The latest information for February 10, 2022


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Thursday, February 10, 2022

Join Us for NextBreath

People with cystic fibrosis, their family members, and caregivers age 16 and older are invited to join us February 24 for NextBreath, a free, online event ([link removed]). Find support and make meaningful connections through relaxed, small group discussions about life with advanced CF lung disease, considering a transplant, preparing for a transplant, and life post-transplant with people who are going through a similar experience.

Register for NextBreath ([link removed]) » ([link removed])

Participate in a Focus Group About Home IV Use

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Have you or a loved one with cystic fibrosis used home IVs? Researchers from the CF Therapeutic Development Network are conducting a series of focus groups for people with CF and their caregivers to design a novel intervention to improve home treatment of pulmonary exacerbations requiring intravenous antibiotics. Join Community Voice today ([link removed]) to be considered to participate in these focus groups.

Sign up for Community Voice » ([link removed])

We Want to Hear Your Infection Story

Last month the Foundation announced that we exceeded our $100 million commitment to infection research ([link removed]) – but we are far from finished in our fight against antibiotic-resistant infections. How can you help? Share how antibiotic-resistant infections have affected your life to help demonstrate the impact of this issue as the Foundation continues to advocate for the PASTEUR act.

Share your story » ([link removed])

Why Sharing My Positive COVID Results Mattered

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])

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Test positive for COVID-19? Tell your cystic fibrosis care team ([link removed]). Carmelina Hreinsson, an adult with CF, shares her experience after receiving a positive COVID test, and how she worked with her care team to get an important drug to help reduce the risk of severe symptoms.

Read Carmelina ([link removed])





4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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