The latest updates for August 24, 2023


([link removed])


# August 24, 2023



Some Maximizers May Be Misadvising People With Cystic Fibrosis

Certain
copay maximizer programs ([link removed]), which partner with insurance companies to offset the costs of medications, are telling people with CF not to contact Compass for support in navigating their health insurance. If your maximizer program tells you not to contact Compass, disregard it. Our case managers can guide you in working with maximizer programs to help you get the medications you need, including understanding your insurance, troubleshooting coverage issues, and finding financial assistance.

Connect with Compass » ([link removed])




Enter our BreatheCon Swag Design Contest

Your artwork could be featured on our 2024 BreatheCon swag!
Adults with cystic fibrosis are invited to submit an original design ([link removed])
inspired by the theme, "My CF Journey," where artists can represent where they are currently, where they've been, or where they would like to go in the future. The winning design will be selected by the CF community. Don't wait! The deadline to enter is September 15.


Submit your design » ([link removed])


([link removed])




Understanding the Intersection of Parenthood and CF

Researchers from the University of Pittsburgh collected
firsthand accounts from members of the cystic fibrosis community ([link removed])
to better understand the realities of parenting as a person with CF. They share a small selection of photos and stories, displaying the joys, frustrations, and strategies of parenting while also living with CF.

Read the stories » ([link removed])




Voicing My Health Needs Before and After Transplant

Matison Deaton thought her need to advocate for her health would diminish after receiving double-lung and kidney transplants. But even as she got healthier,
Matison continued to speak up to address her concerns post-transplant ([link removed]).

Read Matison ([link removed])


([link removed])




([link removed])


www.cff.org ([link removed])


DONATE ([link removed])


4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US



([link removed])
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]




[Opt out]([link removed]) of this mailing list

Opt out ([link removed])
out of all CF Foundation emails

This email was sent to [email protected]

Got this as a forward? [Sign up]([link removed]) to receive our future emails.