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Among the interesting research published this past month are advances in epilepsy genetics that may help predict ([link removed]) who is at risk for developing epilepsy and a novel gene therapy concept ([link removed]) for treating temporal lobe epilepsy. Research has also furthered our understanding of how epilepsy may impact cognition – even when seizures are controlled by medication.
In this update, we also feature the results of the “Seize the Truth about Epilepsy Perceptions” survey, a national survey ([link removed]) of adult epilepsy patients, caregivers, and healthcare professionals exploring the physical, social, emotional, and financial consequences associated with epilepsy.
Summaries of these research discoveries and news highlights are below.
** Research Discoveries & News
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* Epilepsy Genetics: Genetic-based epilepsy risk scores are being used to investigate the genetic risk of epilepsy in a large sample of people with and without epilepsy. The international team led by the Cleveland Clinic is using this model to work towards a more personalized method of epilepsy diagnosis and treatment. Learn more ([link removed])
* Epilepsy Gene Therapy: A new gene therapy concept has been developed for the treatment of temporal lobe epilepsy. In a “proof-of-concept” study, the researchers demonstrated that strategically delivering a specific gene to the place in the brain where seizures start can suppress them on demand in animal models. Learn more ([link removed])
* Understanding Epilepsy: A new, national survey of adult epilepsy patients, caregivers, and healthcare professionals (HCPs) revealed a wide range of challenges in the management of the condition. The findings range from significant disconnects that occur in conversations among patients, caregivers, and HCPs to revelations about the far-reaching impact of epilepsy. Learn more ([link removed])
* Epilepsy and Cognition: A study by Stanford University School of Medicine investigators may help explain why even people benefiting from medications for their epilepsy often continue to experience bouts of difficulty thinking, perceiving, and remembering clearly. The cause is a pathological buzz of electrical brain activity, called a high-frequency oscillation, that interferes with the brain's normal activity. Learn more ([link removed])
* Seizures in Newborns: Utilizing a mouse model of hypoxic-ischemic seizures has shed light on why seizures in newborns may lead to behavioral issues and learning disabilities much later, according to a study from University of Virginia Children’s Hospital. This research suggests that the brain's learning and memory centers are among the regions most affected by seizures caused by inadequate oxygen and blood flow. Learn more ([link removed])
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Introducing the CURE Epilepsy Research Mobile App for research updates in the palm of your hand! Download today. iOS ([link removed]) | Android ([link removed])
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Our mission is to find a cure for epilepsy, by promoting and funding patient-focused research. CURE is a non-profit 501(c)(3) tax-exempt organization. Our tax identification number is 36-4253176.
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