The latest updates for June 8, 2023


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Our 2022 Annual Report is Here

Together, we made tremendous advancements in 2022. The median age of survival for a child with cystic fibrosis born today is 56 years old, we invested $265 million in research and care, and the number of people in the U.S. living with CF grew from 30,000 in 2012 to nearly 40,000.
Explore our 2022 annual report ([link removed])
to learn about the progress we are making together to make CF stand for Cure Found.

Read our annual report » ([link removed])


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ADHD Resource Available

Attention-deficit/hyperactivity disorder (ADHD) is a common condition that can affect thinking, planning, organizing, and regulating behavior throughout life -- all important factors in managing life with cystic fibrosis. Learn how to manage ADHD more effectively with
CF and Mental Health: Thriving With ADHD: A Guide for People Living With CF ([link removed]).

Get the guide » ([link removed])
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New on YouTube: ResearchCon 2023

In case you missed it, the recordings from this year's ResearchCon are now available on YouTube in
English ([link removed])
and
Spanish ([link removed]). Watch now to catch up on the latest in cystic fibrosis-related science, research, and clinical care, and hear from others living with and studying the disease.

Watch the recordings in English » ([link removed])

Watch the recordings in Spanish » ([link removed])


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The Importance of Self-Advocating After Transplant

Gerry Sweeney's daughter, Lauren, didn't know that having a lung transplant would greatly increase her risk for cancer until it was too late. On the CF Community Blog, Gerry shares the
importance of self-advocacy and knowing your potential post-transplant health risks ([link removed]).

Read Gerry ([link removed])




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WE WILL NOT REST UNTIL WE FIND A CURE


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www.cff.org ([link removed])

4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US



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