The latest updates for July 13, 2023


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CF Advocate Provides Testimony at Congressional Hearing on Impact of Antimicrobial Resistance

This week, we were proud to have Melanie Lawrence, an adult with cystic fibrosis,
testify before a Senate subcommittee regarding the impact of antimicrobial resistance (AMR) ([link removed]). AMR and the spread of drug-resistant superbugs can impact everyone but is particularly urgent for people with cystic fibrosis and others who face a heightened risk of chronic infections and may require routine use of antibiotics.


Read about Melanie’s testimony » ([link removed])


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Join our ROSE UP Roundtable

Are you excited about ROSE UP, but have questions about getting started?
Join our ROSE UP roundtable July 27 at 7 p.m. ET ([link removed])
to hear from adults living with cystic fibrosis, as well as ROSE UP committee members and ambassadors, who will share fundraising ideas and take questions. You will learn how your participation makes a big difference for everyone with CF.

RSVP now » ([link removed])




CF Peer Connect Now Available in Spanish

You can now request a connection with a Spanish-speaking member of the cystic fibrosis community. Whether you're facing a major CF milestone or dealing with day-to-day life,
the CF Peer Connect team can help you find someone to talk to ([link removed])
who understands and can relate to your experiences.


Request a connection » ([link removed])


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Attend a Virtual Professional Development Session

Young professionals ages 21 or older are invited to learn and develop entrepreneurial skills during a virtual professional development session,
Cultivating an Entrepreneurial Mindset in Your Career and Beyond ([link removed]), July 24, at 7 p.m. ET. The session will feature live discussion and Q&A with Marc Cassalina, senior vice president and wealth management advisor, and Paul Motenko, co-founder and former co-CEO of BJ's Restaurants, Inc. All young professionals, including current Tomorrow's Leaders members, are welcome to attend.


Register now » ([link removed])




More Than 60 Teens Helped Spark Meaningful Change During our 15th Annual Teen Advocacy Day

During our
15th annual Teen Advocacy Day ([link removed]), more than 60 teens came together to ask their representatives to advance key priorities that will help to ensure access to highly specialized treatments and care for people living with CF.

Read the story » ([link removed])


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WE WILL NOT REST UNTIL WE FIND A CURE


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