From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date February 24, 2022 9:24 PM
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The latest information for February 24, 2022


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Thursday, February 24, 2022

Take a CF Community Survey

We are seeking community input: How is the Foundation doing in partnering with and supporting the CF community ([link removed])? Your feedback will help us better understand how we’re doing and where we can improve to better meet your needs. The survey takes no more than five minutes to complete, and your information and opinions are confidential.

Take the survey » ([link removed])

CF Foundation Extends Collaboration With Beam

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People with cystic fibrosis ages 18 and older in the United States can continue to access live and on-demand classes from Beam, the online exercise, education, and well-being platform ([link removed]), along with special events through June. No promo code necessary. If you are already signed up for Beam, your free membership has been extended for 2022.
Sign up for Beam today » ([link removed])

Sign Up for CF Peer Connect

A strong support system is an important aspect of overall well-being, especially for those managing a chronic illness like cystic fibrosis. When you sign up for CF Peer Connect ([link removed]), whether you’re an adult with CF or a family member (parent, partner, or spouse) you can connect one-to-one with someone in the CF community who is facing similar lived experiences or challenges.
Request a connection » ([link removed])

My Advice to Other Parents of Color About Their Child With CF

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Lathronia Jefferson’s 11-year-old son, Khaleb, has cystic fibrosis ([link removed]). While that may seem like a normal fact of their life, Lathronia has often been frustrated trying to convince doctors that her son really does have CF because he is Black. On the CF Community Blog, she shares her advice to other parents of color about their child with CF.
Read Lathronia ([link removed])

DONATE ([link removed])

Cystic Fibrosis Foundation
4550 Montgomery Ave, Suite 1100N
Bethesda, Maryland 20814

www.cff.org ([link removed])



4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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