CURE - Citizens United for Research in Epilepsy
Beth Lewin Dean
Greetings! The CURE office is buzzing with excitement for all the upcoming events and educational opportunities on the horizon. It warms our hearts to see the epilepsy community coming together both on and offline to speak up in support of greater research funding and public education about epilepsy.
In this update, learn about our awareness-building Facebook Live Stream ([link removed]) , a recent video ([link removed]) we created focusing on how you can help change the conversation around epilepsy, what’s new from our Seizing Life ([link removed]) podcast, details on the CURE 2019 Annual Chicago Benefit ([link removed]) , and the exciting California events Day of Science: Epilepsy Conversations ([link removed]) and Epilepsy Awareness Day at Disneyland ([link removed]) .
Warmest,
Beth Lewin Dean
Beth Lewin Dean, CEO
** [link removed] Event and Facebook Live Stream – Real Talk: Speaking Up About Life with Epilepsy
------------------------------------------------------------
Learn More ([link removed]) | Tickets ([link removed])
While 3.4 million Americans are currently impacted by epilepsy, the everyday experience of living with this condition remains largely in the shadows. To shed light on this “invisible” condition, a panel of individuals with epilepsy will speak to building careers, relationships, and more. Moderated by CURE Board Member and activist Kelly Cervantes, this discussion promises to be a unique, stigma-busting event!
If you’re in Chicago, please join us for the live filming and post-panel reception ([link removed]) . Otherwise, catch the action on our Facebook page ([link removed]) .
** [link removed] Change the Conversation Around Epilepsy
------------------------------------------------------------
Watch ([link removed]) | Speak Up ([link removed])
The stigma associated with epilepsy can lead those affected to face challenges with employment, education, and even medical care.
Watch and share this important information to help change the conversation around epilepsy, educate the general public, and break down the stigma.
** [link removed] from Seizing Life, a CURE Podcast
------------------------------------------------------------
Watch or Listen ([link removed])
Dive into the latest episodes of Seizing Life, where we explore:
* Fighting Epilepsy Stigma: ([link removed]) Learn how one amazing teen and his friends are leading a movement to combat epilepsy stigma.
* Growing Up with a Sibling who has Epilepsy: ([link removed]) CURE Board Members Michael Axelrod and Marilynn Kelly Gardner discuss how growing up around siblings with epilepsy shaped their lives.
** [link removed] the Date for the CURE 2019 Annual Chicago Benefit!
------------------------------------------------------------
Learn More ([link removed]) | Sponsor ([link removed]) | Tickets ([link removed])
Mark your calendars: this year’s spectacular CURE 2019 Annual Chicago Benefit is on Monday, November 18!
We’re celebrating the innovative epilepsy researchers whose careers CURE has helped launch for over 20 years. These are the groundbreaking scientists who are helping break open new avenues of investigation in the field of epilepsy research, giving hope to those impacted by the condition, and pushing us closer to a cure.
Our amazing performers for this year’s benefit are Rock and Roll Hall of Famer Nils Lofgren, star of Chicago’s Hamilton Miguel Cervantes, and renowned Chicago-based vocal group Musicality.
** [link removed] California Events: CURE’s Day of Science: Epilepsy Conversations and Epilepsy Awareness Day at Disneyland
------------------------------------------------------------
Attend Day of Science: Epilepsy Conversations ([link removed])
On Saturday, September 21, people with epilepsy and their caregivers have the opportunity to ask a panel of doctors and researchers their questions during Day of Science: Epilepsy Conversations ([link removed]) at the Children’s Hospital of Orange County. At this free event, leading experts will address attendees’ questions on the latest research as it relates to new epilepsy treatment options, surgery, genetics, and more. Also, enjoy small-group discussions with the panelists over lunch.
Day of Science: Epilepsy Conversations is made possible thanks to the generous support of the BAND Foundation, Eisai, and Greenwich Biosciences. This event is also hosted in partnership with the Epilepsy Support Network of Orange County.
[link removed] Epilepsy Awareness Day at Disneyland ([link removed])
Paint the park purple at Epilepsy Awareness Day at Disneyland ([link removed]) ! On November 4 and 5, join us at the expo to access epilepsy resources while learning about new treatment options and devices. Then head to Disneyland Park on November 6 to enjoy the rides, build lasting friendships, and spread epilepsy awareness.
We’ll announce our fun booth activities soon, so stay tuned!
** Upcoming CURE Events
------------------------------------------------------------
September 21: Day of Science: Epilepsy Conversations ([link removed]) – Orange, CA
September 29: Chicago Half Marathon/5K ([link removed]) – Chicago, IL
October 7: Real Talk: Speaking Up About Life with Epilepsy ([link removed]) – Chicago, IL and Online
November 3: The 2019 TCS New York City Marathon ([link removed]) – New York, NY
November 4-6: Epilepsy Awareness Day at Disneyland ([link removed]) – Anaheim, CA
November 9: Dressage for a Cause ([link removed]) – Batavia OH
November 18: CURE 2019 Annual Chicago Benefit ([link removed]) – Chicago, IL
December 3: #GivingTuesday ([link removed]) – Online
View All Upcoming Events ([link removed])
------------------------------------------------------------
Our mission is to find a cure for epilepsy, by promoting and funding patient-focused research. CURE is a non-profit 501(c)(3) tax-exempt organization. Our tax identification number is 36-4253176.
[link removed]
[link removed] [link removed] [link removed] [link removed] [link removed]
View this email in your browser. ([link removed])
Our mailing address is:
Citizens United for Research in Epilepsy (CURE)
430 W Erie St Ste 210
Chicago, IL 60654-6920
USA
Update your preferences ([link removed]) or unsubscribe from this list ([link removed])
In the past you provided Citizens United for Research in Epilepsy your email address. Occasionally, you will receive updates from CURE about epilepsy research and news.
