonsense mutations, as well as awards to Hunterian Medicine and Metagenomi to advance genetic therapies for all people wth CF. Read the announcement » ([link removed])

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Do You Have an Emergency and Disaster Plan?

An emergency or natural disaster can occur at any time. If you or a loved on has cystic fibrosis, it's critical to be prepared and have a plan in place. With our new Disaster Preparedness Plan Checklist, ([link removed]) find out what items you should have ready, what to update annually, and how to begin recovery after a disaster or emergency. Download the Disaster Preparedness Plan Checklist » ([link removed])

Design Swag for BreatheCon 2021

What does commUNITY mean to you? If you're an artist living with cystic fibrosis, submit your original design for our BreatheCon swag contest ([link removed])that illustrates the power of connecting, creativity, and community in your life. The winning design will be chosen by the CF community, and featured on BreatheCon 2021 swag. Submit your design » ([link removed])

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The 65 Roses Story

The 65 Roses story ([link removed]) dates back to 1965, but do you know the history behind the term? As we get ready for 65 Roses Day on June 5, learn why children of all ages use the term "65 Roses" to describe cystic fibrosis. Get to know the 65 Roses story » ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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