The latest information for January 27, 2022


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Thursday, January 27, 2022

Steven Rowe, MD, Announced as Chief Scientific Officer

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Yesterday, we announced Steven Rowe, MD, will be the Foundation ([link removed]). His more than two decades of work in cystic fibrosis and experience contributing to research in personalized medicine and identifying compounds to restore the function of nonsense mutations make Dr. Rowe distinctly suited to lead our scientific strategy as we pursue a cure for all people with CF. He will join the Foundation as CSO starting July 1.

Get to know Dr. Rowe » ([link removed])

2020 Patient Registry Handout: CF Care and COVID

Throughout 2020, people with cystic fibrosis managed their health amid disruptions to daily life caused by the COVID-19 pandemic. Data captured in the CF Foundation ([link removed]) show remarkable trends in the health of people with CF and the care they received in partnership with their CF care teams – a testament to the strength and resilience of the CF community.

Explore 2020 Patient Registry data » ([link removed])

Compass Officially Accredited by Alliance of Information and Referral Systems

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Compass received their official accreditation from the Alliance of Information and Referral Systems (AIRS) ([link removed]), the only source globally that sets standards, accreditation, and certification for community referral and information services. The accreditation solidifies Compass's premier quality and effectiveness as an information and referral source for our community.

Connect with Compass » ([link removed])

Watch Genetic Therapies 101 on YouTube

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

How do genetic therapies work in the body? Find out the answer to this question and more about RNA and gene therapy by watching the recording from our research webinar, Genetic Therapies 101 ([link removed]), on our YouTube channel. Led by Dr. Deepika Polineni and Dr. Marty Solomon, you can also hear more about upcoming clinical trials.

Watch Genetic Therapies 101 » ([link removed])

Giving You Permission to Accept My Chronic Illness

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As a person with cystic fibrosis, Luisa Palazola has spent a lot of time wondering: What ([link removed])? On the CF Community Blog, she shares that while she doesn't consider having a chronic illness like cystic fibrosis to be a good thing, she accepts it – and thinks others should, too.

Read Luisa ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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