Mary Dwight, CF Foundation · [email protected]

February 5, 2024 at 8:52 PM

Advocate, thank you for showing up for the CF community

Check out our advocacy highlights from 2023 2023 Advocacy Wins As we start the new year, we want to celebrate the CF community’s strength and resolve in 2023 to advance our search for new therapies and protect access to care and treatments for those living with cystic fibrosis. Together, you he…

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  Cystic Fibrosis Foundation · [email protected]

February 5, 2024 at 3:30 PM

Understanding genetic therapies: New research webinar

Join us February 21 Research Update: Genetic Therapies for CFYou’re invited to join us for a webinar Wednesday February 21 at 7 p.m. ET to learn about genetic therapies in cystic fibrosis. During the webinar, you can also ask your questions during a live audience Q&A session. SAVE MY…

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  Cystic Fibrosis Foundation · [email protected]

January 25, 2024 at 9:09 PM

Together: a Community Update

The latest updates for January 25, 2024 January 25, 2024  ☰✕ News• Get Involved • CF Community Blog CF Foundation Invests Up to $15 Million for Gene Editing Technology  Today, we announced we’re providing up to $15 million to Prime Medicine. Prime Medicine is in the early stages of deve…

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  Mike Boyle, Cystic Fibrosis Foundation · [email protected]

January 18, 2024 at 4:01 PM

A special invitation from our CEO

Register for our National Annual Meeting - Just 1 week away! Dear Friend,  It’s my pleasure to personally invite you to join us online for our 2024 National Annual Meeting, which will be held Thursday, January 25 at 8 p.m. ET/5 p.m. PT. The National Annual Meeting is one of my favorite moment…

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  Cystic Fibrosis Foundation · [email protected]

January 11, 2024 at 9:23 PM

Together: a Community Update

The latest updates for January 11, 2024 January 11, 2024  CF Foundation Invests Up to $5M to Develop a New Anti-Bacterial Therapy   We’re investing up to $5 million in Clarametyx Biosciences to develop a drug that could help address difficult-to-treat bacteria such as chronic Pseudomonas ae…

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  Mike Boyle, Cystic Fibrosis Foundation · [email protected]

January 8, 2024 at 5:18 PM

Honoring the legacy of Joe O’Donnell

The CF Foundation mourns the passing of an incredible leader Dear CF Foundation Community, With a heavy heart, I’m writing to let you know that our dear friend and champion of the CF mission, Joe O’Donnell, died Sunday. Many of you knew or experienced Joe, who was a passionate advocate, a dedi…

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  Cystic Fibrosis Foundation · [email protected]

January 1, 2024 at 2:24 AM

Last chance to give in 2023!

Now is the time to give Friend,    With 2024 just around the corner, we remain laser-focused on our shared dream: a cure for cystic fibrosis.   Our progress has been powered by you. From people with CF living longer than ever before to achieving dreams once thought not possible, we’ve witness…

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  Cystic Fibrosis Foundation · [email protected]

December 31, 2023 at 8:13 PM

Time is running out

Will you help advance our mission in 2024? Friend,    When the Cystic Fibrosis Foundation was founded, children with the disease rarely lived to kindergarten. Today, there are new possibilities for people with CF, and some community members are thriving — going to college, starting careers, a…

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  Cystic Fibrosis Foundation · [email protected]

December 31, 2023 at 1:29 PM

⏰ The clock is ticking ...

You can help us end CF Dear Friend,    In 2023, you helped make incredible progress possible: boldly driving research forward, advancing care, and coming together as a community, all in support of our mission — a life free of cystic fibrosis. Thank you for your unwavering generosity.    But t…

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  Cystic Fibrosis Foundation · [email protected]

December 29, 2023 at 4:20 PM

Working together for a future without CF

A special message from our SVP and Chief Development Officer Dear Friend,   As the holidays approach, I want to express my deepest gratitude for your commitment to advancing our mission and making 2023 a year to celebrate.   Over the past 12 months, we continued to see transformative developme…

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  Cystic Fibrosis Foundation · [email protected]

December 27, 2023 at 4:27 PM

Now is the time to give

Join a community committed to a cure for CF Lauren Black, 21, grew up a four-sport athlete — refusing to let cystic fibrosis stand in her way.        When Lauren was approved for Trikafta® in her junior year of high school, she noticed an immediate, positive change in her physical health. Whi…

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  Mike Boyle, Cystic Fibrosis Foundation · [email protected]

December 22, 2023 at 3:32 PM

Year-end gratitude

A message from our President and Chief Executive Officer Dear Friend,   As we come to the close of 2023, it’s the perfect time to thank you for your unwavering dedication to the CF mission. With you by our side, the Cystic Fibrosis Foundation continues to drive tremendous progress forward for p…

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  Cystic Fibrosis Foundation · [email protected]

December 14, 2023 at 9:17 PM

Together: a Community Update

The latest updates for December 14, 2023 December 14, 2023  Prescription Drug Affordability Boards and Cystic Fibrosis: What You Need to Know State affordability boards are becoming more prevalent as a way to assess and address the cost and affordability of prescription drugs. Preserving ac…

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  Cystic Fibrosis Foundation · [email protected]

December 12, 2023 at 8:30 PM

Donate today for a future without CF

Because we won’t settle for anything less Rosie Woods remembers her dad saying, “This is my daughter, and she’ll die before she’s a teenager,” during a commercial they were featured in to raise awareness about cystic fibrosis in the 1960s. It was the first time she was confronted by her life e…

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  Cystic Fibrosis Foundation · [email protected]

December 11, 2023 at 6:09 PM

Register now for our National Annual Meeting!

Join our President and CEO at this exciting virtual event Mark your calendars for an incredible evening of celebration and inspiration. On Thursday, January 25, 2024, at 8 p.m. ET/5 p.m. PT, join us virtually for the Cystic Fibrosis Foundation’s National Annual Meeting. Hear firsthand about t…

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  Cystic Fibrosis Foundation · [email protected]

December 6, 2023 at 8:13 PM

Latest CF research news inside!

🧬Genetic therapies, NACFC Highlights recording, care survey, + more! CF RESEARCH YEAR-END UPDATE The Cystic Fibrosis Foundation is excited to share the latest news and developments in CF research. We are continuing to invest in genetic therapies that promise to – one day – offer a treatment …

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  Cystic Fibrosis Foundation · [email protected]

December 5, 2023 at 1:13 AM

You’re invited to our CF research news update and live Q+A

Join us virtually, tomorrow! Each year, researchers and clinicians gather at the North American Cystic Fibrosis Conference (NACFC) to discuss the latest developments in cystic fibrosis research and care. During our live event, December 5 at 7 p.m. ET, you’re invited to hear key takeaways fr…

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  David Elin - CF Foundation · [email protected]

December 4, 2023 at 6:01 PM

⏰ Register for our next advocacy update!

Let's reflect on our advocacy in 2023 Hello Advocate,    Join us on Wednesday, December 6 at 1:00 p.m. ET for an advocacy community update webinar. Advocates in the cystic fibrosis community have made important progress this year toward advancing the CF Foundation’s policy priorities, like t…

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  Cystic Fibrosis Foundation · [email protected]

December 1, 2023 at 4:51 PM

Together: a Community Update

The latest updates for December 1, 2023 December 1, 2023  Join our CF Research News Update and Live Q+A Have a question following this year’s North American Cystic Fibrosis Conference? You’re invited to join us live, December 5 at 7 p.m. ET, to hear key takeaways from this year’s conference…

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  Cystic Fibrosis Foundation · [email protected]

November 29, 2023 at 5:22 PM

GivingTuesday has ended, but our work has not

There’s still time to donate Dear Friend,   The strength and support of the CF community continues to amaze us.    We reached our GivingTuesday goal, and thanks to our supporters and the generosity of the Stremick family, we raised critical funds needed to advance research and improve the l…

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  Cystic Fibrosis Foundation · [email protected]

November 29, 2023 at 1:27 AM

⏰ Time is running out on GivingTuesday

Make your donation before midnight! GivingTuesday ends at midnight! Just a few hours remain to make a gift on one of the most important giving days of the year. GIVE NOW Before the clock runs out, make a gift so that we can invest our resources today, while raising funds for tomorrow. Help…

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  Cystic Fibrosis Foundation · [email protected]

November 28, 2023 at 7:26 PM

Help us unlock our GivingTuesday match

There’s still time to make a difference today! We still need your help to unlock our GivingTuesday match! UNLOCK THE MATCH Thanks to the generosity of Lou and Nancy Stremick, donate now and your gift will be matched, dollar-for-dollar, up to $250,000, in honor of their 18-year-old granddau…

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  Cystic Fibrosis Foundation · [email protected]

November 28, 2023 at 1:38 PM

🎁 It’s GivingTuesday – Double your impact

Giving back only takes a few seconds It's GivingTuesday!   Now is the time. Give today for a future without cystic fibrosis and your gift will be matched, dollar-for-dollar, up to $250,000, thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has cystic fi…

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  Cystic Fibrosis Foundation · [email protected]

November 27, 2023 at 4:41 PM

Tomorrow is GivingTuesday!

There has never been a better time to give Tomorrow is GivingTuesday — a global day of giving where people all over the world come together to support nonprofits. Now is the time to give to the CF Foundation to build a future without cystic fibrosis. NOW IS THE TIME TO GIVE On GivingTuesd…

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  Cystic Fibrosis Foundation · [email protected]

November 20, 2023 at 2:40 PM

NACFC recordings now on YouTube

Plus - register for the NACFC highlights webinar Recordings from this year’s North American Cystic Fibrosis Conference (NACFC) are now available on demand. Hear CF professionals from across the globe share the latest in cystic fibrosis research, care, and drug development during plenaries, …

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  Cystic Fibrosis Foundation · [email protected]

November 16, 2023 at 9:23 PM

Together: a Community Update

The latest updates for November 16, 2023 November 16, 2023  CF Foundation Invests in Novel Genetic Therapy Delivery Mechanism  As part of our Path to a Cure research initiative to accelerate treatments for all people with cystic fibrosis, we’re investing up to $3 million in ViaNautis, which …

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  Cystic Fibrosis Foundation · [email protected]

November 14, 2023 at 9:14 PM

We're TWO excited to keep this secret!

Save the date for GivingTuesday Dear Friend,   GivingTuesday is just two weeks away, and we have some exciting news to share!   This GivingTuesday, your gift will be matched, dollar-for-dollar, up to $250,000, thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter,…

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  Cystic Fibrosis Foundation · [email protected]

November 8, 2023 at 4:10 PM

Highlights from NACFC 2023 - Now available!

Plus, take the Adapting CF Care survey At this year’s North American Cystic Fibrosis Conference (NACFC), scientists and clinicians gathered to discuss and share ideas on the latest in cystic fibrosis research, care, and drug development. In case you missed it, catch up on the highlights now. …

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  Cystic Fibrosis Foundation · [email protected]

October 31, 2023 at 12:13 AM

NACFC starts Thursday, November 2

There's still time to register! The North American Cystic Fibrosis Conference (NACFC) starts Thursday, November 2 — there's still time to register for the virtual experience! REGISTER NOW NACFC is the conference to attend to hear the latest advances in cystic fibrosis research, drug dev…

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  Cystic Fibrosis Foundation · [email protected]

October 19, 2023 at 8:17 PM

Together: a Community Update

The latest updates for October 16, 2023 October 19, 2023  Need Help Navigating Open Enrollment?   Selecting the health insurance plan that’s best for you and your family can be time-consuming and confusing. Let our team of dedicated Compass case managers help break it down for you. Case mana…

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  Cystic Fibrosis Foundation · [email protected]

October 5, 2023 at 8:19 PM

Together: a Community Update

The latest updates for October 5, 2023 October 5, 2023  CF Foundation Invests Up to $9M in Additional Funds to Develop a Messenger RNA Therapy We are investing up to $9 million in additional funds in Arcturus Therapeutics to test an inhaled messenger RNA therapy that could treat the underlyin…

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  Cystic Fibrosis Foundation · [email protected]

September 21, 2023 at 8:18 PM

Together: a Community Update

The latest updates for September 21, 2023 September 21, 2023  Virtual Registration Now Open for the North American Cystic Fibrosis Conference (NACFC) Join us online November 2-4 to hear the latest advances in CF research, drug development, and care at NACFC. Registrants can tune in live to w…

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  Cystic Fibrosis Foundation · [email protected]

September 14, 2023 at 12:48 AM

Register now for NACFC

Join us online November 2-4 The North American Cystic Fibrosis Conference (NACFC) is back November 2-4!   Register to attend the NACFC virtual experience and hear the latest advances in cystic fibrosis research, drug development, and care during three plenaries, as well as six sessions carefu…

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  David Elin - CF Foundation · [email protected]

September 12, 2023 at 12:02 PM

It's time to pass the PASTEUR Act

Congress needs to hear from you! Dear Advocate,    Congress is back in session, and we want to make sure their top priority is to pass the PASTEUR Act to bring new antibiotics to the marketplace for people with CF. TAKE ACTION Today, the CF Foundation helped bring together a diverse gro…

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  Cystic Fibrosis Foundation · [email protected]

September 7, 2023 at 8:06 PM

Together: a Community Update

The latest updates for September 7, 2023 September 7, 2023  How Will You ROSE UP? There are just two weeks left until ROSE UP day! ROSE UP participants are encouraged to choose their favorite activity — whether that’s cooking, dancing, gardening, kickboxing, or something else — to raise fund…

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  David Elin - CF Foundation · [email protected]

September 6, 2023 at 3:01 PM

Time for an advocacy update! ⏰

Register now to hear what we've been up to, and what's to come Hello Advocate,    Join us Wednesday, September 13 at 1 p.m. ET for an advocacy community update. The Foundation and our volunteers have been hard at work this summer advancing policy priorities that affect the lives of people liv…

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  Cystic Fibrosis Foundation · [email protected]

August 24, 2023 at 8:06 PM

Together: a Community Update

The latest updates for August 24, 2023 August 24, 2023  Some Maximizers May Be Misadvising People With Cystic Fibrosis  Certain copay maximizer programs, which partner with insurance companies to offset the costs of medications, are telling people with CF not to contact Compass for support in…

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  Cystic Fibrosis Foundation · [email protected]

August 17, 2023 at 5:02 PM

Read the latest research updates

Genetic therapies, NTM spotlight, modulator news, and more CF RESEARCH UPDATE Summer 2023 The Cystic Fibrosis Foundation is excited to share the latest news and developments in CF research. Potential Treatments for Those Who Can't Take Modulators Genetic therapies, such as gene therapies a…

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  Cystic Fibrosis Foundation · [email protected]

August 10, 2023 at 8:21 PM

Together: a Community Update

The latest updates for August 10, 2023     CF Foundation Announces New Members of Board of Trustees  We recently welcomed three new members to our Board of Trustees and Advisors who bring a breadth of experience spanning science, business, philanthropy, community engagement, and venture capit…

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  Cystic Fibrosis Foundation · [email protected]

July 27, 2023 at 8:29 PM

Together: a Community Update

The latest updates for July 27, 2023   Inaugural Golden Ticket Winner to Receive Additional Funding Last July, Nosis Bio won the Foundation’s inaugural Golden Ticket competition. A year later, we recently announced that we’ll be investing up to $2 million with them to explore safely deliveri…

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  Cystic Fibrosis Foundation · [email protected]

July 24, 2023 at 2:06 PM

A few highlights of our recent advocacy wins

Advocate, your stories sparked change Dear Advocate,   This year, the CF community has served as a powerful force in protecting and strengthening access to treatments and care through state and local advocacy efforts. Since January, community members have sent more than 35,000 messages to membe…

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  Cystic Fibrosis Foundation · [email protected]

July 13, 2023 at 8:12 PM

Together: a Community Update

The latest updates for July 13, 2023   CF Advocate Provides Testimony at Congressional Hearing on Impact of Antimicrobial Resistance  This week, we were proud to have Melanie Lawrence, an adult with cystic fibrosis, testify before a Senate subcommittee regarding the impact of antimicrobial r…

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  David Elin – Cystic Fibrosis Foundation · [email protected]

July 10, 2023 at 3:02 PM

Melanie Lawrence to testify before Congress!

Help amplify her story with your member of Congress. Advocate,   We are excited to share that Melanie Lawrence, an adult living with cystic fibrosis, has been invited to testify before the Senate Health, Education, Labor and Pensions (HELP) Subcommittee on Primary Health and Retirement Securi…

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  Cystic Fibrosis Foundation · [email protected]

June 22, 2023 at 8:22 PM

Together: a Community Update

The latest updates for June 22, 2023   Enroll in a Genetic Therapy Clinical Trial Advances in genetic therapies represent an opportunity to end cystic fibrosis as we know it. Critically, they could potentially benefit anyone with the disease, regardless of their individual mutation. Explore …

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  David Elin – Cystic Fibrosis Foundation · [email protected]

June 22, 2023 at 12:02 PM

Support our teen advocates: Tell Congress, act now

We need your help to amplify our message Advocate,   Today, more than 60 teens from across the country will meet with members of Congress during the Foundation’s 15th annual Teen Advocacy Day — and you can help maximize their impact.   Congress is considering two bills that will ensure peopl…

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  Amanda Zar - CF Foundation · [email protected]

June 15, 2023 at 2:03 PM

The CF Foundation Legacy Challenge Match begins today!

There's no better time to join our Legacy Society The 2023 Legacy Society Challenge Match begins today! Dear Friend, We understand that giving as a family is a journey and no one knows that more than CF grandmother Bonnee Binker and her family and friends. The Delaney Binker Family Cure Cy…

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  Cystic Fibrosis Foundation · [email protected]

June 8, 2023 at 8:22 PM

Together: a Community Update

The latest updates for June 8, 2023   Our 2022 Annual Report is Here Together, we made tremendous advancements in 2022. The median age of survival for a child with cystic fibrosis born today is 56 years old, we invested $265 million in research and care, and the number of people in the U.S. …

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  Cystic Fibrosis Foundation · [email protected]

June 7, 2023 at 3:02 PM

There's still time to register for NextBreath!

Join others in the CF community June 13-14 Are you or your loved one living with established cystic fibrosis lung disease or navigating life after lung transplant? Don’t miss NextBreath, a free, two-day virtual event June 13-14 for people living with CF and their family members to connect with…

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  Cystic Fibrosis Foundation · [email protected]

June 5, 2023 at 3:35 PM

It's 65 Roses Day 🌹

Join our 65 Roses Club On June 5 — 65 Roses Day — we tell the 65 Roses story and celebrate the resiliency, determination, and heart of the cystic fibrosis community. Although we have made a lot of progress in combatting CF, on this 65 Roses Day, we also recognize our work will not be finished …

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  Cystic Fibrosis Foundation · [email protected]

June 4, 2023 at 10:18 PM

Tomorrow we celebrate 65 Roses Day

Here's why this day is special to our community The 65 Roses story dates back to 1965 when 4-year-old Ricky Weiss, hearing the name of his disease for the first time, pronounced cystic fibrosis as “65 Roses.” The term took off for young children and today, “65 Roses” is referenced by children …

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