The latest updates for August 10, 2023


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CF Foundation Announces New Members of Board of Trustees

We recently welcomed
three new members to our Board of Trustees and Advisors who bring a breadth of experience ([link removed])
spanning science, business, philanthropy, community engagement, and venture capital.

Meet the new members » ([link removed])




New Respiratory Syncytial Virus (RSV) Prevention Available for Infants

The CDC recommends the use of a
long-acting monoclonal antibody, nirsevimab (Beyfortus™) to protect young children from respiratory syncytial virus (RSV) ([link removed]). Given by a single intramuscular injection, nirsevimab is recommended for infants less than 8 months who are born during -- or entering -- their first RSV season, and in children up to 24 months old who remain vulnerable to severe RSV through their second RSV season. Nirsevimab has been shown to decrease the risk of hospitalization and health care visits for RSV in infants by about 80%.

Learn more from the CDC » ([link removed])




Introducing Our 2023 Impact Grant Recipients

We're excited to
announce the recipients of our 2023 Impact Grants, including seven new grant recipients ([link removed])! Impact Grants award up to $10,000 of funding per year, for up to two years, to individuals or nonprofit organizations for programs that benefit the cystic fibrosis community. From physical wellness to connectivity and creativity, learn more about how this year's grant recipients are supporting and empowering the CF community.

Meet the grant recipients » ([link removed])




Social Security Administration Conducting Disability Reviews

If you receive Social Security disability benefits, make sure to review any communication from the Social Security Administration (SSA). The SSA is conducting "continuing reviews," when they periodically review medical impairment to determine if a person still has a disabling condition. If you receive a continuing review notice,
CF Foundation Compass can connect you with the CF Legal Information Hotline® to see if you are eligible for free assistance ([link removed]).

Get help with Compass » ([link removed])




NextBreath Recordings Now Available on YouTube

In case you couldn't join live,
recordings from NextBreath are now available on YouTube ([link removed])
in English and Spanish. Watch now to hear our opening keynote with Ella Balasa, an adult with cystic fibrosis, a panel on navigating the world of post-transplant, the many journeys of living with established lung disease, and more.

Watch now » ([link removed])




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