CURE - Citizens United for Research in Epilepsy
Beth Lewin Dean Greetings, CURE community! This month I had the pleasure of attending Purple Day at Disney World. This wonderful event reminded me of the importance of collaboration in achieving a goal.
Curing epilepsy is a team effort involving the patient community, medical professionals, researchers, and advocacy organizations. Every day, we are grateful to have you by our side and to work with partners throughout the field of epilepsy to realize our mission of finding a cure. In this update, learn about our latest advocacy collaboration with the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago.
Beyond Chicago, so many are working to improve the world for those impacted by epilepsy, whether through research, education, or fundraising. In this update, learn about how you and your community can make a difference:
* Seizure First Aid Video ([link removed])
* New Therapies for Seizure Emergencies
* CURE Scholar Spotlight ([link removed])
* Races Across the US to Fund Research
* Chicago Epilepsy Awareness Campaign
* New from the Seizing Life® Podcast ([link removed])
Warmest,
Beth Lewin Dean
Beth Lewin Dean, CEO
** [link removed] First Aid Everyone Should Know
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Watch and Share ([link removed])
Who needs to be educated on seizure first aid? Everyone. This video, featuring pediatric epileptologist Dr. Linda Laux, discusses basic steps to take when someone is having a tonic-clonic seizure. Share this information with teachers, community leaders, employers, and anyone else you think could benefit from knowing what to do in the event of a seizure.
** Seizure Rescue Meds New Therapies for Seizure Emergencies Now Available
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Nayzilam ([link removed]) | Valtoco ([link removed])
Two nasally administered seizure rescue medications are now commercially available to patients.
* Nayzilam^® (midazolam nasal spray) (CIV): indicated for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 12 years of age and older. Learn More ([link removed])
* Valtoco^® (diazepam nasal spray): indicated for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 6 years of age and older. Learn More ([link removed])
** [link removed] CURE Scholar Spotlight: Brook Hodegman
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Watch ([link removed])
Brook Hodgeman, who was diagnosed with epilepsy as a child, is one of our amazing CURE Scholars determined to become an agent of change in the epilepsy community.
Hear from Brook ([link removed]) about how his involvement with the CURE Scholarship program is propelling him toward his dream of becoming a neurologist and epilepsy researcher.
Now accepting applications for 2020! ([link removed]) CURE Scholarships are made possible by the generous support of Greenwich Biosciences.
** Team CURE #RunLikeAChampion Across the US!
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See All Events ([link removed])
Coast to coast, Team CURE is racing toward a future without epilepsy! From marathons to 5Ks, we have races planned across the US in California ([link removed]) , New York ([link removed]) , Illinois ([link removed]) , and beyond this year.
When you race for Team CURE and meet fundraising goals, you’ll receive exclusive swag! Join Team CURE or find out about upcoming races by emailing
[email protected]. (mailto:
[email protected])
** 1 in 26 Chicago: Here’s What 1 in 26 Looks Like
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We’ve partnered with the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago to demonstrate just how many people will be impacted by epilepsy in the US. Together we’ve launched ads like the one you see here at Chicago "L” train stations and other city hot spots. When you see one, snap a picture and tag us on Instagram at @CUREepilepsy ([link removed]) for a chance to be featured!
** [link removed] from Seizing Life®, a CURE Podcast
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Watch or Listen ([link removed])
Catch up on the latest episodes of the Seizing Life podcast where we discuss:
* The global impact of epilepsy. Learn More ([link removed])
* Advances in seizure emergency medications. Learn More ([link removed])
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Our mission is to find a cure for epilepsy, by promoting and funding patient-focused research. CURE is a non-profit 501(c)(3) tax-exempt organization. Our tax identification number is 36-4253176.
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Our mailing address is:
Citizens United for Research in Epilepsy (CURE)
420 Wabash Ave, Ste 650
Chicago, IL 60611
USA
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In the past you provided Citizens United for Research in Epilepsy your email address. Occasionally, you will receive updates from CURE about epilepsy research and news.