Cystic Fibrosis Foundation · [email protected]

April 7, 2022 at 8:30 PM

Together: a Community Update

The latest information for April 7, 2022 Thursday, April 7, 2022   The Latest in CF Research Last week we awarded up to $15.9 million to Eloxx Pharmaceuticals Inc. in additional funding to support the expansion of its ongoing clinical program focused on developing therapies for people …

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

April 5, 2022 at 5:18 PM

There's still time to register for ResearchCon

See you on April 7 and 9? Research is more than data. Every person and story matters in CF research.  Join us April 7 and 9 for ResearchCon: a free, online event where CF community members will share their research stories. Researchers and clinicia…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

March 24, 2022 at 8:25 PM

Together: a Community Update

The latest information for March 24, 2022 Thursday, March 24, 2022 The Global Burden of Antimicrobial Resistance (AMR) Mary Dwight, senior vice president and chief policy and advocacy officer at the Fo…

See More from Cystic Fibrosis Foundation

  Mary Dwight, Cystic Fibrosis Foundation · [email protected]

March 21, 2022 at 6:56 PM

Thank you 👏

Your voice made a difference Last week, more than 160 advocates, including more people living with cystic fibrosis than ever before, raised their collective voices to advocate for the CF community during the Foundation's 15th annual March on the Hi…

See More from Mary Dwight, Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

March 17, 2022 at 7:23 PM

Mark your calendar 📅

Join us at ResearchCon Mark your calendar for April 7 and 9 for ResearchCon! Join us for this free, online event open to anyone 16 and older with a personal or professional connection to cystic fibrosis. You’ll have the chance to engage live with e…

See More from Cystic Fibrosis Foundation

  Mary Dwight, Cystic Fibrosis Foundation · [email protected]

March 15, 2022 at 5:02 PM

Tell Congress to champion the PASTEUR Act

Join our Online Day of Action Did you know? Antibiotic-resistant infections were a leading cause of death worldwide in 2019 – causing more deaths than HIV/AIDS and malaria. While every person is susceptible to infections, people with cystic fibrosi…

See More from Mary Dwight, Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

March 10, 2022 at 9:33 PM

Together: a Community Update

The latest information for March 10, 2022 Thursday, March 10, 2022 The Latest in CF Research The Foundation continues to fund research into phage therapy, the use of specialized viruses that…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

February 24, 2022 at 9:24 PM

Together: a Community Update

The latest information for February 24, 2022 Thursday, February 24, 2022 Take a CF Community Survey We are seeking community input: How is the Foundation doing in partnering with and supporting the CF com…

See More from Cystic Fibrosis Foundation

  Cam McLoud · [email protected]

February 22, 2022 at 2:18 PM

Exciting news from the CF Foundation Board of Trustees

KC White elected next Board Chair Friend, After careful planning, I will be stepping down as Chair of the CF Foundation’s Board of Trustees in May of this year. It has been an honor and a privilege to serve this community and work closely with such a talented and passion…

See More from Cam McLoud

  Cystic Fibrosis Foundation · [email protected]

February 14, 2022 at 4:15 PM

Show your love this Valentine's Day

The sweetest gift for your loved ones with CF 💜 Give something extra sweet this Valentine's Day. Become a monthly donor to join the 65 Roses Club. Your love and commitment every month will accelerate ongoing research, support programs to help the CF c…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

February 10, 2022 at 9:18 PM

Together: a Community Update

The latest information for February 10, 2022 Thursday, February 10, 2022 Join Us for NextBreath People with cystic fibrosis, their family members, and caregivers age 16 and older are invited to join us Fe…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

February 3, 2022 at 9:25 PM

Together: a Community Update

The latest information for February 3, 2022 Thursday, February 3, 2022 CF Foundation Exceeds Initial $100M Infection Research Initiative Funding We have surpassed $100 million in research funding through …

See More from Cystic Fibrosis Foundation

  David Elin - Cystic Fibrosis Foundation · [email protected]

January 31, 2022 at 7:03 PM

Advocacy in 2022

Register for a community update Friend –  Join us Wednesday, February 2 at 1 p.m. ET for a CF advocacy community update! We are excited to share with you our 2022 advocacy priorities, including how we plan to build support for the PASTEUR Act and i…

See More from David Elin - Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

January 27, 2022 at 9:16 PM

Together: a Community Update

The latest information for January 27, 2022 Thursday, January 27, 2022 Steven Rowe, MD, Announced as Chief Scientific Officer Yesterday, we announced Steven Rowe, MD, will be the Foundation's n…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

January 19, 2022 at 6:16 PM

Save your seat at the National Annual Meeting

It's not too late to register Let's kick off 2022 together! You are invited to join us at our second virtual National Annual Meeting on Thursday, January 27 at 8 p.m. ET. Celebrate the progress made in 2021 with cystic fibrosis community members and hear Dr. Bo…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

January 13, 2022 at 9:20 PM

Together: a Community Update

The latest information for January 13, 2022 Thursday, January 13, 2022 You're Invited to our National Annual Meeting We all dream of the day when CF stands for Cure Found. Join us Thursday, …

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 31, 2021 at 11:20 PM

Last chance to give in 2021

Make your gift before midnight! Dear Friend,  Hurry – time is running out! Today is your last chance to make your charitable gift to the Cystic Fibrosis Foundation in 2021. Our most important and challenging work is …

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 31, 2021 at 1:57 PM

Time is almost up

Hours left to make your 2021 gift Dear Friend,  Our dream is that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. Despite the challenges of the last year, we have continued in relentless pursuit of that…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 30, 2021 at 5:22 PM

Reflecting on our progress in 2021

Thank you for your dedication to our mission Dear Friend, As 2021 draws to a close, I want to thank you for your ongoing dedication to our mission. Together, we continue to achieve so much, even in year two of a global pandemic. Over the past year, we made mor…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 28, 2021 at 4:22 PM

Your support means more birthdays

Give today Dear Friend,  This month, Baylor Griffith turned 1. First birthdays represent a milestone in any family, but especially when you have cystic fibrosis. "The first thing I said after Baylor's diagnosis was, 'I don't know how I am going to …

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 22, 2021 at 5:58 PM

CF Foundation year in review

A message from Michael Boyle, MD Dear Friend,  This has been a year of exciting progress for the CF community, along with challenges that we faced together head-on. As we reach the end of 2021, I wanted to share some reflections on this year’s highlights and, abo…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 20, 2021 at 8:50 PM

Path to a Cure research update

Explore our progress to find a cure for CF It's been a little over two years since we launched our $500 million Path to a Cure initiative, an ambitious research agenda to deliver treatments for the underlying cause of cystic fibrosis and, one day, a cure for every person…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 16, 2021 at 5:19 PM

You're invited ✉️

Join us for the National Annual Meeting Start the new year off right and join us virtually on Thursday, January 27 at 8 p.m. ET for our second National Annual Meeting to celebrate the progress made in 2021 as we look forward to the months ahead. He…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 14, 2021 at 9:18 PM

Your support helps fuel our mission

Together, we can make CF stand for Cure Found Dear Friend,  Ashley Wilson was diagnosed with cystic fibrosis via newborn screening in 1997. Growing up, her parents raised her to be open about her life with CF. And through her podcast and YouTube ch…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 9, 2021 at 9:19 PM

Together: a Community Update

The latest information for December 9, 2021 Thursday, December 9, 2021 CF Foundation Invests in Potential Antifungal Treatment for Lung Transplant Recipients This week, we announced an investment of $3…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 8, 2021 at 6:40 PM

Annual infection research update

Explore our progress to fight infections As part of our comprehensive effort to address infections in people with cystic fibrosis, the Infection Research Steering Committee met today to discuss what infection-related research the Foundation should prioritize as part of t…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

December 1, 2021 at 5:32 PM

The match has been met!

We are so grateful for our community The strength and support of the CF community continues to amaze us. We reached our Giving Tuesday goal and thanks to the generosity of the Stremick family, we raised significant funds to continue critical resear…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

November 30, 2021 at 5:21 PM

Match my gift today

One gift. Two times the impact Friend,  The only thing missing from this equation is your gift. We're halfway through Giving Tuesday – can we count on you to help us reach our goal?  Your gift will be matched, dollar-for-dollar, up to $250,000, th…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

November 30, 2021 at 2:00 PM

2X your gift on Giving Tuesday

Donate today Dear Friend,  The equation is simple. When you make a gift today, it will go twice as far in helping make CF stand for Cure Found. Thanks to the Stremick family, your Giving Tuesday gift will be matched dollar-for-dollar, up to $250,0…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

November 29, 2021 at 5:07 PM

Double your gift for Giving Tuesday

The time to give is now Dear Friend, Make a gift to the CF Foundation this Giving Tuesday and it will be doubled! Thanks to the generosity of the Stremick family, whose 16-year-old granddaughter, Ella, has cystic fibrosis, your gift will be matched…

See More from Cystic Fibrosis Foundation

  David Elin – Cystic Fibrosis Foundation  · [email protected]

November 22, 2021 at 6:04 PM

CF Advocacy End of Year Update

Mark your calendar Join the Cystic Fibrosis Foundation Wednesday, December 1 at 1:00 p.m ET for a CF advocacy community update! Hear the latest on advocacy efforts in the cystic fibrosis community, including our current policy priorities in Congre…

See More from David Elin – Cystic Fibrosis Foundation 

  Cystic Fibrosis Foundation · [email protected]

November 11, 2021 at 9:14 PM

Together: a Community Update

The latest information for November 11, 2021 Thursday, November 11, 2021 CF Foundation Strikes First-Of-Its-Kind Deal With Pioneering Medicines As part of our Path to a Cure research agenda,…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

November 8, 2021 at 5:17 PM

Your NACFC 2021 recap

Read top takeaways from members of the CF community Thank you for joining us for this year’s North American Cystic Fibrosis Conference! Together, we were more than 5,000 researchers, clinicians, and community members strong hearing the latest on cy…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

November 2, 2021 at 2:14 PM

NACFC is here

Join us online starting at 10 a.m. ET Dear Friend,Our virtual event doors for NACFC are open! We’re excited to have you join us. Join us live, and log in to the virtual NACFC platform to watch three plenary sessions, three workshops, 12 symposia, a…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

October 28, 2021 at 8:19 PM

Together: a Community Update

The latest information for October 28, 2021 Thursday, October 28, 2021 NACFC Starts Next Week Catch up on the latest advancements in cystic fibrosis research, care, and drug development at t…

See More from Cystic Fibrosis Foundation

  David Elin – Cystic Fibrosis Foundation · [email protected]

October 26, 2021 at 5:03 PM

Tell Congress: We need new antibiotics

Act now Dear friend, Life with cystic fibrosis means living with a heightened risk of serious infections. The buildup of thick, sticky mucus in the lungs makes people with CF more susceptible to bacterial infections which can last for a couple of…

See More from David Elin – Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

October 18, 2021 at 3:17 PM

3 days until ...

Our second annual Breath of Life Celebration Join us this Thursday, October 21 at 8 p.m. ET for the Cystic Fibrosis Foundation's second annual National Breath of Life Celebration. This special evening will feature familiar faces and beloved enter…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

October 14, 2021 at 8:16 PM

Together: a Community Update

The latest information for October 14, 2021 Thursday, October 14, 2021 Register for our National Breath of Life Celebration Don't miss out on an evening to remember – please join us virtually for our s…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

October 12, 2021 at 7:47 PM

You're Invited to NACFC 2021

Hear all the latest in research, care, and more Dear Friend,It's been a busy year for the cystic fibrosis community. Hear all the latest advancements in CF research, care, and drug development from researchers and health professionals – all from th…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

October 5, 2021 at 9:03 PM

Join us for the National Breath of Life Celebration

Register today! Please join us for the CF Foundation's second annual National Breath of Life Celebration on October 21 at 8 p.m. ET. This special evening will be a time for us to unite as a community and advance our shared dream – a cure for cyst…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

September 18, 2021 at 3:10 PM

Thank you for supporting ROSE UP!

Together, we can accomplish incredible things. Whether you walked, baked cupcakes, painted a picture, or shared your story, thank you for participating in ROSE UP! Together, we raised nearly $300,000, and had ROSE UP participants in all 50 states. Were you unable to atten…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

September 17, 2021 at 2:16 PM

Happy ROSE UP Day!

Join us for a special day of fundraising and story sharing Over the last several weeks, hundreds of members of the cystic fibrosis community have registered, donated, and shared their stories on social media to lead up to the big moment: ROSE UP Da…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

September 16, 2021 at 8:17 PM

Together: a Community Update

The latest information for September 16, 2021 Thursday, September 16, 2021 Join Us for the National Breath of Life Celebration You're invited to join us October 21 at 8 p.m. ET for our second annual na…

See More from Cystic Fibrosis Foundation

  David Elin – Cystic Fibrosis Foundation · [email protected]

September 7, 2021 at 3:33 PM

Join us for a special CF advocacy update

Mark your calendar Join us Thursday, September 9 at 1 p.m. ET for a special CF advocacy community update. Santiago Gonzalez, senior policy advisor to Senator Michael Bennet (D-CO), will join us to discuss the PASTEUR Act and its potential impact o…

See More from David Elin – Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

September 2, 2021 at 8:18 PM

Together: a Community Update

The latest information for September 2, 2021 Thursday, September 2, 2021 Dr. Boyle Discusses Antimicrobial Resistance at World Orphan Drug Congress Last week, Michael Boyle, MD, president and CEO of th…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

August 19, 2021 at 8:15 PM

Together: a Community Update

The latest information for August 19, 2021 Thursday, August 19, 2021 Update on Cystic Fibrosis Foundation Events Based on current COVID-19 trends, including a dramatic increase in cases throughout the …

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

August 18, 2021 at 1:17 PM

Let's ROSE UP!

Register to join the movement We are kicking off today! Join Noor and hundreds of others for our second annual ROSE UP fundraising event. This is an incredible opportunity to participate virtually with members of the cystic fibrosis community fighting for the same mission…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

August 5, 2021 at 8:18 PM

Together: a Community Update

The latest information for August 5, 2021 Thursday, August 5, 2021 Vertex Moves Ahead with Phase 3 Trials ofOnce-Daily Triple Combination Therapy After positive Phase 2 trial results, Vertex announced …

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

July 22, 2021 at 8:27 PM

Together: a Community Update

The latest information for July 22, 2021 Thursday, July 22, 2021 We Want to Hear From You We are seeking community input on the CF Foundation's educational content – including videos, webinars and even…

See More from Cystic Fibrosis Foundation

  Cystic Fibrosis Foundation · [email protected]

July 20, 2021 at 8:09 PM

Your Legacy: A Match for the Future

It's never too early to think about planning for the future. We are driven by the dream that one day every person with cystic fibrosis will have the chance to live a long, healthy life. Working alongside the community, the Cystic Fibrosis Foundation has made unparalleled …

See More from Cystic Fibrosis Foundation