The latest information for April 7, 2022


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Thursday, April 7, 2022



The Latest in CF Research

Last week
we awarded up to $15.9 million to Eloxx Pharmaceuticals Inc. ([link removed])
in additional funding to support the expansion of its ongoing clinical program focused on developing therapies for people with cystic fibrosis who have nonsense mutations. The new funding will enable the company to expand the studies to determine whether the combination of ELX-02 with a CFTR modulator results in increased biological activity over ELX-02 alone.

Read the announcement » ([link removed])


CF Foundation Awards $1.6M to Improve Detection of Lung Transplant Complication

Yesterday,
we announced $1.6 million of funding for eight awards ([link removed])
to research earlier detection of a common, serious post-lung transplant complication called chronic lung allograft dysfunction (CLAD). This funding is part of our critical effort to improve outcomes for people with cystic fibrosis who have had a transplant.

More about the awards » ([link removed])


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Introducing our New National Advocacy Co-Chairs

Marissa Benchea, an adult with cystic fibrosis, and Jeremy and Rachel Olimb, parents of three children with CF, are
our new National Advocacy Committee co-chairs ([link removed]). As co-chairs, they will lead the Foundation’s volunteer advocacy efforts into a new chapter of CF. We thank Chad Riedy, an adult with CF, and Drew and Jaci Strube, parents of a son with cystic fibrosis, who have served as co-chairs since 2018, for their efforts in advancing our advocacy efforts over the last four years.

Meet the new co-chairs » ([link removed])


U.S. FDA Authorizes Second COVID-19 Boosters

Last week, the U.S. FDA authorized second booster shots of the mRNA vaccines. You are eligible to receive a second booster if you are 50 or older and it’s been at least four months since you received a first booster of any authorized or approved vaccine or you are 12 and older and have had a solid organ transplant, or are equally immunocompromised, and it’s been at least four months since you received a first booster of any authorized or approved vaccine. You can
find a vaccination site at vaccines.gov ([link removed]).

Make a vaccine appointment » ([link removed])


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Register for a Special National Volunteer Week Event

Join us
April 21 at 7 p.m. ET for Gratitude Hour ([link removed]), a special live, virtual celebration during National Volunteer Week. Members of the cystic fibrosis community including Katie Aryeh and John Schroeder, the daughter and father of an adult who had CF, April Harvey DeLange and Jamie Harvey, sisters with CF, and Dylan Mortimer, an adult with CF, share what they are grateful for and who inspires, drives, and moves them toward finding a cure for CF.

Save your seat for Gratitude Hour » ([link removed])


WE WILL NOT REST UNTIL WE FIND A CURE


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