The latest updates for June 22, 2023


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Enroll in a Genetic Therapy Clinical Trial

Advances in genetic therapies represent an opportunity to end cystic fibrosis as we know it. Critically, they could potentially benefit anyone with the disease, regardless of their individual mutation.
Explore our genetic therapies on the clinical trial finder ([link removed])
to enroll in an open trial or learn more about what is in development.

Explore our clinical trial finder » ([link removed])


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A Legacy Challenge to Fulfill Dreams of Tomorrow

We are excited to announce that the
Delaney Binker Family Cure Cystic Fibrosis Miami Foundation is once again challenging our community to provide critical funds for tomorrow ([link removed]). For each new member that joins the Legacy Society between June 15 - December 31, 2023, they will donate $1,000, up to $65,000. Make an immediate impact with a gift that costs you nothing today.

Share your legacy » ([link removed])




Is Your Disaster and Emergency Preparedness Plan Up to Date?

Having a plan in place for a natural disaster or emergency is especially critical when someone in your home is living with a chronic illness like cystic fibrosis. Additionally, it is important to revisit your plan each year to ensure all supplies and information are up to date, like confirming your household is prepared for possible situations such as an electricity outage.
Our disaster and emergency preparedness plan guide ([link removed])
can help you or someone you know with CF prepare for a disaster or emergency.

Create or update your plan » ([link removed])


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Now on YouTube: Passion Fundraising Workshop

In case you missed it,
our first passion fundraising virtual workshop is now available on YouTube ([link removed]). Watch now to hear from volunteers including Jerry Socherman, Julie Riedy, Jamie Roney, and Taylor Lentz discuss how you can use the new passion fundraising toolkit and learn how to turn your passion into a successful fundraising event.

Watch the recording » ([link removed])




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WE WILL NOT REST UNTIL WE FIND A CURE


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www.cff.org ([link removed])

4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US



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