Susan Axelrod, CURE Founder · [email protected]

July 6, 2020 at 7:29 PM

We need your support now more than ever...

We need your support now more than ever... I hope this letter finds you and your loved ones healthy and safe. During these unprecedented times, it can be difficult to steer attention away from the COVID-19 virus that is threatening and altering our lives in ways we could never have anticipa…

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  Dr. Laura Lubbers · [email protected]

July 1, 2020 at 3:59 PM

The Path to a Cure: An Update on Genetic Research

The Path to a Cure: An Update on Genetic Research The Path to a Cure: An Update on Genetic Research Dr. Gemma Carvill, a former CURE Grantee who is a leader in epilepsy genetic research, was awarded a Taking Flight Award in 2015, early in her career. This grant aims to encourage young investi…

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  Dr. Laura Lubbers · [email protected]

June 17, 2020 at 2:44 PM

Epilepsy Research News: June 2020

Epilepsy Research Findings: June 2020 This month’s epilepsy research news includes a study examining the efficacy of cognitive behavioral therapy that is designed specifically to treat individuals with psychogenic nonepileptic seizures (PNES). In addition, recent research documents the abilit…

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  Dr. Laura Lubbers · [email protected]

May 27, 2020 at 2:41 PM

CURE Discovery: Inhibiting This Brain Enzyme May Prevent Epilepsy

CURE Discovery: Inhibiting a Brain Enzyme May Prevent Epilepsy CURE Discovery: Inhibition of an Important Brain Enzyme Attenuates the Development of Epilepsy Key Points CURE Grantee Dr. Detlev Boison and his team discovered that short-term use of a substance called 5-ITU prevents epilepsy…

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  Dr. Laura Lubbers · [email protected]

May 14, 2020 at 2:48 PM

Epilepsy Research Findings: May 2020

Epilepsy Research Findings: May 2020 In this month’s epilepsy research news, we highlight an unexpected health benefit of epilepsy neurostimulators and report on a potential explanation for the effectiveness of fenfluramine in Dravet syndrome. We also present a study suggesting that people who…

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  Dr. Laura Lubbers · [email protected]

May 12, 2020 at 1:28 PM

Webinar: Transforming Data into Seizure Control with Learning Healthcare Systems

Webinar: Transforming Data into Seizure Control with Learning Healthcare Systems Date: Thursday, May 14, 2020Time: 12:00PM - 1:00PM CT Register Now A “Learning Healthcare System” is a “big data” approach to medicine that aims to improve patient care and clinical outcomes by bringing together …

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  Dr. Laura Lubbers · [email protected]

May 6, 2020 at 7:33 PM

CURE Discovery: “Big Data” Approach Identifies Protein that Protects Against Epileptogenesis

CURE Discovery: “Big Data” Approach Identifies Protein that Protects Against Epileptogenesis CURE Discovery: Researchers use “Big Data” to Identify a Protein that Protects Against Epileptogenesis Key Points Dr. Avtar Roopra and his team used a “big data” approach to understand how an inj…

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  "Dr. Laura Lubbers" · [email protected]

April 21, 2020 at 1:15 PM

Epilepsy Research Findings: April 2020

Epilepsy Research Findings: April 2020 Research findings reported over the past month include advances in our understanding of an area of the brain that may contribute to Sudden Unexpected Death in Epilepsy (SUDEP) in children, as well as intriguing discoveries about autoantibody-induced epile…

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  Beth Lewin Dean · [email protected]

April 13, 2020 at 8:53 PM

Update: Live Q&A on Epilepsy, COVID-19, and Insurance

TOMORROW: Epilepsy, Insurance, & COVID-19 Live Stream The roster for tomorrow's live Q&A on epilepsy and COVID-19 has grown! Tomorrow, April 14 at 11:00AM CT, Benjamin Isgur, Health Research Institute Leader at PwC United States, will join pediatric epileptologist Dr. James Wheless an…

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  Beth Lewin Dean · [email protected]

April 10, 2020 at 6:26 PM

Ask the Experts: Epilepsy, Insurance, and COVID-19

Ask the Experts: Epilepsy, Insurance, and COVID-19 This Tuesday, April 14 at 11:00AM CT, ask experts your questions on COVID-19 and epilepsy during a Facebook Live Stream! Our panelists will address audience questions about epilepsy management, trends in medication availability, and working …

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  Beth Lewin Dean · [email protected]

March 30, 2020 at 1:30 PM

Be Like Brook: Apply for a CURE Scholarship!

Be Like Brook: Apply for a CURE Scholarship! April 15: CURE Scholarship Deadline Apply Now We want to empower you to be like Brook, one of our CURE Scholars. If you dream of becoming an agent of change within the epilepsy community, we want you to apply for one of our annual Education Enri…

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  Dr. Laura Lubbers · [email protected]

March 26, 2020 at 6:50 PM

The Epilepsy-Autism Connection: Webinar and Live Q&A

Webinar and Live Q&A: The Epilepsy-Autism Connection Did you know that over 30% of people with epilepsy also meet the diagnostic criteria for autism?1 Join us for a webinar exploring the link between epilepsy and autism during Autism Awareness Month on Tuesday, April 28 at 12:00 PM CT. Re…

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  Dr. Laura Lubbers · [email protected]

March 24, 2020 at 7:15 PM

CURE Initiative: Defending Against Post-Traumatic Epilepsy

CURE Initiative: Defending Against Post-Traumatic Epilepsy CURE Initiative: Defending Against Post-Traumatic Epilepsy Post-traumatic epilepsy (PTE) is a seizure disorder resulting from injury to the brain. It is a devastating complication of traumatic brain injury (TBI), which can occur as a …

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  Beth Lewin Dean · [email protected]

March 18, 2020 at 3:21 PM

[Updated Guests] Epilepsy & COVID-19: Facebook Live Stream

[Updated Guests] Epilepsy & COVID-19: Facebook Live Stream Today we’re hosting a Facebook live stream where you can ask experts your questions on COVID-19 and managing epilepsy at 11:30AM CT! In addition to neurologist Dr. Jeffrey Loeb and neuroimmunologist Dr. Michael Carrithers from th…

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  Beth Lewin Dean · [email protected]

March 17, 2020 at 11:08 PM

Epilepsy & COVID-19: Facebook Live Stream and CURE Precautions

Epilepsy & COVID-19: Facebook Live Stream and CURE Precautions As people around the world follow the evolving COVID-19 situation, we’re taking precautions to reduce risk to staff, donors, and volunteers, as well as provide information for the CURE community of patients, families, and car…

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  Dr. Laura Lubbers · [email protected]

March 17, 2020 at 1:45 PM

Epilepsy Research Findings: March 2020

Epilepsy Research Findings: March 2020 This month’s research highlights feature promising work by former CURE Grantees and CURE partners. Former CURE Grantee Dr. Kristina Simeone’s recent research has uncovered a potential predictive biomarker for Sudden Unexpected Death in Epilepsy (SUDEP). …

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  Beth Lewin Dean · [email protected]

March 6, 2020 at 4:55 PM

CURE Update: Collaborating Toward a Cure

CURE Update: March 2020 Greetings, CURE community! This month I had the pleasure of attending Purple Day at Disney World. This wonderful event reminded me of the importance of collaboration in achieving a goal. Curing epilepsy is a team effort involving the patient community, medical professio…

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  Dr. Laura Lubbers · [email protected]

February 19, 2020 at 8:49 PM

CURE Discovery: Two Major SUDEP Risk Factors Identified in Nationwide Swedish Study

CURE Discovery: Two Major SUDEP Risk Factors Identified in Nationwide Swedish Study CURE Discovery: Two Major SUDEP Risk Factors Identified in Nationwide Swedish Study This grant was generously supported by the Leisher Family Award. Key Takeaways: Dr. Torbjörn Tomson’s study confirms previ…

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  Beth Lewin Dean · [email protected]

February 12, 2020 at 4:29 PM

DC: Race Toward a Cure for Epilepsy

DC: Race Toward a Cure for Epilepsy Rock the nation’s capital city while raising vital funds for epilepsy research by running with Team CURE at the Rock’n’Roll Marathon and ½ in Washington, DC! Join us on March 28 and run a marathon, half-marathon, or 5K – there's a distance for everyone! It w…

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  Dr. Laura Lubbers · [email protected]

February 11, 2020 at 7:35 PM

Epilepsy Research Findings: February 2020

Epilepsy Research Findings: February 2020 Among the articles featured this month, we highlight the work of former CURE Grantee Dr. Annapurna Poduri, whose recent study argues for early use of whole exome sequencing and repeated analysis to identify the genetic cause of epilepsy in children. Dr…

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  Beth Lewin Dean · [email protected]

February 10, 2020 at 2:32 PM

Today is a global event!

Today is #EpilepsyDay! Today is International #EpilepsyDay! There are an estimated 65 million people in the world living with epilepsy and 80% of those individuals live in low- and middle-income countries. The World Health Organization estimates that 70% of people impacted by epilepsy in these…

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  Beth Lewin Dean · [email protected]

February 7, 2020 at 7:18 PM

Get ready for #EpilepsyDay!

Get ready for #EpilepsyDay! International #EpilepsyDay is February 10! There are an estimated 65 million people in the world living with epilepsy and 80% of those individuals live in low- and middle-income countries. The World Health Organization estimates that 70% of people impacted by epilep…

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  Beth Lewin Dean · [email protected]

February 4, 2020 at 4:37 PM

CURE Update: #EpilepsyDay is Almost Here!

CURE Update: February 2020 Greetings, CURE community! This month we’re joining organizations in over 120 countries in celebrating International Epilepsy Day on February 10. While an estimated 65 million people worldwide are diagnosed with epilepsy, research aimed at finding a cure remains sore…

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  Dr. Laura Lubbers · [email protected]

January 30, 2020 at 9:34 PM

Webinar and Live Q&A: The ABCs of EEGs

Webinar and Live Q&A: The ABCs of EEGs Join us for our first webinar of 2020 on Monday, February 10 at 11:00 AM CT where we will discuss what individuals with epilepsy and caregivers need to know about electroencephalograms (EEGs). Whether seeking a diagnosis, localizing seizures to guide …

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  Dr. Laura Lubbers · [email protected]

January 22, 2020 at 8:07 PM

CURE Discovery: Predicting Focal Epilepsy’s Path through the Brain

CURE Discovery: Predicting Focal Epilepsy’s Path through the Brain CURE Discovery: Predicting Focal Epilepsy’s Path through the Brain Key Takeaways In a study funded in part by CURE, Dr. Jennifer Gelinas aimed to understand how focal epilepsy resulting in partial seizures can progress to dif…

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  Dr. Laura Lubbers · [email protected]

January 16, 2020 at 2:41 PM

Epilepsy Research Findings: January 2020

Epilepsy Research Findings: January 2020 This past month of research advances include the finding that “silencing” certain populations of neurons may stop seizures and the uncovering of a possible cause of memory impairments in individuals with epilepsy. In addition, a study found that one in …

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  Beth Lewin Dean · [email protected]

January 8, 2020 at 5:04 PM

CURE Update: Kicking off 2020

CURE Update: January 2020 Happy New Year! As we enter 2020, the team at CURE wants to thank you. We want to thank you for your support through donating, fundraising, and participating in community events and programming. You truly give us hope – hope that together, we will build a world withou…

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  Beth Lewin Dean · [email protected]

December 31, 2019 at 3:05 PM

In a second you can double your impact

In a second you can double your impact In a second our worlds can change. In a second, Sudden Unexpected Death in Epilepsy took Cameron Benninghoven’s life. In a second, a devastating car accident changed Meg Busing’s life forever. In a second, our fight to save Adelaide C…

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  Beth Lewin Dean · [email protected]

December 30, 2019 at 2:15 PM

Our resolution...

Our resolution... As 2019 draws to a close, we have much to celebrate and much to reflect upon. We have shared heartbreaking stories with you of love and loss, and stories of hope—hope that one day, together, we will find a cure for epilepsy. For more than 20 years, CURE has led a transfor…

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  Dr. Laura Lubbers · [email protected]

December 19, 2019 at 3:17 PM

Epilepsy Research Findings: December 2019

Epilepsy Research Findings: December 2019 This month, the FDA approved XCOPRI, a new medication to treat partial-onset seizures in adults. This type of seizure is often difficult to control, so we are thrilled to see this treatment advancement. Additional promising research news includes the a…

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  Kelly Cervantes · [email protected]

December 18, 2019 at 3:44 PM

Keeping My Promise

My promise to my daughter I promised my baby girl that her efforts, her fight, and her life will not have been in vain. Please join me in making a year-end gift to CURE today. Last year I asked you to fight like hell for a cure to help our daughter, Adelaide, and the millions affected by…

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  Beth Lewin Dean · [email protected]

December 16, 2019 at 2:16 PM

Apply for a CURE Scholarship!

Apply for a CURE Scholarship! Now Accepting Applications for the CURE Education Enrichment Fund Scholarship You could receive up to $5,000 toward your education through the CURE Education Enrichment Fund Scholarship, funded by the generous support of Greenwich Biosciences. We're accepting appli…

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  Dr. Laura Lubbers · [email protected]

December 11, 2019 at 2:46 PM

Announcing CURE's New Grantees!

Announcing CURE's New Grantees! We are delighted to announce the recipients of our 2019 CURE grants! These grants are awarded for novel research projects that address finding cures for epilepsy and address the goal of “no seizures, no side-effects.” Read on to learn about the innovative projec…

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  Meg Busing · [email protected]

December 10, 2019 at 2:31 PM

In a second, my life changed forever...

In a second, my life changed forever... IN A SECOND our lives can change. One day, research will lead us to a cure. Let’s make that day happen. Please join me in making a year-end gift to CURE today. On March 6, 1998, my life changed forever. I was a healthy, free-spirited freshman in hi…

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  Dr. Laura Lubbers · [email protected]

December 6, 2019 at 10:09 PM

Seizure Warning for Star Wars: The Rise of Skywalker

Seizure Warning for Star Wars: The Rise of Skywalker Disney has issued warnings for Star Wars: The Rise of Skywalker for those who have photosensitive epilepsy. According to Disney, Star Wars: The Rise of Skywalker contains several sequences with imagery and sustained flashing lights that may …

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  Beth Lewin Dean · [email protected]

December 6, 2019 at 8:47 PM

CURE Update: Season's Greetings and More

CURE Update: December Season’s Greetings! The holidays are a time for review and reflection. For us at CURE, this past year has been full of incredible accomplishments. We have once again been on the forefront of groundbreaking epilepsy research in areas such as Sudden Unexpected Death in Epil…

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  Beth Lewin Dean · [email protected]

November 27, 2019 at 8:04 PM

How you can give hope on #GivingTuesday

How you can give hope on #GivingTuesday Give Hope on #GivingTuesday #GivingTuesday happens annually on the Tuesday following Thanksgiving, unleashing the power of people and organizations to make a difference and transform their communities. Here are three ways you can make a real impact thi…

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  Dr. Laura Lubbers · [email protected]

November 26, 2019 at 10:33 PM

CURE Discovery: Novel Strategies to Understand SUDEP Risk and Ways to Prevent It

CURE Discovery: Novel Strategies to Understand SUDEP Risk and Ways to Prevent It CURE Discovery: Novel Strategies to Understand SUDEP Risk and Ways to Prevent It Key Takeaways This CURE-funded study aims to develop biomarkers to assess the risk of Sudden Unexpected Death in Epilepsy (SUDEP) …

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  Ellen Benninghoven · [email protected]

November 21, 2019 at 9:14 PM

We had never heard of SUDEP

We had never heard of SUDEP Greetings! Cameron was truly a man for all seasons: the excitement and energy of springtime, the richness and complexity of summer, the collecting and harvesting of autumn, and the wisdom and restfulness of winter. He was a unique young man—kind, caring, inclusiv…

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  Beth Lewin Dean · [email protected]

November 20, 2019 at 8:07 PM

Researching for a Cure: Your Impact on Epilepsy

Researching for a Cure: Your Impact on Epilepsy Greetings! It is with gratitude and excitement that I share “Researching for a Cure,” the first issue of our new biannual highlighting key milestones CURE and our community have accomplished together in our pursuit of finding a cure for epileps…

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  Dr. Laura Lubbers · [email protected]

November 12, 2019 at 8:33 PM

Epilepsy Research Findings: November 2019

Epilepsy Research Findings: November 2019 Among the interesting research published this past month are advances in epilepsy genetics that may help predict who is at risk for developing epilepsy and a novel gene therapy concept for treating temporal lobe epilepsy. Research has also furthered ou…

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  Beth Lewin Dean · [email protected]

November 5, 2019 at 5:49 PM

CURE Update: It's Epilepsy Awareness Month!

CURE Update: It's Epilepsy Awareness Month! Greetings! In 2003, Congress passed a formal resolution declaring November as Epilepsy Awareness Month to end the stigma surrounding epilepsy and bring attention to this condition. Epilepsy is the fourth most common neurological disease in the US, ho…

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  Beth Lewin Dean · [email protected]

October 23, 2019 at 9:06 PM

Just 5 Minutes Can Make a Difference – Take #5forEpilepsySafety on SUDEP Action Day

Just 5 Minutes Can Make a Difference – Take #5forEpilepsySafety on SUDEP Action Day Just 5 Minutes Can Make a Difference – Take #5forEpilepsySafety on SUDEP Action Day Sudden Unexpected Death in Epilepsy (SUDEP) is one of the most devastating possible outcomes of epilepsy, occurring when a per…

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  Dr. Laura Lubbers · [email protected]

October 22, 2019 at 4:15 PM

CURE Discovery: Understanding and Treating NMDA Receptor Associated Epilepsy

CURE Discovery: Understanding and treating NMDA receptor-associated epilepsy CURE Discovery: Understanding and Treating NMDA Receptor-Associated Epilepsy Key Takeaways: Researchers are studying whether off-label treatment with certain FDA-approved drugs can improve seizure control for indivi…

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  Dr. Laura Lubbers · [email protected]

October 17, 2019 at 6:18 PM

Epilepsy Research Findings: October 2019

Epilepsy Research Findings: October 2019 This month’s Epilepsy Research News highlights two recent findings that help us understand how focal seizures might spread through the brain, affecting areas outside of the original seizure “focus” (the area where the seizure begins). We also feature n…

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  Beth Lewin Dean · [email protected]

October 11, 2019 at 3:16 PM

CURE Update: How to get involved on SUDEP Action Day, View the Real Talk Live Stream, Rallying behind #Giving Tuesday and more...

CURE Update: How to get involved on SUDEP Action Day, View the Real Talk Live Stream, Rallying behind #Giving Tuesday and more... Greetings! In this month’s update, I have a very important question to ask: are you ready to take your shot at epilepsy? This November enter our Epilepsy Awareness…

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  Dr. Laura Lubbers · [email protected]

September 19, 2019 at 3:08 PM

Epilepsy Research Findings: September 2019

Epilepsy Research Findings: September 2019 This month, published among the important research discoveries that advance our understanding of epilepsy, was an article authored by CURE grantee Dr. Alica Goldman. This article identifies a new candidate gene for a disorder characterized by seizures…

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  Beth Lewin Dean · [email protected]

September 13, 2019 at 3:43 PM

CURE Update: Discover New Research, Attend Community Events, and Combat Stigma

CURE Update: Discover New Research, Attend Community Events, and Combat Stigma Greetings! The CURE office is buzzing with excitement for all the upcoming events and educational opportunities on the horizon. It warms our hearts to see the epilepsy community coming together both on and offline …

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  Dr. Laura Lubbers · [email protected]

September 9, 2019 at 2:06 PM

Join us Tomorrow! Webinar on Promising Epilepsy Rescue Medications

Join Uu Tomorrow! Webinar on Promising Epilepsy Rescue Medications Tomorrow: Explore Promising New Epilepsy Rescue Medications in this Webinar Learn More | Register Gain insight into exciting research on seizure rescue therapies that are in development during a free webinar tomorrow, Septe…

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  Dr. Laura Lubbers · [email protected]

August 29, 2019 at 3:01 PM

CURE Discovery: A New Model to Understand Focal Cortical Dysplasias

CURE Discovery: A New Model to Understand Focal Cortical Dysplasias CURE Discovery: A New Model to Understand Focal Cortical Dysplasias Highlights CURE Taking Flight Grantee Dr. Yu Wang and his team created a new, better animal model of focal cortical dysplasias (FCDs) to understand how the…

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