The latest updates for July 27, 2023


([link removed])



Inaugural Golden Ticket Winner to Receive Additional Funding

Last July, Nosis Bio won the Foundation's inaugural Golden Ticket competition. A year later,
we recently announced that we’ll be investing up to $2 million ([link removed])
with them to explore safely delivering gene therapies into the lung, a key challenge in cystic fibrosis.

Read the announcement » ([link removed])




Get Ready for Back to School

Some germs can be particularly dangerous for people with cystic fibrosis.
Your child can reduce the risk of getting sick at school ([link removed])
by staying informed about how germs are spread. While informing your child's school about their CF is a personal choice, it can make it easier for staff to help your child reduce the risk of getting and spreading germs.

Learn more » ([link removed])


([link removed])




Compass Can Help Navigate Life's Challenges

Open enrollment is just around the corner!
Connect one-on-one with a Compass case manager ([link removed])
to ask questions and navigate challenges such as troubleshooting insurance coverage issues, understanding insurance basics, seeking financial assistance for medical care, and much more.

Connect with Compass » ([link removed])




I'm 24 and I have CF -- and Bone Disease

Osteopenia is a condition that occurs when the body doesn't make new bone as quickly as it reabsorbs old bone, causing bones to get weaker and more brittle. During a routine check-up, Lin Marando, an adult with cystic fibrosis, was
surprised to receive an osteopenia diagnosis at 24 years old ([link removed]). Lin is determined to take care of her health and try to strengthen her bones while finding support in the CF community.

Read Lin ([link removed])


([link removed])




([link removed])


WE WILL NOT REST UNTIL WE FIND A CURE


DONATE ([link removed])


www.cff.org ([link removed])

4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US



([link removed])
([link removed])
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]


[Opt out]([link removed]) out of this mailing list

Opt out ([link removed])
out of ALL CF Foundation emails

This email was sent to [email protected]

Got this as a forward? [Sign up]([link removed]) to receive our future emails.