CURE - Citizens United for Research in Epilepsy

Beth Lewin Dean Greetings, CURE community! This month we’re joining organizations in over 120 countries in celebrating International Epilepsy Day ([link removed]) on February 10. While an estimated 65 million people worldwide are diagnosed with epilepsy, research aimed at finding a cure remains sorely underfunded. Last summer, the World Health Organization released its first global report on epilepsy ([link removed]) with the goals of raising public awareness of the critical needs of the epilepsy community, encouraging investment to reduce the burden, and advocating for actions to address gaps in epilepsy knowledge, care, and research.

In this update, you can discover how to support epilepsy research and raise awareness about the need for advances toward a cure. In addition, please find information on:
* International Epilepsy Day ([link removed])
* The Upcoming Webinar and Live Q&A: The ABCs of EEGs ([link removed])
* Joining Team CURE for the Rock’n’Roll Race Series
* What’s New on the Seizing Life® Podcast ([link removed])
* Curing the Epilepsies 2020: Setting Research Priorities ([link removed])

Warmest,
Beth Lewin Dean

Beth Lewin Dean, CEO


** [link removed]: Spread the Word about the Need for a Cure!
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Learn More ([link removed])

February 10 is International Epilepsy Day and you can join this global movement to increase awareness about epilepsy and the need for a cure. To celebrate this worldwide event:
* Donate to support groundbreaking epilepsy research on CURE’s Facebook page ([link removed]) .
* Share important information ([link removed]) about the impact of epilepsy around the world.
* Preview our next Seizing Life podcast episode ([link removed]) , focusing on the impacts of epilepsy in low- and middle-income countries.


** [link removed] Webinar and Live Q&A: The ABCs of EEGs
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Sign Up ([link removed])

From diagnosis to determining surgical eligibility, EEGs are a critical tool in the field of epilepsy. In our webinar on February 10 at 11:00AM CT, Dr. David Burdette will explain the different types of available EEGs and what patients can expect from each. In addition, he will explore the recent advances in EEG and other neuroimaging technology that have direct, positive impacts on patients.

This webinar is generously supported by the BAND Foundation.


** Rock'n'Roll Race Series #RunLikeAChampion in Rock’n’Roll Races Nationwide!
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Team CURE is rocking to support epilepsy research in Rock’n’Roll races ([link removed]) across the US. We want you to join us in:
* Washington, DC ([link removed])
* San Francisco, CA ([link removed])
* Seattle, WA ([link removed])
* Chicago, IL ([link removed])
* Philadelphia, PA ([link removed])

Meet fundraising goals to receive exclusive swag! Join Team CURE by emailing [email protected] (mailto:[email protected]) .


** [link removed] from Seizing Life®, a CURE Podcast
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Watch or Listen ([link removed])

In honor of International Epilepsy Day, we’re launching a globally focused episode of the Seizing Life podcast next week! Catch a sneak peek now. ([link removed])

Plus, catch up on the latest episodes where we discussed:
* Advances in rescue therapies to manage seizure clusters.
Learn More ([link removed])
* How former NFL star and broadcaster Mike Adamle and his wife, Kim, manage his post-traumatic epilepsy and CTE symptoms.
Learn More ([link removed])


** [link removed] the Epilepsies 2020: Setting Research Priorities
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Submit Your Response ([link removed])

When CURE was founded in 1998, Susan Axelrod and the other founding mothers were frustrated by the lack of research addressing why their children's seizures could not be stopped, what caused their epilepsy, and why answers did not exist. These mothers challenged the research community to focus on finding cures and worked to establish the first National Institute of Health (NIH) conference centered around curing epilepsy. Since that first meeting, held in March of 2000 and initiated by the Clinton White House, CURE has continued to play a pivotal role in the sequels to this conference and now is instrumental in gearing up for the next iteration.

You can help set these priorities. NIH is looking for patients, caregivers, and advocates to lend their voices in deciding the future of epilepsy research. Discover how you can make comments or suggestions here ([link removed]) .

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Our mission is to find a cure for epilepsy, by promoting and funding patient-focused research. CURE is a non-profit 501(c)(3) tax-exempt organization. Our tax identification number is 36-4253176.
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Our mailing address is:
Citizens United for Research in Epilepsy (CURE)
420 Wabash Ave, Ste 650
Chicago, IL 60611
USA
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In the past you provided Citizens United for Research in Epilepsy your email address. Occasionally, you will receive updates from CURE about epilepsy research and news.