The latest updates for December 14, 2023


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# December 14, 2023



Prescription Drug Affordability Boards and Cystic Fibrosis: What You Need to Know


State affordability boards are becoming more prevalent ([link removed])
as a way to assess and address the cost and affordability of prescription drugs. Preserving access to care and treatments for people with cystic fibrosis remains the Foundation's top priority, and we will continue encouraging boards to center their reviews around the needs of people with CF.

Learn more » ([link removed])


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Enroll in a Genetic Therapy Clinical Trial

Genetic therapies could potentially benefit everyone with cystic fibrosis, regardless of their individual mutations. By participating in a clinical trial, you will be blazing a trail to new therapies and, ultimately, a cure.
Explore our clinical trial finder to enroll in an open trial ([link removed])
and learn more about what is currently in development.

Explore our finder » ([link removed])


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Stay Protected Against Illness This Holiday Season

Respiratory illnesses, including flu and COVID-19, are increasing in the U.S., and both pose serious risks for people with cystic fibrosis. Vaccines are the best way to protect your health this holiday season.

Find a vaccine site » ([link removed])


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NACFC Highlights Webinar Now Available on YouTube

In case you missed it,
the recording from our NACFC highlights webinar with CF research experts is now available to watch on YouTube ([link removed]). During the webinar, Drs. Anna Georgiopoulos and Traci Kazmerski shared some of the research and care highlights from the conference including information on mental health, genetic therapies, sexual and reproductive health, and lung transplant.

Watch the recording » ([link removed])


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